Gastric Bypass Update on this Mito Mommy

[Guest guest]

Hi guys,

OK I have had several E-mail me off list asking about how I was doing with

the gastric by-pass. I decided I would just write one response if you all don't

mind, as Kira has been very ill again and is having trouble with

siezure/dysautonomia attacks again so my time is way short.

Anyway here goes. I started out at 385 lbs on August 14,2003. I just went in

to my doctor and as of Friday I now weigh 251 lbs. So lets see, that is 134

lbs I have lost in just about 8 months. That is a whole person!!!!! My blood

pressure is way down, my diabetes has pretty much resolved itself in that I

don't need to take any meds for it anymore. I have had some trouble with

vitamin B-12 deficiency and calcium break down. I am having a bit of gal

bladder

trouble as well currently, but for the most part I have done well. I have been

very careful with what I am eating and have managed to stay on the positive

side of acidotic except for about 5 days total. I have gone through some

muscle weakness that I think was kicked off by the lack of nutrition, but when I

fed through the G-tube it help to resolve the extra fatigue. I have fatigue

anyway normally. But I can say loosing the weight has helped me a lot. I have

not lost a lot lately, I am on a plateau at the moment, which kind of freaks me

a bit because I don't want to stay in the 200's, but the fact that the surgery

is working for me is a good thing, my metabolic rate has changed a bit but

not much so it is scary to think I am slowing down. It is much easier on me to

only be loosing 4 to 5 lbs a month now than 20 or so before. They want my

calories high enough that I am only loosing a lb a week. That is very hard to

do

when you can't eat a whole lot. I have gotten into some bad habits of eating

fatty foods which kicks the Mito in me off, just to bring up the calorie

intake. So I am working with the nutrionalist to try and straiten that out as

well. So over all I am a Mito person who has done somewhat well after having

this type of surgery. People ask if I recommend it to Mito people. Heres how I

look at it. For me and this is for me only guys. I was going to be dead in a

year from uncontrollable Blood pressure and extreme risk of Stoke. No one

knows why I didn't stroke out. So for me I didn't have a choice, I had to try

and save my life. No other conventional weight loss program worked for me for

several reasons, but mostly due to my metabolic system and lack of it working

properly. I am now able to keep up with the demands of my kids much better,

having three Mito kiddos isn't easy as you all well know, I can keep up with my

classroom better as well. I don't have sleep apnea anymore so I am more

rested, my blood pressure is normal again, my stoke risk is down greatly. For

me

it was the right choice. It is very risky to say the least for a Mito person

to have the surgery. I constantly fight the acidosis issues and will for the

rest of my life. Am I happy I did it? Yes, I am, It has not been easy and

the vomiting I do is for the most part the pits! But I can move again without

feeling like I was gonna pass out, the energy level has increased greatly, and

I look better for sure. I am not a skinny mini and probably won't be able to

return to that totally, but I have dropped over 10 dress sizes in 8 months.

Yes, I am pretty much naked as I can't afford to keep up in the clothes

department. LOL I am going to see Cohen next week so I will post after I return

from

that appointment and let you know what all he thinks. I know he is wanting

to see how I have done, as I am the first to his knowledge Mito person who has

had the surgery. If some of you are looking into this, let me tell you it is

vital that your surgeon understand you are a Mito person and the

anesthesiologist as well. I had mine done at Cedars Sini In Beverly Hills CA.

Very

knowledgeable doctor and I still ended up Vent dependent for 4 days in the ICU

unit

post surgery. Very scary for my family and me when I woke up and realized it

was 4 days later. If you are looking into this and want to talk to me further

about this, I am more than happy to do that, just send me your number and I

will call you inbetween the happenings at this household. Ihope all are doing

well!

big hugs to you,

O

When the door of happiness closes, another opens, but often times we spend so

much time looking at the closed door, we don't see the open door. Look for

the open door

O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS

Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

Enrique

Visit our web page: WWW. caringbridge.org/ca/mitooggo

Help support my sister in her new business at : Come and see what's NEW!

http://www.youravon.com/elleenmiller Your AVON representative (Sign in

passcode: ElleensAVON if you are signing in for the first time :-)

[Guest guest]

So glad to hear this procedure was successful for you.

I wish you continued success. Your family must be thrilled with the new you

as well. )

My thoughts to anyone who does not NEED to have this procedure done.

I had a friend/co-worker who recently died after undergoing this surgery. I

believe due to a blood clot and that is always a risk with any surgery--I

know.

She was only 52 and had a new grandson that she was excited about.

She was in the 200's weight catagory when she decided to have the surgery.

She just left the company we worked for about a year ago and decided at her

age to go back to school for nursing---something she had always wanted to do.

I was so happy for her.

This was such a loss of life.

, I in no way am implying that having the surgery is not right for some

people and I am so happy it worked for you.

It is scary though.

Continued success )

Sheila

[Guest guest]

I'm glad that you are seeing improvement from the surgery. It sure must have

been a hard decision and very scary to know what was ahead. I'm glad you are

slowing the weight loss down, so the mito monster doesn't raise it's ugly

head.

laurie

> From: mitooggo@...

> Reply-To:

> Date: Sat, 24 Apr 2004 13:17:20 EDT

> To: Mitoldies , adultmito

> Subject: Gastric Bypass Update on this Mito Mommy

>

> Hi guys,

>

> OK I have had several E-mail me off list asking about how I was doing with

> the gastric by-pass. I decided I would just write one response if you all

> don't

> mind, as Kira has been very ill again and is having trouble with

> siezure/dysautonomia attacks again so my time is way short.

>

> Anyway here goes. I started out at 385 lbs on August 14,2003. I just went in

> to my doctor and as of Friday I now weigh 251 lbs. So lets see, that is 134

> lbs I have lost in just about 8 months. That is a whole person!!!!! My blood

> pressure is way down, my diabetes has pretty much resolved itself in that I

> don't need to take any meds for it anymore. I have had some trouble with

> vitamin B-12 deficiency and calcium break down. I am having a bit of gal

> bladder

> trouble as well currently, but for the most part I have done well. I have

> been

> very careful with what I am eating and have managed to stay on the positive

> side of acidotic except for about 5 days total. I have gone through some

> muscle weakness that I think was kicked off by the lack of nutrition, but when

> I

> fed through the G-tube it help to resolve the extra fatigue. I have fatigue

> anyway normally. But I can say loosing the weight has helped me a lot. I have

> not lost a lot lately, I am on a plateau at the moment, which kind of freaks

> me

> a bit because I don't want to stay in the 200's, but the fact that the surgery

> is working for me is a good thing, my metabolic rate has changed a bit but

> not much so it is scary to think I am slowing down. It is much easier on me

> to

> only be loosing 4 to 5 lbs a month now than 20 or so before. They want my

> calories high enough that I am only loosing a lb a week. That is very hard to

> do

> when you can't eat a whole lot. I have gotten into some bad habits of eating

> fatty foods which kicks the Mito in me off, just to bring up the calorie

> intake. So I am working with the nutrionalist to try and straiten that out as

> well. So over all I am a Mito person who has done somewhat well after having

> this type of surgery. People ask if I recommend it to Mito people. Heres how

> I

> look at it. For me and this is for me only guys. I was going to be dead in a

> year from uncontrollable Blood pressure and extreme risk of Stoke. No one

> knows why I didn't stroke out. So for me I didn't have a choice, I had to try

> and save my life. No other conventional weight loss program worked for me for

> several reasons, but mostly due to my metabolic system and lack of it working

> properly. I am now able to keep up with the demands of my kids much better,

> having three Mito kiddos isn't easy as you all well know, I can keep up with

> my

> classroom better as well. I don't have sleep apnea anymore so I am more

> rested, my blood pressure is normal again, my stoke risk is down greatly. For

> me

> it was the right choice. It is very risky to say the least for a Mito person

> to have the surgery. I constantly fight the acidosis issues and will for the

> rest of my life. Am I happy I did it? Yes, I am, It has not been easy and

> the vomiting I do is for the most part the pits! But I can move again without

> feeling like I was gonna pass out, the energy level has increased greatly, and

> I look better for sure. I am not a skinny mini and probably won't be able to

> return to that totally, but I have dropped over 10 dress sizes in 8 months.

> Yes, I am pretty much naked as I can't afford to keep up in the clothes

> department. LOL I am going to see Cohen next week so I will post after I

> return from

> that appointment and let you know what all he thinks. I know he is wanting

> to see how I have done, as I am the first to his knowledge Mito person who has

> had the surgery. If some of you are looking into this, let me tell you it is

> vital that your surgeon understand you are a Mito person and the

> anesthesiologist as well. I had mine done at Cedars Sini In Beverly Hills CA.

> Very

> knowledgeable doctor and I still ended up Vent dependent for 4 days in the ICU

> unit

> post surgery. Very scary for my family and me when I woke up and realized it

> was 4 days later. If you are looking into this and want to talk to me further

> about this, I am more than happy to do that, just send me your number and I

> will call you inbetween the happenings at this household. Ihope all are doing

> well!

>

> big hugs to you,

>

> O

>

> When the door of happiness closes, another opens, but often times we spend so

> much time looking at the closed door, we don't see the open door. Look for

> the open door

> O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS

> Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

> Enrique

> Visit our web page: WWW. caringbridge.org/ca/mitooggo

>

> Help support my sister in her new business at : Come and see what's NEW!

> http://www.youravon.com/elleenmiller Your AVON representative (Sign in

> passcode: ElleensAVON if you are signing in for the first time :-)

>

>

>

>

>

[Guest guest]

Are things still go well for you after the surgery? I hope so.

mitooggo@... wrote:

>Hi guys,

>

>OK I have had several E-mail me off list asking about how I was doing with

>the gastric by-pass. I decided I would just write one response if you all

don't

>mind, as Kira has been very ill again and is having trouble with

>siezure/dysautonomia attacks again so my time is way short.

>

>Anyway here goes. I started out at 385 lbs on August 14,2003. I just went in

>to my doctor and as of Friday I now weigh 251 lbs. So lets see, that is 134

>lbs I have lost in just about 8 months. That is a whole person!!!!! My blood

>pressure is way down, my diabetes has pretty much resolved itself in that I

>don't need to take any meds for it anymore. I have had some trouble with

>vitamin B-12 deficiency and calcium break down. I am having a bit of gal

bladder

>trouble as well currently, but for the most part I have done well. I have been

>very careful with what I am eating and have managed to stay on the positive

>side of acidotic except for about 5 days total. I have gone through some

>muscle weakness that I think was kicked off by the lack of nutrition, but when

I

>fed through the G-tube it help to resolve the extra fatigue. I have fatigue

>anyway normally. But I can say loosing the weight has helped me a lot. I have

>not lost a lot lately, I am on a plateau at the moment, which kind of freaks me

>a bit because I don't want to stay in the 200's, but the fact that the surgery

>is working for me is a good thing, my metabolic rate has changed a bit but

>not much so it is scary to think I am slowing down. It is much easier on me to

>only be loosing 4 to 5 lbs a month now than 20 or so before. They want my

>calories high enough that I am only loosing a lb a week. That is very hard to

do

>when you can't eat a whole lot. I have gotten into some bad habits of eating

>fatty foods which kicks the Mito in me off, just to bring up the calorie

>intake. So I am working with the nutrionalist to try and straiten that out as

>well. So over all I am a Mito person who has done somewhat well after having

>this type of surgery. People ask if I recommend it to Mito people. Heres how

I

>look at it. For me and this is for me only guys. I was going to be dead in a

>year from uncontrollable Blood pressure and extreme risk of Stoke. No one

>knows why I didn't stroke out. So for me I didn't have a choice, I had to try

>and save my life. No other conventional weight loss program worked for me for

>several reasons, but mostly due to my metabolic system and lack of it working

>properly. I am now able to keep up with the demands of my kids much better,

>having three Mito kiddos isn't easy as you all well know, I can keep up with my

>classroom better as well. I don't have sleep apnea anymore so I am more

>rested, my blood pressure is normal again, my stoke risk is down greatly. For

me

>it was the right choice. It is very risky to say the least for a Mito person

>to have the surgery. I constantly fight the acidosis issues and will for the

>rest of my life. Am I happy I did it? Yes, I am, It has not been easy and

>the vomiting I do is for the most part the pits! But I can move again without

>feeling like I was gonna pass out, the energy level has increased greatly, and

>I look better for sure. I am not a skinny mini and probably won't be able to

>return to that totally, but I have dropped over 10 dress sizes in 8 months.

>Yes, I am pretty much naked as I can't afford to keep up in the clothes

>department. LOL I am going to see Cohen next week so I will post after I

return from

>that appointment and let you know what all he thinks. I know he is wanting

>to see how I have done, as I am the first to his knowledge Mito person who has

>had the surgery. If some of you are looking into this, let me tell you it is

>vital that your surgeon understand you are a Mito person and the

>anesthesiologist as well. I had mine done at Cedars Sini In Beverly Hills CA.

Very

>knowledgeable doctor and I still ended up Vent dependent for 4 days in the ICU

unit

>post surgery. Very scary for my family and me when I woke up and realized it

>was 4 days later. If you are looking into this and want to talk to me further

>about this, I am more than happy to do that, just send me your number and I

>will call you inbetween the happenings at this household. Ihope all are doing

>well!

>

>big hugs to you,

>

> O

>

>When the door of happiness closes, another opens, but often times we spend so

>much time looking at the closed door, we don't see the open door. Look for

>the open door

> O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS

>Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad

Enrique

>Visit our web page: WWW. caringbridge.org/ca/mitooggo

>

> Help support my sister in her new business at : Come and see what's NEW!

>http://www.youravon.com/elleenmiller Your AVON representative (Sign in

>passcode: ElleensAVON if you are signing in for the first time :-)

>

>

>

>

>