Something Very Interesting

[Guest guest]

Today, one of my daughters had and appointment with the MDA doctor here. He

made a statement to her that could be a huge message coming from the MDA and

could mean a great deal to Mitochondrial patients.

He told her that the MDA recently made a statement that they now believe that

ALS could be a form of Mitochondrial Disease. Remember when I said quite some

time ago that if they found the cure for ALS and other forms of Muscular

Dystropy, I believe the will at the same time find the cure for Mito? Doesn't

this sound like more of a possibility now if they are considering a connection?

Have any of you heard anything like this from your MDA doctors?

Alice

[Guest guest]

Alice

No, but I go see him tomorrow.

I can't remember if I told the group or not. I have a neighbor (about 2

miles down the road) with ALS (the more slowly progressive kind). He was

wheelchair bound and could hardly speak. He was very depressed and no drugs

were helping, so they did electro-shock treatments. He has improved as a

result to the point that he is walking about a mile a day (rest periods

frequently) with a walker. This has got to get some people thinking.

Thanks for sharing, Alice.

laurie

>

> Reply-To:

> Date: Mon, 19 Apr 2004 14:17:28 -0600

> To: >

> Subject: Something Very Interesting

>

> Today, one of my daughters had and appointment with the MDA doctor here. He

> made a statement to her that could be a huge message coming from the MDA and

> could mean a great deal to Mitochondrial patients.

>

> He told her that the MDA recently made a statement that they now believe that

> ALS could be a form of Mitochondrial Disease. Remember when I said quite some

> time ago that if they found the cure for ALS and other forms of Muscular

> Dystropy, I believe the will at the same time find the cure for Mito? Doesn't

> this sound like more of a possibility now if they are considering a

> connection? Have any of you heard anything like this from your MDA doctors?

>

> Alice

>

>

[Guest guest]

Interesting article on ALS (in today's news)on CNN website.

http://www.cnn.com/2004/HEALTH/conditions/04/19/als.test.reut/index.h

tml

WASHINGTON (Reuters) -- U.S. researchers said Monday they had found

a quicker way to diagnose a paralyzing muscle disease called ALS,

perhaps in time for drugs to delay its fatal progression...

> Alice

>

> No, but I go see him tomorrow.

>

> I can't remember if I told the group or not. I have a neighbor

(about 2

> miles down the road) with ALS (the more slowly progressive kind).

He was

> wheelchair bound and could hardly speak. He was very depressed and

no drugs

> were helping, so they did electro-shock treatments. He has

improved as a

> result to the point that he is walking about a mile a day (rest

periods

> frequently) with a walker. This has got to get some people

thinking.

>

> Thanks for sharing, Alice.

>

> laurie

>

> > From: " Alice "

> > Reply-To:

> > Date: Mon, 19 Apr 2004 14:17:28 -0600

> > To: >

> > Subject: Something Very Interesting

> >

> > Today, one of my daughters had and appointment with the MDA

doctor here. He

> > made a statement to her that could be a huge message coming from

the MDA and

> > could mean a great deal to Mitochondrial patients.

> >

> > He told her that the MDA recently made a statement that they now

believe that

> > ALS could be a form of Mitochondrial Disease. Remember when I

said quite some

> > time ago that if they found the cure for ALS and other forms of

Muscular

> > Dystropy, I believe the will at the same time find the cure for

Mito? Doesn't

> > this sound like more of a possibility now if they are

considering a

> > connection? Have any of you heard anything like this from your

MDA doctors?

> >

> > Alice

> >

> >