Neurologist Appointment

[Guest guest]

In a message dated 10/9/2003 6:25:20 PM Eastern Daylight Time,

kneeleee@... writes:

His hand was pretty fine, hard to

believe.

breaks bones and doesn't care so we are concerned for his safety. A

couple of weeks ago he took of his clothes for brushing in OT and we noticed

bruises in the shape of finger prints on his back and side. We have no way of

knowing how they got there. As far as ear and throat infections go, we look for

things like tugging or not eating. That is why we are in the peds office a

couple

of times a month.

, Mom to , reflux, hiatal hernia, compacted bowels, asthma, global

hypotonia, motor dyspraxia, SID, Asperger's

[Guest guest]

I think it is a problem to that extreme for many kids with ASD. One

time when Royce was very little - 4 or 5 yo - I accidently shut the

car door on his hand. He stood there with his hand in the door. He

didn't even blink. I had walked around the car and I started yelling

at him to hurry up...of course, he didn't move. Finally I went back

around to move him physically when I saw his hand in the door. I

screamed and opened the door and was all upset and THEN he started

crying - only because I was upset. His hand was pretty fine, hard to

believe.

The other problem he had was ear infections. It's like he never knew

he had one until it was past bad. He would start crying and I would

take him to do the doc only to find out the infection had perforated

his ear drum by that point. It wasn't until the pain was severe

before he would notice it.

But he has hands that do not feel as well as they should and he still

doesn't cry a lot in pain over anything. He's wrecked on his bike

many times and doesn't even notice until I tell him he is bleeding on

his socks or something.

Roxanna

> Our main concern as parents is the lack of response to pain. He was

> in the doctor's office for the pink eye, he got up from under the

> table and smashed his head on the wood frame. continued

without

> even blinking. This is the first time the ped saw this for herself

> and she wants the neurologist to look further into it. It is a

> problem for kids with ASD but not to this extreme.

>

>

[Guest guest]

In a message dated 10/9/2003 9:53:50 PM Eastern Standard Time,

the3stacks@... writes:

breaks bones and doesn't care so we are concerned for his safety. A

couple of weeks ago he took of his clothes for brushing in OT and we noticed

bruises in the shape of finger prints on his back and side. We have no way of

knowing how they got there. As far as ear and throat infections go, we look

for

things like tugging or not eating. That is why we are in the peds office a

couple

of times a month.

Interesting...Royce did have what looked like finger prints on his back

around age 4ish and we at first panicked, thinking someone had grabbed him too

hard

or something. It turned out he was trying to do somersaults and instead of

bending his back as he went over, he went over with his back straight - smack

onto the floor. The bruises were the result of his spine hitting the floor.

Roxanna ö¿ö

Autism happens...

[Guest guest]

My son, who is 4 months, 3 weeks and has tort and plagio has an

appointment with a neurologist tomorrow (we were on a cancellation

list). We were asked to have any tests (only an ultrasound of the

head has been done) with us. What should I expect the appointment to

be like? Is there anything specific I should be asking for? Tests?

X-rays? Any info is greatly appreciated!!

Thank you!

[Guest guest]

Print out this link. It has a list of questions to ask the dr. Then

you can write down right on the list, any questions you come up with

that aren't already on there.

Is your son already in pt for his tort? If not, you definitely need

to get a referral for it. If you can't get it from the neuro, call

your pede and see if you can get it there.

Good luck and please let us know how it goes.

Becky

, repo grad

>

> My son, who is 4 months, 3 weeks and has tort and plagio has an

> appointment with a neurologist tomorrow (we were on a cancellation

> list). We were asked to have any tests (only an ultrasound of the

> head has been done) with us. What should I expect the appointment

to

> be like? Is there anything specific I should be asking for?

Tests?

> X-rays? Any info is greatly appreciated!!

>

> Thank you!

>

>

[Guest guest]

Hi,

we saw a cranio facial plastic surgeon, not a neuro. I think they want

to look at the head shape, feel the soft spots to make sure they are

open and recommend a band depending on severity. Our doc measured her

head with calipers to determine that her brachy (flat in back) was

severe. And he wrote us the Rx for a band.

If they are afraid that the the plates of the head have fused

(craniosynostosis) they will order an xray or ct scan. If the bones

have fused too early brain growth may be restricted and surgery may be

needed (this is rare). We didn't have any xrays or CT for our

daughter.My daughter saw the specialist about the same time (4 mo 1

wk) and got her starband 3 wks later. It has made a huge difference.

Since your son has tort, you may also get a referal for PT if you're

not already doing it.

-christine

mom to sydney/ 9.5 mo/ starband 5-31-06

>

> My son, who is 4 months, 3 weeks and has tort and plagio has an

> appointment with a neurologist tomorrow (we were on a cancellation

> list). We were asked to have any tests (only an ultrasound of the

> head has been done) with us. What should I expect the appointment to

> be like? Is there anything specific I should be asking for? Tests?

> X-rays? Any info is greatly appreciated!!

>

> Thank you!

>

>

[Guest guest]

thank you Becky. I have printed it out now I feel much more confident to get all the information I need

From: "Becky" <res103198@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Neurologist AppointmentDate: Thu, 19 Oct 2006 13:23:24 -0000

HI! It wasn't because of our computer, it's because I am an airhead! Anyway, here is the link, http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htm. Sorry!Becky, repo grad

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[Guest guest]

I think you should definitely continue with the chiropractor. I've been taking Tiernan to one for two months and it has helped tremendously with his tort. Our chiro. is not a traditional one, he actually does the B.E.S.T. method which involves pressure points. It's been amazing. On the other stuff, you need to do what you feel most comfortable with. PT is a very good thing, and as long as your insurance will cover it, I say go for it. Banding.... same ol' advice, if you won't be happy with this headshape when he's older, you may want to push for a helmet. I know, there's soooo much to look at with these little tykes! Candace, AZ mommy to Tiernan, 5 mos tort, plagioweikel_maria <miweikel@...> wrote: Thank you all for your replies. Overall, I feel it was a great visit. The doctor said that ph's tort and plagio were "very mild" and that his fontenelle (sp?) was still open. He was impressed with his head movement and said that he would like to see him in 2 months for another exam. He did not recommend a helmet/band at this time and said that he did not feel that other tests (xray/cat, etc.) were warranted. Although I am happy (my chiropractor recently said the same thing) I just do not want to take any chances. He would like for us to continue with p/t, home exercises and did not comment either way on the chiro, but did say to

wait to helmet/band. Any thoughts?

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