I Won't Keep You Waiting Any Longer

[Guest guest]

((Alice))

I'm really sorry that the visit today didn't go better. You continue to be

in my prayers and I wish you the best. I hope that the doc's will be able to

help you in some way.

[Guest guest]

Alice (warm hugs) I am sure you are very disappointed. How much sound are

you getting with the left side? What is the quality of your speech

discrimination etc?

Will they try a new map on the right on 4/28?

Vivian

[Guest guest]

As you know, today was the activation of my replacement on

the right. I wish I had better news but unfortunately, I do not.

The map looks a little different than the last one did before the

surgery but it's not what I had hoped and prayed for. On it's own,

I cannot hear with the right side, even with a new implant. Wearing

the left with it, I can hear and quite well. The left, with it's

multiple electrodes outside of the cochlea, is pulling all the

weight. We are hoping that my appointment on 4/28 shows some

improvement on the right but it may be time to accept the fact that

my medical condition is going to render the implant useless. I've

been preparing myself for that so it was easier to handle the

difficult session today.

Alice

[Guest guest]

Vivian,

As long as I have both processors on, I'm hearing pretty well. Speech

discrimination is ok I think so far. I suspect I will lose the right completely

as it was making a rapid dive when I had the surgery. It's about where it was

when I left off right now... sounds identical. I could not use the right alone

and get by. I have been managing since the beginning of March with the left

although it only helps alone in a very closed in area.. pretty much one on one

and men are very difficult.

Yes.. we will try a new map on 4/28 and hope my Ts and Cs can be widened. My

T's in the low range are very, very high.. the first 8 electrodes. The high

electrodes.. are in a normal range which is what is different than before. They

were not when we gave up on the right and opted for another surgery.

Alice

Re: I Won't Keep You Waiting Any Longer

Alice (warm hugs) I am sure you are very disappointed. How much sound are

you getting with the left side? What is the quality of your speech

discrimination etc?

Will they try a new map on the right on 4/28?

Vivian

[Guest guest]

Alice,

As you, we were all hoping for better news for you. We will pray that when

you go back to the doctor in a few weeks things will be better.

Thinking and praying for you,

Kathy, grandma to Audrey,32mos

[Guest guest]

Hi Alice,

I haven't been on much lately and am sorry to come to hear things are not the

best with you.

I can only offer my thoughts and prayers and hope that things will improve.

Thinking of you

Sheila

[Guest guest]

Dear Alice,

I am so sorry it didn't go as well as planned. Please keep your spirits up

and hold on, perhaps there is better news coming down the road. You are due

for some great blessings.

Smiles to you,

I Won't Keep You Waiting Any Longer

>

> As you know, today was the activation of my replacement on

> the right. I wish I had better news but unfortunately, I do not.

> The map looks a little different than the last one did before the

> surgery but it's not what I had hoped and prayed for. On it's own,

> I cannot hear with the right side, even with a new implant. Wearing

> the left with it, I can hear and quite well. The left, with it's

> multiple electrodes outside of the cochlea, is pulling all the

> weight. We are hoping that my appointment on 4/28 shows some

> improvement on the right but it may be time to accept the fact that

> my medical condition is going to render the implant useless. I've

> been preparing myself for that so it was easier to handle the

> difficult session today.

>

> Alice

>

>

>

>

>

>

[Guest guest]

Alice,

Please try to keep the faith my dear friend. We are all rooting for you!!

Hugs,

Alice wrote:

>Vivian,

>

>As long as I have both processors on, I'm hearing pretty well. Speech

discrimination is ok I think so far. I suspect I will lose the right completely

as it was making a rapid dive when I had the surgery. It's about where it was

when I left off right now... sounds identical. I could not use the right alone

and get by. I have been managing since the beginning of March with the left

although it only helps alone in a very closed in area.. pretty much one on one

and men are very difficult.

>

>Yes.. we will try a new map on 4/28 and hope my Ts and Cs can be widened. My

T's in the low range are very, very high.. the first 8 electrodes. The high

electrodes.. are in a normal range which is what is different than before. They

were not when we gave up on the right and opted for another surgery.

>

>Alice

> Re: I Won't Keep You Waiting Any Longer

>

>

> Alice (warm hugs) I am sure you are very disappointed. How much sound are

> you getting with the left side? What is the quality of your speech

> discrimination etc?

> Will they try a new map on the right on 4/28?

> Vivian

>

>

>

[Guest guest]

Alice,

I'm sorry that you didn't get better news at the doctor's today.

I wish you the best and you are always in my thoughts and prayers.

Hugs,

a

[Guest guest]

Alice,

My thoughts are with you also. I wish you had better news with

this, but keep positive thoughts. Anything is possible.

Maggie

>

> As you know, today was the activation of my replacement on

> the right. I wish I had better news but unfortunately, I do not.

> The map looks a little different than the last one did before the

> surgery but it's not what I had hoped and prayed for. On it's

own,

> I cannot hear with the right side, even with a new implant.

Wearing

> the left with it, I can hear and quite well. The left, with it's

> multiple electrodes outside of the cochlea, is pulling all the

> weight. We are hoping that my appointment on 4/28 shows some

> improvement on the right but it may be time to accept the fact

that

> my medical condition is going to render the implant useless. I've

> been preparing myself for that so it was easier to handle the

> difficult session today.

>

> Alice

>

>

>

>

>

>

[Guest guest]

Alice

I will keep praying for you. I am sure this is very disappointing. I am

glad however that you do have reasonably good sound in the left. As long as you

are getting some sound.

Am again deaf with no sound. My ear hook has fallen off my mike and I cannot

get it to stay on. I have to think that this is all due to the fact that my

externals are all aged and abused! Any sound is better than no sound.

Vivian

[Guest guest]

Dear Alice,

I am so sorry that your CI hookup on Monday did not go so well. I hope

that time will be on your side, and that the next attempt will be much

better!

You are such a trooper, and have been through so much already....

Sending you prayers and good wishes. Hang in there.

Love,

[Guest guest]

Alice,

Sorry to hear the appointment didn't go as you hoped it would. This

has to be very frustrating for you. I hope that on the 28th you will

get better news. I will be thinking of you

Keep Smiling,

Nikki

>

> As you know, today was the activation of my replacement on

> the right. I wish I had better news but unfortunately, I do not.

> The map looks a little different than the last one did before the

> surgery but it's not what I had hoped and prayed for. On it's own,

> I cannot hear with the right side, even with a new implant.

Wearing

> the left with it, I can hear and quite well. The left, with it's

> multiple electrodes outside of the cochlea, is pulling all the

> weight. We are hoping that my appointment on 4/28 shows some

> improvement on the right but it may be time to accept the fact that

> my medical condition is going to render the implant useless. I've

> been preparing myself for that so it was easier to handle the

> difficult session today.

>

> Alice

[Guest guest]

Alice,

sorry to hear those results. I will pray that your implant will work better on

your return appt. Good Luck.

glad to hear you left is working good.How did you know you were loosing your

hear , at the very first. I have started having a tapping in my right ear, with

some pain.My husband is deaf in one ear so it is hard for me to tell if the tv

is louder than normal.

Betsy

I Won't Keep You Waiting Any Longer

As you know, today was the activation of my replacement on

the right. I wish I had better news but unfortunately, I do not.

The map looks a little different than the last one did before the

surgery but it's not what I had hoped and prayed for. On it's own,

I cannot hear with the right side, even with a new implant. Wearing

the left with it, I can hear and quite well. The left, with it's

multiple electrodes outside of the cochlea, is pulling all the

weight. We are hoping that my appointment on 4/28 shows some

improvement on the right but it may be time to accept the fact that

my medical condition is going to render the implant useless. I've

been preparing myself for that so it was easier to handle the

difficult session today.

Alice

[Guest guest]

Alice,

I am so sorry to see you are going through this. You are in my thoughts and

prayers.

God bless,

Hazelpone

----- Original Message -----

> Vivian,

>

> As long as I have both processors on, I'm hearing pretty well. Speech

discrimination is ok I think so far. I suspect I will lose the right

completely as it was making a rapid dive when I had the surgery. It's about

where it was when I left off right now... sounds identical. I could not use

the right alone and get by. I have been managing since the beginning of

March with the left although it only helps alone in a very closed in area..

pretty much one on one and men are very difficult.

>

> Yes.. we will try a new map on 4/28 and hope my Ts and Cs can be widened.

My T's in the low range are very, very high.. the first 8 electrodes. The

high electrodes.. are in a normal range which is what is different than

before. They were not when we gave up on the right and opted for another

surgery.

>

> Alice