Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi guys, Decided I would try and respond to a few peoples recent posts: - I wish you luck with your appts and stay in Cleveland this coming week, I will definitely be praying for you and hope everything turns up ok with the TPN and other appts. O- So glad the kids got into the camps- thats gonna be great for them! Dream Street is so wonderful I know since I went to Canyon Ranch. I also hope maybe someday to volunteer for the MDA camps too, seems like such a great experience, hope they have fun! Kim- I meant to say something earlier, but have been having such a hard time lately, I am truly sorry for your loss of your best friend, but now she is no longer suffering and in a better place. and Laurie- I continue to pray for your family as well and hope that things start to get better for all of you. Alice-Glad to know that your surgery went well, sorry youve had such probs lately though. a-Sorry you have such probs with CoQ10 and carnitor, I know there are some others that might be worth looking into. I know Malisa is trying some stuff, I cant recall right now- something-cystine I think, might ask her bout it and there are some others shes talked about. I been thinkin bout you lots lately, hope you are doing ok. Maggie-about Quinine- never been on it but I would think, since it didnt help when you tried it OTC, I dont think it would help much as an rx. Other than the vioxx what did he put you on? I would try the vioxx definitely, my mom takes it or naproxen for her muscle pain and it had been helping but has recently stopped, shes going to go to my pain specialist now for something stronger. My seizure meds and muscle relaxers help with my muscle pain and also neuropathy also I take narcotics when its really bad. Hope you can find something to help. Ok, Thats all I can respond to for now! I have read other posts and know others are going through alot, having more symptoms, job losses, etc and Im hoping things start going better for everyone. Also, newbies and those that have become active again, welcome or re-welcome. I'm working on appealing my disability claim now, waiting for my muscle bx report (called dr shoffner's office, they said i should get the results mid april). Im doing a bit better than i was. Anyways, Im gonna put a separate post up about a rx my Gi dr put me on, wondering about it. Thinking bout you all. take care, Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Adrienne, The only form of quinine that I found and took (OTC) was homeopathic, which is different than a supplement - in that a true homeopathic remedy contains no measureable amount of the anything... other than water, I believe. Thanks for your input on the vioxx. I also have a script for Ultram (haven't tried that yet either). I'm glad you're doing a little better today. BTW, I have also taken Protonix - but just for a short time. No bad side effects from it. I can't say it really helped a whole lot though either. Maggie > Maggie-about Quinine- never been on it but I would think, since it didnt help > when you tried it OTC, I dont think it would help much as an rx. Other than > the vioxx what did he put you on? I would try the vioxx definitely, my mom > takes it or naproxen for her muscle pain and it had been helping but has recently > stopped, shes going to go to my pain specialist now for something stronger. My > seizure meds and muscle relaxers help with my muscle pain and also neuropathy > also I take narcotics when its really bad. Hope you can find something to > help. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.