Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Hi Anita, I am going to respond to your post and then I don't know about you but I am taking a couple of days off of the list, just to catch my breath. [g] I am sorry to say that I am not really familiar with the group the way I would like to be. I am not able to keep up with it. I only scan the topics in the digest form and unless it is related to something currently going on with me I am skipping over a lot. Typing was off my list a few months ago. I spent 5 months not being able to use the computer much at all, so I am trying to pace myself. I would like to go back to the archives and look up your posts to find answers to questions I have about your health etc, and I hope to do that over the weekend. That way I don't have to ask you a million questions that you have already mentioned on the group. I am very curious about what type of doctor you have that is helping you to do " functional " viatmin tests?? I have seen a lot of doctors over the years, mainstream and alternative. It hasn't helped me much on either side of it. When I have found improvement it is almost always from my own experimentation and observation. Sounds like you have done a lot of that yourself. :-) I will definitely see if my doctor will give me a try of the B complex and B12 shots. My primary care that I just left was a specialist in nutrition but I found she gave me less input nutrition wise and less help than any other doctor I ever had. How can that be?? *sigh* I will be back the beginning of the week. Oh..who doesn't like the Beach Boys and Les Mis..! Great taste. [g] Adam In a message dated 5/14/2004 5:20:26 PM Eastern Standard Time, writes: > > Hi Adam, So nice to find out more about you. Yup, music and > gardening are my two passions, too. ' > I touched upon blood > versus " functional " vitamin tests in a post to somebody else > today. I usually have much higher enough levels of B vitamins in > my blood (enough to make one think the levels are normal), but > FUNCTIONAL B vitamin tests that measure the byproducts of the > coenxymes that SHOULD be there if I were actually USING the B > vitamins are invariably VERY, VERY low. So, just because your > blood levels of B12 are OK, that doesn't mean you are able to > use it and you also have to have high enough levels of cobalt to > be able to use it, too. > > Don't know if you could pursuade your doc to do functinal B > vitamin tests, because they are expensive and it's hard to find a > lab that does them. A cheaper solution is to beg for a trial B > complex with B12 injection (or just a B 12 injection ) and see > how you feel. It's my belief that many people who are ill > (especially with things like mito disorders) probably have some > sort of gut dysbiosis component problem resulting from their > illness where they are not able to efficiently absorp, utilise, or > store some nutrients properly. Thus, I think oral supplementaion > sometimes isn't enough. In my case I KNOW it isn't as far as the > B vitamins are concerned. > > I am able to take the minerals you asked about orally, but if I > don't have enough B vitiamins in my system first, it seems like > they simply don't work. I have to take them at the same time as > my injection or all the symptoms I associate with the mineral > deficicies get worse. PLUS, without the injections, my gut and > stomach quickly feel like one giant muscle cramp so I can't even > manage to take the mineral supplements without throwing up. I > need the injections every 24 hours, but that's highly unusual, > most people who need injection can get by with them much less > frequently . > > Thanks for your kind words re; my " oddity " . I like " rarity " much > better. > > I like those musical examples you listed, too. You ask what I > liked/like to listen to best......well......um...my favourite is the > BEACH BOYS, followed by " The Lord Is My Shepherd " from " The > Requiem " by Rutter. Also like music from " Les Mis " and > " Guys and Dolls'. > > Best Wishes, > Anita > > Quote Link to comment Share on other sites More sharing options...
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