Re: Welcome to - Introduction - Laurie

[Guest guest]

Hi Laurie,

Thanks for the words of advice... is the Lamictal the muscle relaxant you use

twice a day? My neurologist is trying me on a low dose of tizanidine at night

now, it makes me SO tired though, I can't take it during the day The

muscle spasms are the worst though... I do get botox into my jaw (it spasms shut

for good) & also recently into my neck, I don't know if the neck was

particularly successful however.... I can ask about the lamictal... What is

the

Quinine you mentioned? I've not ever heard of that (I'm newish here....)

Thanks!

Chris

In a message dated 4/7/2004 10:55:23 PM Eastern Daylight Time,

writes:

Subject: Re: Re: Welcome to - Introduction

Chris

I am so glad that the mito cocktail is helping you. I have no suggestions

for the fatigue, but can certainly identify with what you are dealing with.

My only suggestion is to listen to your body.

As for the muscle spasms, I take a muscle relaxant twice a day, take

Lamictal twice a day and use Quinine whenever I have over-done and the

spasms turn into cramps.

laurie

[Guest guest]

Chris

The muscle relaxant I use is Flexeril. I have also used Baclofen. I take the

Flexeril twice a day unless I really need the third dose. I had more

sleepiness with the Baclofen and couldn't take it three times a day. It did

take me awhile to get use to the Flexeril.

Lamictal is an anti-convulsant, but it calms the nerves of the body as well.

This decreases my myoclonus, neuropathy and muscle spasms and cramps by

working on the nerves causing them.

Quinine is a drug used for malaria. It has been used for cramping for many,

many years. My 29 year old son took it when he was 5 for many years as he

had severe cramping at night and sometimes during the day. Now we know it

was mito, but the doctor's thought it was due to growth. It is also used in

parkinson's disease to reduce the cramping and twisting of the body. It is a

prescription.

laurie

> From: chris1gill@...

> Reply-To:

> Date: Wed, 7 Apr 2004 23:06:54 EDT

> To:

> Subject: Re: Welcome to - Introduction - Laurie

>

> Hi Laurie,

>

> Thanks for the words of advice... is the Lamictal the muscle relaxant you use

> twice a day? My neurologist is trying me on a low dose of tizanidine at night

> now, it makes me SO tired though, I can't take it during the day The

> muscle spasms are the worst though... I do get botox into my jaw (it spasms

> shut

> for good) & also recently into my neck, I don't know if the neck was

> particularly successful however.... I can ask about the lamictal... What is

> the

> Quinine you mentioned? I've not ever heard of that (I'm newish here....)

>

> Thanks!

> Chris

>

> In a message dated 4/7/2004 10:55:23 PM Eastern Daylight Time,

> writes:

> Subject: Re: Re: Welcome to - Introduction

>

> Chris

>

> I am so glad that the mito cocktail is helping you. I have no suggestions

> for the fatigue, but can certainly identify with what you are dealing with.

> My only suggestion is to listen to your body.

>

> As for the muscle spasms, I take a muscle relaxant twice a day, take

> Lamictal twice a day and use Quinine whenever I have over-done and the

> spasms turn into cramps.

>

> laurie

>

>

>

[Guest guest]

Hi Laurie,

It definitely sounds like your doctor is more pro-active than mine... she

just looks at me when I mention the muscle spasms & shrugs her shoulders just

about... I'm totally serious on that! I'm very unhappy with her as I am new

with

her & my doctor left the area! I'm stuck with her I will ask about the

flexerell tomorrow... I just started the other drug she put me on the

tizanidine, but I don't think I can take it, it's disturbing my sleep

terribly...

Actually, that drug is like baclofen only stronger.... I do take baclofen, but

it

doesn't seem to do a thing for me... not a THING!! Hmmm...... Well, I will ask

about the flexerell!! Thanks! Chris

In a message dated 4/8/2004 7:35:13 PM Eastern Daylight Time,

writes:

Subject: Re: Re: Welcome to - Introduction - Laurie

Chris

The muscle relaxant I use is Flexeril. I have also used Baclofen. I take the

Flexeril twice a day unless I really need the third dose. I had more

sleepiness with the Baclofen and couldn't take it three times a day. It did

take me awhile to get use to the Flexeril.

Lamictal is an anti-convulsant, but it calms the nerves of the body as well.

This decreases my myoclonus, neuropathy and muscle spasms and cramps by

working on the nerves causing them.

Quinine is a drug used for malaria. It has been used for cramping for many,

many years. My 29 year old son took it when he was 5 for many years as he

had severe cramping at night and sometimes during the day. Now we know it

was mito, but the doctor's thought it was due to growth. It is also used in

parkinson's disease to reduce the cramping and twisting of the body. It is a

prescription.

laurie