Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Bug, Before ordering the machine yourself, I would recommend you asking both your pulmo doc and your MDA doc to write a letter to your insurance company describing the need. If they are going off of only the test results, they would have no way to understand the need of a mito patient. In addition to the letters, I would also submit the resp. article in the MDA Quest magazine for additional information. Also, stating something about money they may save in the future on other medical issues that having the BiPAP would save them couldn't hurt either. Good luck! venomvw wrote: Nikki thank you soooooo much for all of your time in explaining everything. I am forever greatful. I had the sleep study several months ago and tried both CPAP and BiPAP. CPAP made me feel like I was having a heart attack ! I definately need BiPAP or VPAP. My respiratory muscles get weak by the end of the day and I feel it is such a struggle to breathe. My pulmonary function tests always show normal function for the most part but my Pulmonary doc agreed that BiPap would possibly be beneficial so he ordered it. Unfortunately, insurance said I don't need it. I have another upcoming appointment so I thought I could just go ahead and ask for the written RX and make the purchase myself. I think my life is worth it ! I'm certain this is putting undue stress on my body and particularly my heart by not breathing well. It's also gives me a great deal of anxiety as you well know to not be breathing correctly. Again, I'm eternally thankful for your time and information bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Excellent idea ...thanks ! bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Let us know how things go! venomvw wrote: >Excellent idea ...thanks ! > >bug > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
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