Re: Passive Helmets/COPC

[Guest guest]

Hello ,

I am in Kentucky, too! My plagio " baby " is almost 5 years old now -

she is a repositioning graduate, though, we never ended up using the

helmet. Despite that, I have always had a personal interest in

helmeting and banding options around our area. It may be helpful to

you to if you don't get any COPC-specific msgs on the board here, to

check the " Database " section of the group, and reference

the " Helmet/Band Database. " In the listing for COPC, there are

several parents who have left their email for contact by other

parents who would like some personal stories about how their

treatment went. I strongly urge you to drop them a line when you

have time and get some impressions.

By no means a scientific sample whatsover, anectdotally I can recall

only 2 babies out of 7 posting in this group being able to complete

their treatment at COPC. Since I have not been very active on the

msg boards in months, maybe some of the group moderators can recall

recent COPC experiences shared on here. Some of the reasons for the

parents' stopping treatment ranged from no progress, to fit issues

that were unable to be corrected, to one case of head shape being

worsened. An example of a successful COPC graduate in the group is

in the Photos sample J, I believe. The other successful

graduate that I know of I corresponded with thru personal emails.

I do know that the actual COPC brand helmet is FDA approved. Unlike

any of the over 20 other FDA approved helmets and bands, and any of

the unapproved ones that may be out there, it is the ONLY one I know

of that never has any follow up appts. at the ortho, or any helmet

adjustments made. I actually did not believe this when I first read

it in a post, and asked for clarification from the poster. In

addition, I ended up calling COPC myself to confirm this info, which

they did. Now you did mention that your baby had a NEW helmet from

COPC?? Well, there are brands of helmets and bands that are made

from a manufacturer company, and any ortho anywhere can choose to do

business with them by ordering that brand of helmet and using it in

their practice. Perhaps this is the situation with your baby. If

this is the case, I am alarmed that there will be no ortho follow-up

appts and adjustments - as I said before, I know of no other brand

besides the actual COPC brand helmet that doesn't require follow-up

ortho visits. The other possibility is that COPC is using a new or

modified design of their FDA approved helmet, which would imply that

this new helmet is not specifically FDA approved - I don't know if

this is important or of interest to you, but it may behoove you to

get clarification on this, since FDA approval can really be a

keystone for insurance approval, etc.

Did the plastic surgeon take any photographs of Wyatt at the visit?

What is his method to remember what your son's head looked like thru

memory alone every 5 weeks or so? Linear measurements are a 2

dimensional way to measure a 3 dimensional problem (head shape

deformity,) so on principal I don't have an argument with someone not

relying on 2 dimensional measurements solely for assessment, but a

visual record of progress can really be encouraging throughout

treatment. For yourself, you might want to use some of the at home

methods repositioners try, to keep abreast of head shape changes.

You can fine them in the Files, Repositioning headquarters folder.

Some insurance companies are requiring measurement/photo proof of

improvement as well.

Please feel free to contact me if I can be of any help, and I'd also

be happy to chat by phone if you ever want another plagio parent to

talk to

Take care,

Christie, Mom to repo grad Remy

> >

> > - don't get down on yourself - You are being

> proactive!!! IYou're

> > here!!! :-D

> > 'm sorry I don't have experience with passive helmets - we had a

> Hanger band

> > - but If you are seeing improvment than that is good.

> > Maybe call the dr that gave the RX and find out why he wanted to

> go passive

> > - and if he knows about hanger or doc or starband.

> > Also, I'd call COPC to see the head of the helmet dept. - Just to

> make sure

> > the band is made correctly. But that's just me. :-)

> >

> >

> > Jen and Luli

> > Right Tort - Plagio - Hanger Band Grad - CA

> > _Tallulah Jayne -_ (http://www.babiesonline.com/babies/j/jens5th/)

> >

>

>

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