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Re: good docs in the NY

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Hi, ,

I have an endocrinologist, a neurologist and a GI doc in NYC. They are

all wonderful. The lady neuro had a close friend with mito from nursing

school, who died as a young mother. She is very familiar with mito and

has also worked closely with the lead pathologist from

Columbia-Presbyterian. She is going to ask him to reread my biopsy,

since this disease is obviously progressing.

Or, she may decide on another biopsy.

This woman is a truly marvelous human being, very communicative and up

on mito. She really cares about her patients. So many neuros came across

as somewhat " cold " individuals.

I would also recommend Michio Hirano, MD, from Col-Pres. I saw him

through the MDA Clinic, but he also now has a private practice at

Columbia at their famous Neurological Institute. He is very well-known

as a mito researcher, having worked with Dr. DiMauro there for years.

For ongoing care, I still vastly recommend my neuro. Kindly email me

privately, and I'll give you all the info. (I will be away tomorrow and

most of Thursday.)

BTW, my mind draws a blank--what is CFIDS?

Good luck with your many problems, . I am praying for a real

breakthrough for you!

Take care.

Sincerely,

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