Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Janet, Thanks for all the info on blood sugars. I also have a one touch to test their blood. It is such a nice machine, and quick. my old one was a dinosaur. took forever to get a reading. I have switched Jeffs doctor and have a appt with a new one on monday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I have MELAS as well and am diabetic. Though I was doing everything " right " and compliant my numbers recently skyrocketed. The endo not only believed me that it wasn't anything that I was doing but came up with a unique solution of putting me on oral glucophage as well as injected insulin. I am lucky enough to have an endo who thinks of me as expert on my " mito diabetes " because there really are no medical guidelines out there. Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , The one touch is so much nicer I recommend it to anyone who is still testing on their fingers. My fingers used to get so sore and take forever to heal. I always end up testing on my left forearm in about the same area--I know I am not supposed to but it is habit. Anyhow, it does not hurt, but since I take over two weeks to heal you can see needle marks. It looks like I am a drug user or something. At one of the temp jobs I had one worker commented on it and I had to explain. So, whenever I start a new temp job now I explain to the supervisor. Anyway, I hope you find some answers, they may not solve your problem, but you will at least know the causes of the high and low blood sugar. Dr Tick said my blood sugars would be hard to manage because of the MELAS. I know mine are usually around 250 in the morning but this morning it was 351. I have a bad head cold and went to bed after midnite and got up at 6:30 so that explains it for me. I also know that if I am doing physical activity the blood sugar will go up, if I am doing mental activity it will go down--sometimes very fast. My gp and the doctor who diagnosed the MELAS says that makes sense because of the exercise intolerance. Also, she said when college kids cram for exams the reason they get hungary is because their blood sugar drops. I control mine by using an insulin pen and checking with the blood meter. I generally leave for work (right now I am unemployed again), around 7:30 am--I will check my blood sugar around 9:30, then before lunch around 11:30, after lunch around 3 pm, and then at night before I eat around 6:30 and again before bed. Each time I check it I make sure it is at least 3 hours after I have eaten--what I have been told in the past which goes for " normal " diabetics is that if you take the correct amount of insulin the blood sugar should be back to what it was before you ate in 2 hours. Well, I am not a " normal " diabetic and even walking long distances effects my blood sugar and so I wait at least 3 hours. I also snack mid morning and afternoon on pretzels, cheese, popcorn, whatever I feel like at the time. So, I know that there is at least one other person on one of the lists who said her blood sugar went up when she exercised, not down. You need to find a doctor who will believe you on that and understand that someone with mito processes things differently than others. That is why I fired the endocronologist my gp had me go see. My gp is fine with my decision. The endocronologist finally I think believed after I sent her readings after readings of stuff. For instance 1 day I was off work and I took my blood sugar at 5 pm, ate a bologna sandwich with the correct amount of insulin to cover it. Was drinking diet soda and water all night. I was up and down the ladder sanding my cupboards with a hand sander--hard, tiring work and up and down. At 10 pm my blood sugar was 250 points higher than at 5 pm. I got a handicapped sticker for the latest temp position I was working. It was 250 feet from my desk to the front door of the building and another that far to the car because when I came in I had to park way out in the back parking lot. There were doors closer to my desk but they were emergency exit--everyone went in and out of the front door. Anyway, from the time I took my blood sugar in the car to the time I sat down at my desk I was not only tired, my blood sugar went up 25-30 points. Anyway, enough of this. I hope you can find a doctor who listens to you. I interviewed 7 doctors before I found one who would work with Dr Tick 2 hours away and the MELAS. Janet Sample Re: BLOOD SUGAR/Janet > Janet, > Thanks for all the info on blood sugars. I also have a one touch to test > their blood. > It is such a nice machine, and quick. my old one was a dinosaur. took > forever to get a reading. > I have switched Jeffs doctor and have a appt with a new one on monday. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Please be aware that the glucophage depletes CoQ10 levels I believe. Either that, or it can cause lactic acid. I am now thinking it is the later. Can someone help me there. On Fri, 26 Mar 2004 10:07:12 EST, Vcgpg wrote > I have MELAS as well and am diabetic. Though I was doing everything > " right " and compliant my numbers recently skyrocketed. The endo not > only believed me that it wasn't anything that I was doing but came > up with a unique solution of putting me on oral glucophage as well > as injected insulin. I am lucky enough to have an endo who thinks > of me as expert on my " mito diabetes " because there really are no > medical guidelines out there. Vivian > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Dr Cohen recommended Glucophage for me. He does not feel this is a bad med for someone with Mito and Diabetes. He feels this patient should be tested frequently but so should all diabetics so it's a case of managing the symptoms again. I believe there is a possibility of increased lactic acid with Glucophage but not a depletion of CoQ 10. The only real drug I've been cautioned against by Dr Cohen is any in the statin series and he recently told me that this is also acceptable but requires close monitoring. His comment was that High Cholesteral is a bad thing and must be brought under control. Statin drugs do depleted CoQ10 and a Mito patient may need to increase the amount of CoQ they take if they are successful with a statin drug. There are other cholesteral lowering meds that are not statins. They just don't work as easily or quickly. Always talk these situations over with your own doctor and remember that Dr Cohen is very willing to consult with them to give direction, even if you are not his patient. Alice > Please be aware that the glucophage depletes CoQ10 levels I believe. Either > that, or it can cause lactic acid. I am now thinking it is the later. Can > someone help me there. > > > On Fri, 26 Mar 2004 10:07:12 EST, Vcgpg wrote > > I have MELAS as well and am diabetic. Though I was doing everything > > " right " and compliant my numbers recently skyrocketed. The endo not > > only believed me that it wasn't anything that I was doing but came > > up with a unique solution of putting me on oral glucophage as well > > as injected insulin. I am lucky enough to have an endo who thinks > > of me as expert on my " mito diabetes " because there really are no > > medical guidelines out there. Vivian > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Alice. How wonderful to see you back in action again so quickly! Not too many things keep you from being there for others! Smiles to you, Re: BLOOD SUGAR/Janet > Dr Cohen recommended Glucophage for me. He does not feel this is a > bad med for someone with Mito and Diabetes. He feels this patient > should be tested frequently but so should all diabetics so it's a > case of managing the symptoms again. I believe there is a > possibility of increased lactic acid with Glucophage but not a > depletion of CoQ 10. > > The only real drug I've been cautioned against by Dr Cohen is any in > the statin series and he recently told me that this is also > acceptable but requires close monitoring. His comment was that High > Cholesteral is a bad thing and must be brought under control. > Statin drugs do depleted CoQ10 and a Mito patient may need to > increase the amount of CoQ they take if they are successful with a > statin drug. There are other cholesteral lowering meds that are not > statins. They just don't work as easily or quickly. > > Always talk these situations over with your own doctor and remember > that Dr Cohen is very willing to consult with them to give > direction, even if you are not his patient. > > Alice > > > > > > Please be aware that the glucophage depletes CoQ10 levels I > believe. Either > > that, or it can cause lactic acid. I am now thinking it is the > later. Can > > someone help me there. > > > > > > On Fri, 26 Mar 2004 10:07:12 EST, Vcgpg wrote > > > I have MELAS as well and am diabetic. Though I was doing > everything > > > " right " and compliant my numbers recently skyrocketed. The endo > not > > > only believed me that it wasn't anything that I was doing but > came > > > up with a unique solution of putting me on oral glucophage as > well > > > as injected insulin. I am lucky enough to have an endo who > thinks > > > of me as expert on my " mito diabetes " because there really are > no > > > medical guidelines out there. Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Thanks Alice. How are you feeling? On Fri, 26 Mar 2004 16:13:23 -0000, Alice wrote > Dr Cohen recommended Glucophage for me. He does not feel this is a > bad med for someone with Mito and Diabetes. He feels this patient > should be tested frequently but so should all diabetics so it's a > case of managing the symptoms again. I believe there is a > possibility of increased lactic acid with Glucophage but not a > depletion of CoQ 10. > > The only real drug I've been cautioned against by Dr Cohen is any in > the statin series and he recently told me that this is also > acceptable but requires close monitoring. His comment was that High > Cholesteral is a bad thing and must be brought under control. > Statin drugs do depleted CoQ10 and a Mito patient may need to > increase the amount of CoQ they take if they are successful with a > statin drug. There are other cholesteral lowering meds that are not > statins. They just don't work as easily or quickly. > > Always talk these situations over with your own doctor and remember > that Dr Cohen is very willing to consult with them to give > direction, even if you are not his patient. > > Alice > > > > Please be aware that the glucophage depletes CoQ10 levels I > believe. Either > > that, or it can cause lactic acid. I am now thinking it is the > later. Can > > someone help me there. > > > > > > On Fri, 26 Mar 2004 10:07:12 EST, Vcgpg wrote > > > I have MELAS as well and am diabetic. Though I was doing > everything > > > " right " and compliant my numbers recently skyrocketed. The endo > not > > > only believed me that it wasn't anything that I was doing but > came > > > up with a unique solution of putting me on oral glucophage as > well > > > as injected insulin. I am lucky enough to have an endo who > thinks > > > of me as expert on my " mito diabetes " because there really are > no > > > medical guidelines out there. Vivian > > > > > > Quote Link to comment Share on other sites More sharing options...
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