Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Thanks you all that replied! Alice- that was so sweet all that you said, you really brightened my day and I just wanted to let you know how thankful I am for you because I dont know where I would be without you right now- I dont think I would know what I know and who I know concerning mito if I hadnt met you online back when. You definitely are an angel. Thank you so much. a- Glad the protnix has helped you, I started it yesterday and so far its helped a bit more than the nexium- hoping it will start helping even more. I'll keep you posted. I'm gonna also do a separate post on Dream street in a min. Hope youre doing well. -I've never heard of carafate but did a search and looks like its mainly for ulcers? I've been on all the regular meds out there it seems for reflux (zantac, prilosec, prevacid, aciphex, nexium lots of OTC meds, etc etc and now protonix- Dr is telling me I should try and alternate 2 different ones, protonix with nexium or aciphex.) I'm actually wondering if I have bile coming up into my stomach though because of what it looked like (he showed me the pics of the undigested foods and the color was yellowish like how i'd think bile looks). Anyways, I think he thinks these pancreatic enzymes might help- so I'll see and If they don't I'll mention what you said, ty. glad its helped you. Maggie-Sounds like your dr is iffy bout that quinine, who knows why when both the other meds can be bad for you too, watch out with the ultram- it can be very harsh on the stomach- i couldnt tolerate it- but i know others that it has helped alot, just be sure not to take on an empty stomach, hope you find something to help with the pain. I know how bad it can be feeling you have nothing to help. Malisa- So you take the pancrelipase for the chronic pancreatitis? When you started it did you notice it helping you with anything? My dr said that it might just help more with my digestion and abdominal pain and fullness/bloating, who knows, he noted that that side of my abdomen was swollen (left) and it hurts more there but thats probably from constipation. I'm just really iffy to add another med. I think I should have my pancreatic enzymes checked before I take this med. And he said to see him in 3 months unless my symptoms worsen more or if I have drastic weight loss. With the feeding tube- he didnt specifically say thats what he was thinking about but he said that if these meds he put me on now dont work that we might have to go to more drastic measures- I'm assuming that means feeding tubes and stuff like that? We shall see. I'll talk with you later I'm sure and we will talk more bout this and other stuff. Everyone take care, I been up all night, gonna try for alittle bit of sleep now. take care, Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 In a message dated 3/31/2004 6:13:16 AM Eastern Standard Time, moonchild62579@... writes: So you take the pancrelipase for the chronic pancreatitis? When you started it did you notice it helping you with anything? My dr said that it might just help more with my digestion and abdominal pain and fullness/bloating, HI Adrienne, I haven't really noticed that it's helped anything, but my GI doctor thinks that by giving the pancreas the enzymes that maybe it won't work as hard to produce them and I will get a break from the inflammation. I haven't noticed that it helps one way or the other, but the idea behind it makes sense, so I keep taking them. I hope it helps you! Malisa Quote Link to comment Share on other sites More sharing options...
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