Re: I am new to this group and feel very much alone

[Guest guest]

Welcome to the group. This group is wonderful..you have come to the right place if you need support, advice, information or just someone to listen to you vent or lean on. Ginnygaleweb wrote:

I am sitting here at 4 AM reading some of these posts and crying. I have felt so alone. I haved been living this nightmare for over 2 yrs. I was diagnosed with RSDS 6 months after carpal tunnel surgery. My symptoms appeared about a month after the surgery and I spent the next 5 months going from doc to doc trying to find out what was wrong with me. One doc got so frustrated with me that he tried to make me feel like this was all in my head. But it isn't, I hurt! I am currently on disability, a policy I bought thru my benefits at work. My carpal tunnel was work related. I fixed office equipment for 20 years using various hand tools. Now my employer is fighting the work comp. Their doctors are saying that I never had carpal tunnel in the first place. Apparently I had

my wrist sliced open for the hell of it. My docs are the ones who diagnosed my carpal tunnel and recommended surgery. My life has been hell since then. I don't blame the doc who did the surgery for this. I understand that RSDS is just something that happened. I am a little upset that it took them 6 months to figure it out and yet they are still not agreeing on it. I have concentration problems, which the docs say it not RSDS yet I read from these posts that it is common among the people here. I don't sleep, can't fall asleep sometimes, or wake up all the time. I manage my pain with Vicodin, it helps some but it never goes completely away. I have constant severe burning, electrical jolts, stabbing pain and spasms. I find that I mentally cut my right arm off and set it aside. I have tried various other meds but Vicodin seems to work the best. I have taken behavioral classes

which have taught relaxation, physical therapy and coping skills. That has really helped. I see a therapist once a month, just to vent. I am fighting to keep my disability and am also trying to get SS. I have lost my job and don't see how I can even work at all. I have a 10lb weight restriction and limited use of my right arm. I am right hand dominate, so that makes it real tuff. I get tired very easy. If I have a decent day, then I overdo it and then down for a couple of days. My husband is very supportive but he is worried about the monies. We don't know month to month if I will get a check. During all of this my husband had surgery for prostate cancer and retired. My step-son was diagnosed bi-polar. My blood pressure is high and my stress is right up there also. I know that I am rambling, but I feel like I am wearing out my friends and family with this and really need

to communicate with people who know what I am going thru. People look at me, I don't have missing limbs or any obvious problem. How can I be disabled? People don't understand what they can't see and they don't know how much I hurt, both physically and emotionally. I am so tired of this. I am stuck in the middle of the doctors and lawyers.I keep thinking I should go out and find a job. But who is going to give me a job where I can work when I want and not get upset if I am too tired and call in sick? I can't go back to my old job and I don't have a college degree to get something else. What I would like to do, I am not able to do. I would like to do something with computers but even trying this post is causing a flare-up in my arm. My lack of concentration is a real big problem. I leave the sotve and oven on. I am not comfortable driving somewhere I haven't been before. I tell my husband right when I mean

left. I can't remember what I did yesterday. I use to have an excellent memory for numbers, no more. I got a PDA just to keep phone numbers, appointments and shopping lists. If I don't write it down, I will never remember it. My life is a mess. The one good thing is that I have many good friends. I can count on them for anything. They have been there for both my husband and myself. I know I am not alone, but it feels like it when they don't really know what it is like to walk in my shoes.

[Guest guest]

Welcome to the group. I think you'll find yourself in a place now where everyone can relate to the feeling of being all alone with this.....and that you'll also find a tremendous group of supportive people who will do all they can to help you not feel so alone Triciagaleweb wrote:

I am sitting here at 4 AM reading some of these posts and crying. I have felt so alone. I haved been living this nightmare for over 2 yrs. I was diagnosed with RSDS 6 months after carpal tunnel surgery. My symptoms appeared about a month after the surgery and I spent the next 5 months going from doc to doc trying to find out what was wrong with me. One doc got so frustrated with me that he tried to make me feel like this was all in my head. But it isn't, I hurt! I am currently on disability, a policy I bought thru my benefits at work. My carpal tunnel was work related. I fixed office equipment for 20 years using various hand tools. Now my employer is fighting the work comp. Their doctors are saying that I never had carpal tunnel in the first place. Apparently I had

my wrist sliced open for the hell of it. My docs are the ones who diagnosed my carpal tunnel and recommended surgery. My life has been hell since then. I don't blame the doc who did the surgery for this. I understand that RSDS is just something that happened. I am a little upset that it took them 6 months to figure it out and yet they are still not agreeing on it. I have concentration problems, which the docs say it not RSDS yet I read from these posts that it is common among the people here. I don't sleep, can't fall asleep sometimes, or wake up all the time. I manage my pain with Vicodin, it helps some but it never goes completely away. I have constant severe burning, electrical jolts, stabbing pain and spasms. I find that I mentally cut my right arm off and set it aside. I have tried various other meds but Vicodin seems to work the best. I have taken behavioral classes

which have taught relaxation, physical therapy and coping skills. That has really helped. I see a therapist once a month, just to vent. I am fighting to keep my disability and am also trying to get SS. I have lost my job and don't see how I can even work at all. I have a 10lb weight restriction and limited use of my right arm. I am right hand dominate, so that makes it real tuff. I get tired very easy. If I have a decent day, then I overdo it and then down for a couple of days. My husband is very supportive but he is worried about the monies. We don't know month to month if I will get a check. During all of this my husband had surgery for prostate cancer and retired. My step-son was diagnosed bi-polar. My blood pressure is high and my stress is right up there also. I know that I am rambling, but I feel like I am wearing out my friends and family with this and really need

to communicate with people who know what I am going thru. People look at me, I don't have missing limbs or any obvious problem. How can I be disabled? People don't understand what they can't see and they don't know how much I hurt, both physically and emotionally. I am so tired of this. I am stuck in the middle of the doctors and lawyers.I keep thinking I should go out and find a job. But who is going to give me a job where I can work when I want and not get upset if I am too tired and call in sick? I can't go back to my old job and I don't have a college degree to get something else. What I would like to do, I am not able to do. I would like to do something with computers but even trying this post is causing a flare-up in my arm. My lack of concentration is a real big problem. I leave the sotve and oven on. I am not comfortable driving somewhere I haven't been before. I tell my husband right when I mean

left. I can't remember what I did yesterday. I use to have an excellent memory for numbers, no more. I got a PDA just to keep phone numbers, appointments and shopping lists. If I don't write it down, I will never remember it. My life is a mess. The one good thing is that I have many good friends. I can count on them for anything. They have been there for both my husband and myself. I know I am not alone, but it feels like it when they don't really know what it is like to walk in my shoes.