Asking A Question For A Friend

[Guest guest]

Hi,

My first diagnosis was Fibromyalgia. Then CFS, there was a question of MS,

but also my brain MRI had lesions but not typical of MS. I have been evaluated

for Lupus over the years about 4 different times because of elevated ANA but

no rashes and no joint pain so I didn't get a Lupus diagnosis. They have

looked for other autoimmune disorders but other than Raynaud's, nothing else

seemed to apply. I was also high for epstein barr. My ANA has been as high as

2500.

Very confusing. Especially since the Mito specialist I saw recently

indicated that definite diagnosis with a positive muscle biopsy is only been

true for

15-20% of those with clinical diagnosis based on symptoms.

Adam

[Guest guest]

Adam

I'm thinking that low a percentage is from frozen muscle biopsies and not

the ones on fresh tissue to test for respiratory chain function.

laurie

> From: AdamM321@...

> Reply-To:

> Date: Wed, 12 May 2004 11:20:17 EDT

> To:

> Subject: Asking A Question For A Friend

>

> Hi,

>

> My first diagnosis was Fibromyalgia. Then CFS, there was a question of MS,

> but also my brain MRI had lesions but not typical of MS. I have been

> evaluated

> for Lupus over the years about 4 different times because of elevated ANA but

> no rashes and no joint pain so I didn't get a Lupus diagnosis. They have

> looked for other autoimmune disorders but other than Raynaud's, nothing else

> seemed to apply. I was also high for epstein barr. My ANA has been as high

> as

> 2500.

>

> Very confusing. Especially since the Mito specialist I saw recently

> indicated that definite diagnosis with a positive muscle biopsy is only been

> true for

> 15-20% of those with clinical diagnosis based on symptoms.

>

> Adam

>

>

>

[Guest guest]

Anita,

It sounds like we do have a lot in common with our health

history. More people than I can count on this list have, at one time or

another, been told that this is " all in your head " . I think that seems

to be the best diagnosis for a doctor to give when they don't know what

to do or just doesn't know what the answer is. I hope you are passed

many of those days!

Smiles,

a

On Wed, 12 May 2004 01:03:11 -0000 " Anita " melobeau@...> writes:

Hi a, Your health history shares some of the same " high

points " as mine....even the " it's all in your head " . Glad to hear you

are diagnosed and hope your good days outnumber your bad

ones.

Anita

Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of

this e mail is entirely responsible for its content. List members are

reminded of their responsibility to evaluate the content of the postings

and consult with their physicians regarding changes in their own

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Personal attacks are not permitted on the list and anyone who sends one

is automatically moderated or removed depending on the severity of the

attack.

[Guest guest]

Hi a, I DOES sounds like we have a lot in common!

Re: " It's all in your head " , YUP, the seizures, jerking, headaches,

hearing problems, vision problems, cramps in the neck....Hey

doc, they all ARE located above my shoulders......guess that

qualifies as " all in my head " , eh? :-)

Anita

> Anita,

> It sounds like we do have a lot in common with our health

> history. More people than I can count on this list have, at one

time or

> another, been told that this is " all in your head " . I think that

seems

> to be the best diagnosis for a doctor to give when they don't

know what

> to do or just doesn't know what the answer is. I hope you are

passed

> many of those days!

> Smiles,

> a

>

> On Wed, 12 May 2004 01:03:11 -0000 " Anita "

writes:

>

>

> Hi a, Your health history shares some of the same " high

> points " as mine....even the " it's all in your head " . Glad to hear

you

> are diagnosed and hope your good days outnumber your bad

> ones.

>

> Anita

>

>

>

>

> Medical advice, information, opinions, data and statements

contained

> herein are not necessarily those of the list moderators. The

author of

> this e mail is entirely responsible for its content. List members

are

> reminded of their responsibility to evaluate the content of the

postings

> and consult with their physicians regarding changes in their

own

> treatment.

>

> Personal attacks are not permitted on the list and anyone who

sends one

> is automatically moderated or removed depending on the

severity of the

> attack.

>

>

>

>

>