Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 I'm getting ready to purchase either a BiPap or VPAP machine since insurance won't pay for it I guess I'll have to find a way. Recently there was a MDA chat about ventilation and I can't remember which type of machine the experts recommended...the transcripts aren't up yet. Can anyone help me ? Is there a brand or supplier that one of you can recommend that won't kill me financially ? Also do you have a mask that you prefer ? thanks ! bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 bug There is a good article in one of the Quest Magazines on this topic. If you go to their archives and type in ventilation, you should be able to bring it up. You will have to have a doctor's prescription to buy either. The article mentions that bi-PAP has more use long term because it can be set in different ways, but it is extremely more expensive. They tried both with me during my sleep study 8 years ago and I did better on the C-PAP. You might want to get it a medical supply provider, as they can then get you the correct filters and replace broken or damaged parts. I just started using the Simplicity mask which is one you can wear glasses with and is small and soft. Until I have my new sleep study done next month, I am not sure I am getting a leak-free fit or not, so will decide then if I will continue with it. I had been using a Resmed Mirage Ultra mask. laurie > > Reply-To: > Date: Thu, 08 Apr 2004 02:29:08 -0000 > To: > Subject: BiPap or VPAP ? > > I'm getting ready to purchase either a BiPap or VPAP machine since > insurance won't pay for it I guess I'll have to find a way. > Recently there was a MDA chat about ventilation and I can't remember > which type of machine the experts recommended...the transcripts > aren't up yet. Can anyone help me ? Is there a brand or supplier > that one of you can recommend that won't kill me financially ? Also > do you have a mask that you prefer ? > > thanks ! > bug > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Bug, I was not really given a choice, my pulmonologist told me I was getting a bi-pap machine. I didn't really use it the first year, as I felt it wasn't doing anything. Now, it is really hard to go without it. I actually feel rested when I wake up in the morning if I manage to keep it on most of the night! :-) I don't know much about the VPAP machines. I used a soft gel mask for many years. It was good, but my face droops a lot and it seems to droop in different places each night! So, I was leaking a lot of air. At my last sleep study, they tried a different contraption, the Nasal Air . . . (Something, I can't remember the name at this time, but will look it up). This is a tube sort of like the oxygen tube, but fits in your nostrils and is soft. There is a soft tubing that goes around your ears, with a headband to help keep it in place and a strap for the back, to tighten the tubing if necessary. I have had good luck with this, as I have not had the leakage of air that I was having and I can actually keep it on longer during the night. (I used to take the mask off without knowing it). Sorry I couldn't be more help. Good luck. Smiles, a On Thu, 08 Apr 2004 02:29:08 -0000 " venomvw " umhkyfan@...> writes: I'm getting ready to purchase either a BiPap or VPAP machine since insurance won't pay for it I guess I'll have to find a way. Recently there was a MDA chat about ventilation and I can't remember which type of machine the experts recommended...the transcripts aren't up yet. Can anyone help me ? Is there a brand or supplier that one of you can recommend that won't kill me financially ? Also do you have a mask that you prefer ? thanks ! bug Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Laurie, as usual you've helped me out again ! Thanks for the direction. I'll check out the article and I'm seeing pulmonary next month so I thought I'd pick up a RX then. They had actually phoned one in for approval but insurance denied it because they said my pulmonary function tests were too " normal. " I feel this could be a life-saver ultimately and I can't worry about the expense I guess. That's what plastic is for isn't it ? LOL Hugs, bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Thank you a I appreciate you taking the time to pass on the information. I'd have to have the full mask because I have a deviated septum (sp?) and the air burns my nostrils severely. Thanks again, bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 bug, I forgot to mention that on my " mask " or Nasal Aire system, I can wear my glasses which is a huge benefit. You really have to try different things to see which works the best for you. I have a Bi-Pap S. Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 bug Have you used a humidifier connected to the system? I can't use my C-PAP without it. I get real problems and without the humidifier, even my sinus problems are gone for the most part. My new pulmonologist says he would like me to try the warm mist type while having my sleep study. I currently have the pass-over type. If you get a humidifier with your machine, make sure it is one that you can get your hand or bottle brush into for cleaning purposes. laurie > > Reply-To: > Date: Fri, 09 Apr 2004 03:20:39 -0000 > To: > Subject: Re: BiPap or VPAP ? > > Thank you a I appreciate you taking the time to pass on > the information. I'd have to have the full mask because I have a > deviated septum (sp?) and the air burns my nostrils severely. > > Thanks again, > bug > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 a Are you trying to think of nasal pillows? Seems like a weird name. laurie > > Reply-To: > Date: Thu, 8 Apr 2004 21:24:58 -0500 > To: > Subject: Re: BiPap or VPAP ? > > Bug, > I was not really given a choice, my pulmonologist told me I was > getting a bi-pap machine. I didn't really use it the first year, as I > felt it wasn't doing anything. Now, it is really hard to go without it. > I actually feel rested when I wake up in the morning if I manage to keep > it on most of the night! :-) I don't know much about the VPAP machines. > I used a soft gel mask for many years. It was good, but my face droops a > lot and it seems to droop in different places each night! So, I was > leaking a lot of air. At my last sleep study, they tried a different > contraption, the Nasal Air . . . (Something, I can't remember the name at > this time, but will look it up). This is a tube sort of like the oxygen > tube, but fits in your nostrils and is soft. There is a soft tubing that > goes around your ears, with a headband to help keep it in place and a > strap for the back, to tighten the tubing if necessary. I have had good > luck with this, as I have not had the leakage of air that I was having > and I can actually keep it on longer during the night. (I used to take > the mask off without knowing it). Sorry I couldn't be more help. Good > luck. > > Smiles, > a > > On Thu, 08 Apr 2004 02:29:08 -0000 " venomvw " umhkyfan@...> > writes: > I'm getting ready to purchase either a BiPap or VPAP machine since > insurance won't pay for it I guess I'll have to find a way. > Recently there was a MDA chat about ventilation and I can't remember > which type of machine the experts recommended...the transcripts > aren't up yet. Can anyone help me ? Is there a brand or supplier > that one of you can recommend that won't kill me financially ? Also > do you have a mask that you prefer ? > > thanks ! > bug > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the postings > and consult with their physicians regarding changes in their own > treatment. > > Personal attacks are not permitted on the list and anyone who sends one > is automatically moderated or removed depending on the severity of the > attack. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Laurie, I found the papers this morning. I have the Nasal-Aire II C.P.A.P. interface by InnoMed. The guy doing my sleep study said that not many people use this or even know about it. It is by prescription only. Here is a link if anyone is interested: www.innomedinc.com Smiles, a On Fri, 09 Apr 2004 07:43:04 -0400 Laureta Fitzgerald lfitzger@...> writes: a Are you trying to think of nasal pillows? Seems like a weird name. laurie > > Reply-To: > Date: Thu, 8 Apr 2004 21:24:58 -0500 > To: > Subject: Re: BiPap or VPAP ? > > Bug, > I was not really given a choice, my pulmonologist told me I was > getting a bi-pap machine. I didn't really use it the first year, as I > felt it wasn't doing anything. Now, it is really hard to go without it. > I actually feel rested when I wake up in the morning if I manage to keep > it on most of the night! :-) I don't know much about the VPAP machines. > I used a soft gel mask for many years. It was good, but my face droops a > lot and it seems to droop in different places each night! So, I was > leaking a lot of air. At my last sleep study, they tried a different > contraption, the Nasal Air . . . (Something, I can't remember the name at > this time, but will look it up). This is a tube sort of like the oxygen > tube, but fits in your nostrils and is soft. There is a soft tubing that > goes around your ears, with a headband to help keep it in place and a > strap for the back, to tighten the tubing if necessary. I have had good > luck with this, as I have not had the leakage of air that I was having > and I can actually keep it on longer during the night. (I used to take > the mask off without knowing it). Sorry I couldn't be more help. Good > luck. > > Smiles, > a > > On Thu, 08 Apr 2004 02:29:08 -0000 " venomvw " umhkyfan@...> > writes: > I'm getting ready to purchase either a BiPap or VPAP machine since > insurance won't pay for it I guess I'll have to find a way. > Recently there was a MDA chat about ventilation and I can't remember > which type of machine the experts recommended...the transcripts > aren't up yet. Can anyone help me ? Is there a brand or supplier > that one of you can recommend that won't kill me financially ? Also > do you have a mask that you prefer ? > > thanks ! > bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 a, This is what I have just ordered this past Wednesday. I have a serious problem with allegies and caps so I am hoping that I can use this without any strapping. Alice I found the papers this morning. I have the Nasal-Aire II C.P.A.P. interface by InnoMed. The guy doing my sleep study said that not many people use this or even know about it. It is by prescription only. Here is a link if anyone is interested: www.innomedinc.com Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Humid air makes my breathing much worse. bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Alice, I really like it. It took me a night or two to get used to it, but I have been much more happier with this than the masks I had tried. I hope you are able to use it! Smiles, a On Fri, 9 Apr 2004 08:17:31 -0600 " Alice " justagram@...> writes: a, This is what I have just ordered this past Wednesday. I have a serious problem with allegies and caps so I am hoping that I can use this without any strapping. Alice I found the papers this morning. I have the Nasal-Aire II C.P.A.P. interface by InnoMed. The guy doing my sleep study said that not many people use this or even know about it. It is by prescription only. Here is a link if anyone is interested: www.innomedinc.com Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 I haven't been able to read much of the groups mail but I am one of the old-timers. I read the problem with an insurance company and a BiPAP. If you go to the following site and find 'Letters of medical necessity' you can show one of the sample letters to your Doctor. My Doc recently sent one to our insurance company and so far it seems to be working. He inserted phrases like 'patient having cognitive difficulties'. greatly fatigued during the day. And then as he said he was going to be certain to include the not so veiled threat about the future costs they could incur if I don't get the BiPAP. You'll get the idea when you read the sample letters. None of them really fit my circumstances but with the tweaking it worked. These were written by Dr. Bach, author of the Quest article. http://www.doctorbach.com/ I wish you luck, Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Thanks Pat All the info combined should help when I go to my appointment. hugs, bug Quote Link to comment Share on other sites More sharing options...
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