Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Maggie, my son has vasculitis also.. hope your mom is alright.. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Is there any relationship between temporal arteritis (vasculitis) and mito? Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Maggie Terporal arteritis is an autoimmune disorder. Since many people have both, it is an interesting question. The doctor's don't feel there is a connection, but also find it interesting. My mom with mito was diagnosed with temporal arteritis, but not by biopsy. My dad has temporal arteritis by biopsy. Personally, I believe my mother's symptoms were due to her mito. She did not know she had it when she was diagnosed with temporal arteritis. The chance of both a husband and wife having it is almost impossible according to their doctors. Have you been diagnosed with this? laurie > > Reply-To: > Date: Sat, 17 Apr 2004 20:31:52 -0000 > To: > Subject: temporal arteritis > > Is there any relationship between temporal arteritis (vasculitis) > and mito? > > Maggie > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Thanks Laurie, I'm asking because my mother is suspected of having this (and I don't believe they will want to do a biopsy on her because of other health conditions). She hasn't been diagnosed with mito - but has CHF, peripheral neuropathy (unknown cause) and digestion issues (a lot of problems often seen with mito). Did they treat your mother with steroids for this? Would it have made a difference (do you think) if they knew about the mito when she was diagnosed with arteritis? Maggie > Maggie > > Terporal arteritis is an autoimmune disorder. Since many people have both, > it is an interesting question. The doctor's don't feel there is a > connection, but also find it interesting. > > My mom with mito was diagnosed with temporal arteritis, but not by biopsy. > My dad has temporal arteritis by biopsy. Personally, I believe my mother's > symptoms were due to her mito. She did not know she had it when she was > diagnosed with temporal arteritis. The chance of both a husband and wife > having it is almost impossible according to their doctors. > > Have you been diagnosed with this? > > laurie > > > From: " whoewe2002 " > > Reply-To: > > Date: Sat, 17 Apr 2004 20:31:52 -0000 > > To: > > Subject: temporal arteritis > > > > Is there any relationship between temporal arteritis (vasculitis) > > and mito? > > > > Maggie > > > > > > > > Medical advice, information, opinions, data and statements contained herein > > are not necessarily those of the list moderators. The author of this e mail is > > entirely responsible for its content. List members are reminded of their > > responsibility to evaluate the content of the postings and consult with their > > physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Maggie They did treat my mom with steroids for about a year. I think they would have considered the symptoms as those of mito if they had known. The biopsy is just a small piece of artery taken from the temple, under local anaesthetic. It was done in minutes with my dad while he sat in a chair like in the dentist's office. My dad has flares, especially when his prednisone is at a low level or he has tapered off of it. laurie > > Reply-To: > Date: Sat, 17 Apr 2004 21:43:03 -0000 > To: > Subject: Re: temporal arteritis > > Thanks Laurie, > I'm asking because my mother is suspected of having this (and I > don't believe they will want to do a biopsy on her because of other > health conditions). > > She hasn't been diagnosed with mito - but has CHF, peripheral > neuropathy (unknown cause) and digestion issues (a lot of problems > often seen with mito). > > Did they treat your mother with steroids for this? Would it have > made a difference (do you think) if they knew about the mito when > she was diagnosed with arteritis? > > Maggie > > > >> Maggie >> >> Terporal arteritis is an autoimmune disorder. Since many people > have both, >> it is an interesting question. The doctor's don't feel there is a >> connection, but also find it interesting. >> >> My mom with mito was diagnosed with temporal arteritis, but not by > biopsy. >> My dad has temporal arteritis by biopsy. Personally, I believe my > mother's >> symptoms were due to her mito. She did not know she had it when > she was >> diagnosed with temporal arteritis. The chance of both a husband > and wife >> having it is almost impossible according to their doctors. >> >> Have you been diagnosed with this? >> >> laurie >> >>> From: " whoewe2002 " >>> Reply-To: >>> Date: Sat, 17 Apr 2004 20:31:52 -0000 >>> To: >>> Subject: temporal arteritis >>> >>> Is there any relationship between temporal arteritis (vasculitis) >>> and mito? >>> >>> Maggie >>> >>> >>> >>> Medical advice, information, opinions, data and statements > contained herein >>> are not necessarily those of the list moderators. The author of > this e mail is >>> entirely responsible for its content. List members are reminded > of their >>> responsibility to evaluate the content of the postings and > consult with their >>> physicians regarding changes in their own treatment. >>> >>> Personal attacks are not permitted on the list and anyone who > sends one is >>> automatically moderated or removed depending on the severity of > the attack. >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Maggie, my sons vasculitis is in the arteries in his brain. they cant treat with steroids due to his immunedeficiency. He was dioagnosed by MRA's. they have been following him since he was three and he is 9 now. the vasculitis has flared up and down and has moved around to various arteries in the brain. he is doing fairly well so we just monitor him with MRI/MRA's every year. hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 That, and more generally arteritis or vasculitis, was one of my differential diagnoses. I was prescribed to get a cerebral arteriogram, but the procedure has a risk of stroke even for " normal people " , and since I had had stroke-like episodes, I was afraid to. Take care, RH > Is there any relationship between temporal arteritis (vasculitis) > and mito? > > Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 RH, I probably wouldn't do the procedure either given the risk. Are you being treated for this at all? Maggie > > Is there any relationship between temporal arteritis (vasculitis) > > and mito? > > > > Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 This is interesting because vasculitis was one of the things that was suggested for me but no testing was done other than MRI's nor was any suggested. Since I know I deal with something that renders me helpless to equilibrium problems and I do mean this totally disables me - I'd love to know if there is some type of treatment. Alice Re: temporal arteritis RH, I probably wouldn't do the procedure either given the risk. Are you being treated for this at all? Maggie > > Is there any relationship between temporal arteritis (vasculitis) > > and mito? > > > > Maggie Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Alice The treatment for temporal arteritis and/or polymyogia rhumatica is long term steroid use. They can be decreased and even eliminated until the next flare up. My dad could hardly walk while in the hospital and they thought it must be cancer. When all the scans came back normal, they did the artery biopsy, started him on steroids and released him. He was able to walk upright and without pain in just a couple of days. This was many years ago and he still has flare-ups and usually has to take 2.5 or 5 mg. maintenance dose. laurie > > Reply-To: > Date: Tue, 20 Apr 2004 12:15:58 -0600 > To: > > Subject: Re: Re: temporal arteritis > > This is interesting because vasculitis was one of the things that was > suggested for me but no testing was done other than MRI's nor was any > suggested. Since I know I deal with something that renders me helpless to > equilibrium problems and I do mean this totally disables me - I'd love to know > if there is some type of treatment. > > Alice > Re: temporal arteritis > > > RH, > I probably wouldn't do the procedure either given the risk. > Are you being treated for this at all? > > Maggie > > >>> Is there any relationship between temporal arteritis > (vasculitis) >>> and mito? >>> >>> Maggie > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > > ------------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 No, wasn't determined definitely. I think it was suspected because I get shooting pains in my temple and also have had some weird inflammatory CBC results. My current mito cocktail is doing okay by me, long as my kids don't get too rambunctious on me. Take care, RH > > > Is there any relationship between temporal arteritis > (vasculitis) > > > and mito? > > > > > > Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 RH Everyone in my family with mito (now 7) have the shooting pains in the temple. I also have an elevated sed. rate, probably due to chronic tendonitis from weakness stressing the tendons. laurie > > Reply-To: > Date: Wed, 21 Apr 2004 03:02:00 -0000 > To: > Subject: Re: temporal arteritis > > No, wasn't determined definitely. I think it was suspected because I > get shooting pains in my temple and also have had some weird > inflammatory CBC results. > > My current mito cocktail is doing okay by me, long as my kids don't > get too rambunctious on me. > > Take care, > RH > > > >>>> Is there any relationship between temporal arteritis >> (vasculitis) >>>> and mito? >>>> >>>> Maggie > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.