Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi, Laurie Thanks for your response to my diet comments. No, I have not tried raw cornstarch. Read about it on a mito site I think, but didn't know what exactly, and how much. I think the suggestion was to take some cornstarch carb before bedtime. Are you saying regular cornstarch? And how much would a person take at once? I am really interested in trying it, in the course of the day, and or at bedtime. > Sunny > > I was told to eat the kind of diet that makes me feel the best. There > doesn't seem to be much rhyme or reason as to what people with mito > should > eat. I need lots of protein. We are all different. You should know > that the > brain uses glucose for fuel. Have you tried raw cornstarch which is > metabolized very slowly. > > laurie > > > From: z39z@... > > Reply-To: > > Date: Mon, 22 Mar 2004 22:41:54 -0500 > > To: > > Subject: Re: Re: memory disorder > > > > Thanks for sharing your experiences about brain/memory function. > > > > It was good to hear others describe the memory/concentration > problems > > similar to mine. Especially not being able to understand > conversation > > if there is a distraction. If two people are talking to me at the > same > > time, it can be very difficult, almost painful to endure, and I > can't > > process either one. Drives me wild. I always thought it was that I > had > > sensitive hearing. Also, the multitasking think is tough. I can > do a > > lot of things well, but one at a time, please. I sometimes need a > > second or two to find a word, but usually it is not worse than > that. I > > loved the comment about being able to remember that/what you could > not > > remember. So true. Names have always been a problem for me, ever > since > > I can remember (lol)....at least 50 years. With the exception of > the > > name thing, which is pretty constant, I find my mental function is > > very unpredictable. Some hours/days I do great. Other times I know > I > > am low, and just try not to put myself in a position where I will be > > taxed. But, I always know if I am clicking or not. I always remember > > that I did not know what I should have. And frequently, later, I > can > > remember it again. (Except for names - always been really really > hard > > for me). I guess different parts of the brain are involved. I > think > > the QGel is helping this brain problem somewhat. Also, recently I > > drink a cup of coffee when I am low on mental energy, and to my > > surprise, that seems to make me sharper mentally sometimes. I use > > coffee like a drug, never too much, only when I need it. I have had > > these problems for many years, and while it is trying, I can still > go > > out an do my stuff most days. (Have to bluff and cover up sometimes, > > but not to bad) The bad times seem a little worse now, but not that > > much. I am optimistic that it may not get worse. > > > > One more thing. For me, restricting my carbs seems to help my > mental > > function. My mind gets really tired/cloudy after I eat bread, for > > example. I have tried eating the low glycemic carbs, but I > definitely > > feel better when I dont eat many carbs at all. I KNOW it is not > what > > the mito docs recommend. I discovered this before I was diagnosed, > and > > do not understand how this fits into the mito theory. Maybe my > > metabolic glitch is in the carb conversion chain. I dont know, but > > more protein seems to agree with me. So much to learn, to try to > > manage and optimize our condition. > > > > > > It is good to hear from others who are experiencing similar things. > > > > Sunny > > > > > > That is very interesting that you are experiencing similar things. > I > > can't say as that I feel like I am in a brain fog though. I don't > seem > > to have problems with the kind of forgetfulness tht lots of people > > complain of. I am having problems following stories,for one thing. > > Like during the test they told me a 3 or 4 sentence story and I was > > suppose to repeat back the details of it, and I could barely tell > any > > of it. That is very typical of what I am experiencing. If I am in > a > > group of people and one is talking I can't seem to understand what > they > > are talking about if there is any distraction at all. I also got > lost > > going to my hairdresser' 2 months in a row, couldn't remember what > > street to turn on. But yet the 2nd month I remembered that I had the > > same problem the month before!??? That incident was what made my > > doctor send me to the clinic to be tested. > >> Scary. > >> > >> Smiles, > >> > >>> > >>> > >>> Date: 2004/03/22 Mon PM 03:33:38 EST > >>> To: > >>> Subject: Re: memory disorder > >>> > >>> I am going through a similar thing, . I had my first > clear > >>> day in months on Friday - big difference. One thing was that I > had > >>> my lactate, pyruvate, CK and ammonia checked, and my ammonia was > >>> high. I understand that can cause brain fog. > >>> > >>> It is funny (I have a sick sense of humor) to be able to function > >>> relatively well, but have very poor short-term memory. I went to > a > >>> neuro-psychologist and they found that there were deficits for me > - > >> I > >>> have a high IQ too, but they could see that there were > >>> inconsistencies in the results that showed memory loss and > >>> impairment. Also had an absence seizure in front of the psych > tech, > >>> that was funny too. I can learn new things, do my work, but > simple > >>> things like remembering my kids' names or what I was doing are a > >>> problem. > >>> > >>> I am waiting for Dr. P from the town MDA clinic or a nurse to > >>> call back about the high ammonia, unfortunately I couldn't go to > my > >>> MDA clinic appointment last week because I forgot to get a > >> referral. > >>> A shame because my youngest son was supposed to go too... > >>> > >>> I sure wish I could figure out why I had that one good day > >>> > >>> Take care, > >>> RH > >>> > >>> > >>> > >>>> > >>>> > >>>> My mom's deficits were scattered. Her biggest problem was with > >> word > >>> finding > >>>> and it was made worse with fatigue, too much physical activity or > >>> stress. I > >>>> have the same word finding problems under these conditions. She > >>> also had > >>>> trouble with memory, especially new learning. She didn't have any > >>> great > >>>> increase once on the supplements until the past few months, > >>> especially after > >>>> some nutritional issues. > >>>> > >>>> Hugs, > >>>> laurie > >>>> > >>>>> From: " Young " > >>>>> Reply-To: > >>>>> Date: Fri, 19 Mar 2004 17:55:54 -0500 > >>>>> To: > > >>>>> Subject: Re: memory disorder > >>>>> > >>>>> Hi Laurie, > >>>>> > >>>>> Did your mom complain of not being able to process thoughts and > >>> not > >>>>> remember? Only certain areas are effected they said, and it is > >>> patchy, not > >>>>> hemispherical or focal. Many of my testing areas still showed > >>> higher than > >>>>> average. > >>>>> This is really concerning me. I wonder if they will end up > >> doing > >>> an MRI on > >>>>> me? > >>>>> > >>>>> Smiles, > >>>>> > >>>>> > >>>>> > >>>>> memory disorder > >>>>>>> > >>>>>>> I have just been diagnosed after much official testing at a > >>> memory > >>>>> disorder > >>>>>>> clinic to have mild to moderate cognitive deficits. It does > >>> not fit the > >>>>>>> Alzheimer or dementia profile at all at this time. But there > >> is > >>> most > >>>>> certainly > >>>>>>> something wrong. Not the usual age related forgetfulness. Does > >>> anyone > >>>>> else > >>>>>>> have a " confirmed " memory disorder like this? I can not > >> think. > >>> learn > >>>>> easily. > >>>>>>> concentrate or multitask. My IQ is very high they said. so > >> it > >>> makes it > >>>>> hard > >>>>>>> to establish just how much I have lost. But this test will > >>> give us a > >>>>> base > >>>>>>> line. I have to have more done in 8 months. Would appreciate > >>> any > >>>>> comments > >>>>>>> from folks that have been officially diagnosed like this. > >>>>>>> > >>>>>>> Smiles, > >>>>>>> > >>>>>>> > >>>>>> > >>>>>> > >>>>>> > >>>>>> Medical advice, information, opinions, data and statements > >>> contained > >>>>> herein are not necessarily those of the list moderators. The > >>> author of this > >>>>> e mail is entirely responsible for its content. List members are > >>> reminded of > >>>>> their responsibility to evaluate the content of the postings and > >>> consult > >>>>> with their physicians regarding changes in their own treatment. > >>>>>> > >>>>>> Personal attacks are not permitted on the list and anyone who > >>> sends one is > >>>>> automatically moderated or removed depending on the severity of > >>> the attack. > >>>>>> > >>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Sunny We are talking regular cornstarch. What I have done is to cook some rice (brown is best, but I have used white). I then thicken unsweetened juice (I like orange and cranberry the best) with cornstarch. Once it is thick, I add the rice and some uncooked cornstarch. I usually use about 2 tablespoons per batch which is about 1-1/2 cup of juice to start. I don't measure, but dump, so you will have to experiment. laurie > From: z39z@... > Reply-To: > Date: Tue, 23 Mar 2004 09:56:41 -0500 > To: > Subject: cornstarch carb > > Hi, Laurie > > Thanks for your response to my diet comments. No, I have not tried raw > cornstarch. Read about it on a mito site I think, but didn't know what > exactly, and how much. I think the suggestion was to take some > cornstarch carb before bedtime. Are you saying regular cornstarch? And > how much would a person take at once? I am really interested in trying > it, in the course of the day, and or at bedtime. > > > > >> Sunny >> >> I was told to eat the kind of diet that makes me feel the best. There >> doesn't seem to be much rhyme or reason as to what people with mito >> should >> eat. I need lots of protein. We are all different. You should know >> that the >> brain uses glucose for fuel. Have you tried raw cornstarch which is >> metabolized very slowly. >> >> laurie >> >>> From: z39z@... >>> Reply-To: >>> Date: Mon, 22 Mar 2004 22:41:54 -0500 >>> To: >>> Subject: Re: Re: memory disorder >>> >>> Thanks for sharing your experiences about brain/memory function. >>> >>> It was good to hear others describe the memory/concentration >> problems >>> similar to mine. Especially not being able to understand >> conversation >>> if there is a distraction. If two people are talking to me at the >> same >>> time, it can be very difficult, almost painful to endure, and I >> can't >>> process either one. Drives me wild. I always thought it was that I >> had >>> sensitive hearing.  Also, the multitasking think is tough. I can >> do a >>> lot of things well, but one at a time, please. I sometimes need a >>> second or two to find a word, but usually it is not worse than >> that. I >>> loved the comment about being able to remember that/what you could >> not >>> remember. So true. Names have always been a problem for me, ever >> since >>> I can remember (lol)....at least 50 years. With the exception of >> the >>> name thing, which is pretty constant, I find my mental function is >>> very unpredictable. Some hours/days I do great. Other times I know >> I >>> am low, and just try not to put myself in a position where I will be >>> taxed. But, I always know if I am clicking or not. I always remember >>> that I did not know what I should have. And frequently, later, I >> can >>> remember it again. (Except for names - always been really really >> hard >>> for me). I guess different parts of the brain are involved. I >> think >>> the QGel is helping this brain problem somewhat.  Also, recently I >>> drink a cup of coffee when I am low on mental energy, and to my >>> surprise, that seems to make me sharper mentally sometimes. I use >>> coffee like a drug, never too much, only when I need it. I have had >>> these problems for many years, and while it is trying, I can still >> go >>> out an do my stuff most days. (Have to bluff and cover up sometimes, >>> but not to bad) The bad times seem a little worse now, but not that >>> much. I am optimistic that it may not get worse. >>> >>> One more thing. For me, restricting my carbs seems to help my >> mental >>> function. My mind gets really tired/cloudy after I eat bread, for >>> example. I have tried eating the low glycemic carbs, but I >> definitely >>> feel better when I dont eat many carbs at all. I KNOW it is not >> what >>> the mito docs recommend. I discovered this before I was diagnosed, >> and >>> do not understand how this fits into the mito theory. Maybe my >>> metabolic glitch is in the carb conversion chain. I dont know, but >>> more protein seems to agree with me.  So much to learn, to try to >>> manage and optimize our condition. >>> >>> >>> It is good to hear from others who are experiencing similar things. >>> >>> Sunny >>> >>> >>> That is very interesting that you are experiencing similar things. >> I >>> can't say as that I feel like I am in a brain fog though. I don't >> seem >>> to have problems with the kind of forgetfulness tht lots of people >>> complain of. I am having problems following stories,for one thing. >>> Like during the test they told me a 3 or 4 sentence story and I was >>> suppose to repeat back the details of it, and I could barely tell >> any >>> of it. That is very typical of what I am experiencing. If I am in >> a >>> group of people and one is talking I can't seem to understand what >> they >>> are talking about if there is any distraction at all. I also got >> lost >>> going to my hairdresser' 2 months in a row, couldn't remember what >>> street to turn on. But yet the 2nd month I remembered that I had the >>> same problem the month before!??? That incident was what made my >>> doctor send me to the clinic to be tested. >>>> Scary. >>>> >>>> Smiles, >>>> >>>>> >>>>> >>>>> Date: 2004/03/22 Mon PM 03:33:38 EST >>>>> To: >>>>> Subject: Re: memory disorder >>>>> >>>>> I am going through a similar thing, . I had my first >> clear >>>>> day in months on Friday - big difference. One thing was that I >> had >>>>> my lactate, pyruvate, CK and ammonia checked, and my ammonia was >>>>> high. I understand that can cause brain fog. >>>>> >>>>> It is funny (I have a sick sense of humor) to be able to function >>>>> relatively well, but have very poor short-term memory. I went to >> a >>>>> neuro-psychologist and they found that there were deficits for me >> - >>>> I >>>>> have a high IQ too, but they could see that there were >>>>> inconsistencies in the results that showed memory loss and >>>>> impairment. Also had an absence seizure in front of the psych >> tech, >>>>> that was funny too. I can learn new things, do my work, but >> simple >>>>> things like remembering my kids' names or what I was doing are a >>>>> problem. >>>>> >>>>> I am waiting for Dr. P from the town MDA clinic or a nurse to >>>>> call back about the high ammonia, unfortunately I couldn't go to >> my >>>>> MDA clinic appointment last week because I forgot to get a >>>> referral. >>>>> A shame because my youngest son was supposed to go too... >>>>> >>>>> I sure wish I could figure out why I had that one good day >>>>> >>>>> Take care, >>>>> RH >>>>> >>>>> >>>>> >>>>>> >>>>>> >>>>>> My mom's deficits were scattered. Her biggest problem was with >>>> word >>>>> finding >>>>>> and it was made worse with fatigue, too much physical activity or >>>>> stress. I >>>>>> have the same word finding problems under these conditions. She >>>>> also had >>>>>> trouble with memory, especially new learning. She didn't have any >>>>> great >>>>>> increase once on the supplements until the past few months, >>>>> especially after >>>>>> some nutritional issues. >>>>>> >>>>>> Hugs, >>>>>> laurie >>>>>> >>>>>>> From: " Young " >>>>>>> Reply-To: >>>>>>> Date: Fri, 19 Mar 2004 17:55:54 -0500 >>>>>>> To: > >>>>>>> Subject: Re: memory disorder >>>>>>> >>>>>>> Hi Laurie, >>>>>>> >>>>>>> Did your mom complain of not being able to process thoughts and >>>>> not >>>>>>> remember? Only certain areas are effected they said, and it is >>>>> patchy, not >>>>>>> hemispherical or focal. Many of my testing areas still showed >>>>> higher than >>>>>>> average. >>>>>>> This is really concerning me. I wonder if they will end up >>>> doing >>>>> an MRI on >>>>>>> me? >>>>>>> >>>>>>> Smiles, >>>>>>> >>>>>>> >>>>>>> >>>>>>> memory disorder >>>>>>>>> >>>>>>>>> I have just been diagnosed after much official testing at a >>>>> memory >>>>>>> disorder >>>>>>>>> clinic to have mild to moderate cognitive deficits. It does >>>>> not fit the >>>>>>>>> Alzheimer or dementia profile at all at this time. But there >>>> is >>>>> most >>>>>>> certainly >>>>>>>>> something wrong. Not the usual age related forgetfulness. Does >>>>> anyone >>>>>>> else >>>>>>>>> have a " confirmed " memory disorder like this? I can not >>>> think. >>>>> learn >>>>>>> easily. >>>>>>>>> concentrate or multitask. My IQ is very high they said. so >>>> it >>>>> makes it >>>>>>> hard >>>>>>>>> to establish just how much I have lost. But this test will >>>>> give us a >>>>>>> base >>>>>>>>> line. I have to have more done in 8 months. Would appreciate >>>>> any >>>>>>> comments >>>>>>>>> from folks that have been officially diagnosed like this. >>>>>>>>> >>>>>>>>> Smiles, >>>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> Medical advice, information, opinions, data and statements >>>>> contained >>>>>>> herein are not necessarily those of the list moderators. The >>>>> author of this >>>>>>> e mail is entirely responsible for its content. List members are >>>>> reminded of >>>>>>> their responsibility to evaluate the content of the postings and >>>>> consult >>>>>>> with their physicians regarding changes in their own treatment. >>>>>>>> >>>>>>>> Personal attacks are not permitted on the list and anyone who >>>>> sends one is >>>>>>> automatically moderated or removed depending on the severity of >>>>> the attack. >>>>>>>> >>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Here are comments (and dosages) we received from a patient who has benefited from raw cornstarch: " My doctor talked to a specialist at Duke who suggested taking supplements of uncooked cornstarch. I began taking 4 tablespoons of cornstarch twice a day. I felt the impact almost immediately. The basic idea is that the cornstarch acts like time-released energy. I used to have slight muscle pain when I had to go 4-5 hours between breakfast and lunch. Now I take 4 tablespoons of cornstarch in orange juice with breakfast and I have absolutely no problems between breakfast and lunch. I used to take the second dose before bed (so that I would have energy to burn while sleeping) but I have since found it more helpful to take it in the evening right before I go out dancing or to the gym or for a walk. The cornstarch has not stopped my major episodes however it has made a drastic effect on my less serious episodes. When my muscles begin hurting I quickly drink down an extra serving of four tablespoons of cornstarch in orange juice and then drink a high sugar soda and the muscle pain subsides within about 30 minutes. When I first began this treatment regimen I was bothered by the taste of the cornstarch in juice. I just had to tell myself that I needed to do it. Now orange juice tastes weird to me when it doesn't contain cornstarch. " > >>>>>> > >>>>>> > >>>>>> My mom's deficits were scattered. Her biggest problem was with > >>>> word > >>>>> finding > >>>>>> and it was made worse with fatigue, too much physical activity or > >>>>> stress. I > >>>>>> have the same word finding problems under these conditions. She > >>>>> also had > >>>>>> trouble with memory, especially new learning. She didn't have any > >>>>> great > >>>>>> increase once on the supplements until the past few months, > >>>>> especially after > >>>>>> some nutritional issues. > >>>>>> > >>>>>> Hugs, > >>>>>> laurie > >>>>>> > >>>>>>> From: " Young " > >>>>>>> Reply-To: > >>>>>>> Date: Fri, 19 Mar 2004 17:55:54 -0500 > >>>>>>> To: > > >>>>>>> Subject: Re: memory disorder > >>>>>>> > >>>>>>> Hi Laurie, > >>>>>>> > >>>>>>> Did your mom complain of not being able to process thoughts and > >>>>> not > >>>>>>> remember? Only certain areas are effected they said, and it is > >>>>> patchy, not > >>>>>>> hemispherical or focal. Many of my testing areas still showed > >>>>> higher than > >>>>>>> average. > >>>>>>> This is really concerning me. I wonder if they will end up > >>>> doing > >>>>> an MRI on > >>>>>>> me? > >>>>>>> > >>>>>>> Smiles, > >>>>>>> > >>>>>>> > >>>>>>> > >>>>>>> memory disorder > >>>>>>>>> > >>>>>>>>> I have just been diagnosed after much official testing at a > >>>>> memory > >>>>>>> disorder > >>>>>>>>> clinic to have mild to moderate cognitive deficits. It does > >>>>> not fit the > >>>>>>>>> Alzheimer or dementia profile at all at this time. But there > >>>> is > >>>>> most > >>>>>>> certainly > >>>>>>>>> something wrong. Not the usual age related forgetfulness. Does > >>>>> anyone > >>>>>>> else > >>>>>>>>> have a " confirmed " memory disorder like this? I can not > >>>> think. > >>>>> learn > >>>>>>> easily. > >>>>>>>>> concentrate or multitask. My IQ is very high they said. so > >>>> it > >>>>> makes it > >>>>>>> hard > >>>>>>>>> to establish just how much I have lost. But this test will > >>>>> give us a > >>>>>>> base > >>>>>>>>> line. I have to have more done in 8 months. Would appreciate > >>>>> any > >>>>>>> comments > >>>>>>>>> from folks that have been officially diagnosed like this. > >>>>>>>>> > >>>>>>>>> Smiles, > >>>>>>>>> > >>>>>>>>> > >>>>>>>> > >>>>>>>> > >>>>>>>> > >>>>>>>> Medical advice, information, opinions, data and statements > >>>>> contained > >>>>>>> herein are not necessarily those of the list moderators. The > >>>>> author of this > >>>>>>> e mail is entirely responsible for its content. List members are > >>>>> reminded of > >>>>>>> their responsibility to evaluate the content of the postings and > >>>>> consult > >>>>>>> with their physicians regarding changes in their own treatment. > >>>>>>>> > >>>>>>>> Personal attacks are not permitted on the list and anyone who > >>>>> sends one is > >>>>>>> automatically moderated or removed depending on the severity of > >>>>> the attack. > >>>>>>>> > >>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Thank you, . Appreciate the information. Sunny > Sunny > > We are talking regular cornstarch. What I have done is to cook some > rice > (brown is best, but I have used white). I then thicken unsweetened > juice (I > like orange and cranberry the best) with cornstarch. Once it is > thick, I add > the rice and some uncooked cornstarch. I usually use about 2 > tablespoons per > batch which is about 1-1/2 cup of juice to start. I don't measure, > but dump, > so you will have to experiment. > > laurie > > > From: z39z@... > > Reply-To: > > Date: Tue, 23 Mar 2004 09:56:41 -0500 > > To: > > Subject: cornstarch carb > > > > Hi, Laurie > > > > Thanks for your response to my diet comments. No, I have not tried > raw > > cornstarch. Read about it on a mito site I think, but didn't know > what > > exactly, and how much. I think the suggestion was to take some > > cornstarch carb before bedtime. Are you saying regular cornstarch? > And > > how much would a person take at once? I am really interested in > trying > > it, in the course of the day, and or at bedtime. > > > > > > > > > >> Sunny > >> > >> I was told to eat the kind of diet that makes me feel the best. > There > >> doesn't seem to be much rhyme or reason as to what people with mito > >> should > >> eat. I need lots of protein. We are all different. You should know > >> that the > >> brain uses glucose for fuel. Have you tried raw cornstarch which is > >> metabolized very slowly. > >> > >> laurie > >> > >>> From: z39z@... > >>> Reply-To: > >>> Date: Mon, 22 Mar 2004 22:41:54 -0500 > >>> To: > >>> Subject: Re: Re: memory disorder > >>> > >>> Thanks for sharing your experiences about brain/memory function. > >>> > >>> It was good to hear others describe the memory/concentration > >> problems > >>> similar to mine. Especially not being able to understand > >> conversation > >>> if there is a distraction. If two people are talking to me at the > >> same > >>> time, it can be very difficult, almost painful to endure, and I > >> can't > >>> process either one. Drives me wild. I always thought it was that > I > >> had > >>> sensitive hearing. Also, the multitasking think is tough. I can > >> do a > >>> lot of things well, but one at a time, please. I sometimes need a > >>> second or two to find a word, but usually it is not worse than > >> that. I > >>> loved the comment about being able to remember that/what you could > >> not > >>> remember. So true. Names have always been a problem for me, ever > >> since > >>> I can remember (lol)....at least 50 years. With the exception of > >> the > >>> name thing, which is pretty constant, I find my mental function > is > >>> very unpredictable. Some hours/days I do great. Other times I > know > >> I > >>> am low, and just try not to put myself in a position where I will > be > >>> taxed. But, I always know if I am clicking or not. I always > remember > >>> that I did not know what I should have. And frequently, later, I > >> can > >>> remember it again. (Except for names - always been really really > >> hard > >>> for me). I guess different parts of the brain are involved. I > >> think > >>> the QGel is helping this brain problem somewhat. Also, > recently I > >>> drink a cup of coffee when I am low on mental energy, and to my > >>> surprise, that seems to make me sharper mentally sometimes. I use > >>> coffee like a drug, never too much, only when I need it. I have > had > >>> these problems for many years, and while it is trying, I can > still > >> go > >>> out an do my stuff most days. (Have to bluff and cover up > sometimes, > >>> but not to bad) The bad times seem a little worse now, but not > that > >>> much. I am optimistic that it may not get worse. > >>> > >>> One more thing. For me, restricting my carbs seems to help my > >> mental > >>> function. My mind gets really tired/cloudy after I eat bread, for > >>> example. I have tried eating the low glycemic carbs, but I > >> definitely > >>> feel better when I dont eat many carbs at all. I KNOW it is not > >> what > >>> the mito docs recommend. I discovered this before I was diagnosed, > >> and > >>> do not understand how this fits into the mito theory. Maybe my > >>> metabolic glitch is in the carb conversion chain. I dont know, > but > >>> more protein seems to agree with me. So much to learn, to try > to > >>> manage and optimize our condition. > >>> > >>> > >>> It is good to hear from others who are experiencing similar > things. > >>> > >>> Sunny > >>> > >>> > >>> That is very interesting that you are experiencing similar > things. > >> I > >>> can't say as that I feel like I am in a brain fog though. I don't > >> seem > >>> to have problems with the kind of forgetfulness tht lots of people > >>> complain of. I am having problems following stories,for one > thing. > >>> Like during the test they told me a 3 or 4 sentence story and I > was > >>> suppose to repeat back the details of it, and I could barely tell > >> any > >>> of it. That is very typical of what I am experiencing. If I am > in > >> a > >>> group of people and one is talking I can't seem to understand what > >> they > >>> are talking about if there is any distraction at all. I also got > >> lost > >>> going to my hairdresser' 2 months in a row, couldn't remember what > >>> street to turn on. But yet the 2nd month I remembered that I had > the > >>> same problem the month before!??? That incident was what made my > >>> doctor send me to the clinic to be tested. > >>>> Scary. > >>>> > >>>> Smiles, > >>>> > >>>>> > >>>>> > >>>>> Date: 2004/03/22 Mon PM 03:33:38 EST > >>>>> To: > >>>>> Subject: Re: memory disorder > >>>>> > >>>>> I am going through a similar thing, . I had my first > >> clear > >>>>> day in months on Friday - big difference. One thing was that I > >> had > >>>>> my lactate, pyruvate, CK and ammonia checked, and my ammonia was > >>>>> high. I understand that can cause brain fog. > >>>>> > >>>>> It is funny (I have a sick sense of humor) to be able to > function > >>>>> relatively well, but have very poor short-term memory. I went > to > >> a > >>>>> neuro-psychologist and they found that there were deficits for > me > >> - > >>>> I > >>>>> have a high IQ too, but they could see that there were > >>>>> inconsistencies in the results that showed memory loss and > >>>>> impairment. Also had an absence seizure in front of the psych > >> tech, > >>>>> that was funny too. I can learn new things, do my work, but > >> simple > >>>>> things like remembering my kids' names or what I was doing are a > >>>>> problem. > >>>>> > >>>>> I am waiting for Dr. P from the town MDA clinic or a nurse > to > >>>>> call back about the high ammonia, unfortunately I couldn't go to > >> my > >>>>> MDA clinic appointment last week because I forgot to get a > >>>> referral. > >>>>> A shame because my youngest son was supposed to go too... > >>>>> > >>>>> I sure wish I could figure out why I had that one good day > >>>>> > >>>>> Take care, > >>>>> RH > >>>>> > >>>>> > >>>>> > >>>>>> > >>>>>> > >>>>>> My mom's deficits were scattered. Her biggest problem was with > >>>> word > >>>>> finding > >>>>>> and it was made worse with fatigue, too much physical activity > or > >>>>> stress. I > >>>>>> have the same word finding problems under these conditions. She > >>>>> also had > >>>>>> trouble with memory, especially new learning. She didn't have > any > >>>>> great > >>>>>> increase once on the supplements until the past few months, > >>>>> especially after > >>>>>> some nutritional issues. > >>>>>> > >>>>>> Hugs, > >>>>>> laurie > >>>>>> > >>>>>>> From: " Young " > >>>>>>> Reply-To: > >>>>>>> Date: Fri, 19 Mar 2004 17:55:54 -0500 > >>>>>>> To: > > >>>>>>> Subject: Re: memory disorder > >>>>>>> > >>>>>>> Hi Laurie, > >>>>>>> > >>>>>>> Did your mom complain of not being able to process thoughts > and > >>>>> not > >>>>>>> remember? Only certain areas are effected they said, and it > is > >>>>> patchy, not > >>>>>>> hemispherical or focal. Many of my testing areas still showed > >>>>> higher than > >>>>>>> average. > >>>>>>> This is really concerning me. I wonder if they will end up > >>>> doing > >>>>> an MRI on > >>>>>>> me? > >>>>>>> > >>>>>>> Smiles, > >>>>>>> > >>>>>>> > >>>>>>> > >>>>>>> memory disorder > >>>>>>>>> > >>>>>>>>> I have just been diagnosed after much official testing at a > >>>>> memory > >>>>>>> disorder > >>>>>>>>> clinic to have mild to moderate cognitive deficits. It does > >>>>> not fit the > >>>>>>>>> Alzheimer or dementia profile at all at this time. But there > >>>> is > >>>>> most > >>>>>>> certainly > >>>>>>>>> something wrong. Not the usual age related forgetfulness. > Does > >>>>> anyone > >>>>>>> else > >>>>>>>>> have a " confirmed " memory disorder like this? I can not > >>>> think. > >>>>> learn > >>>>>>> easily. > >>>>>>>>> concentrate or multitask. My IQ is very high they said. so > >>>> it > >>>>> makes it > >>>>>>> hard > >>>>>>>>> to establish just how much I have lost. But this test will > >>>>> give us a > >>>>>>> base > >>>>>>>>> line. I have to have more done in 8 months. Would > appreciate > >>>>> any > >>>>>>> comments > >>>>>>>>> from folks that have been officially diagnosed like this. > >>>>>>>>> > >>>>>>>>> Smiles, > >>>>>>>>> > >>>>>>>>> > >>>>>>>> > >>>>>>>> > >>>>>>>> > >>>>>>>> Medical advice, information, opinions, data and statements > >>>>> contained > >>>>>>> herein are not necessarily those of the list moderators. The > >>>>> author of this > >>>>>>> e mail is entirely responsible for its content. List members > are > >>>>> reminded of > >>>>>>> their responsibility to evaluate the content of the postings > and > >>>>> consult > >>>>>>> with their physicians regarding changes in their own > treatment. > >>>>>>>> > >>>>>>>> Personal attacks are not permitted on the list and anyone who > >>>>> sends one is > >>>>>>> automatically moderated or removed depending on the severity > of > >>>>> the attack. > >>>>>>>> > >>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Hi, wheatchild2, I was glad to see the info on how to take cornstarch. I certainly will try it. Thank you. Sunny > Here are comments (and dosages) we received from a patient who has > benefited from raw cornstarch: > > " My doctor talked to a specialist at Duke who suggested taking > supplements of uncooked cornstarch. I began taking 4 tablespoons of > cornstarch twice a day. I felt the impact almost immediately. The > basic idea is that the cornstarch acts like time-released energy. I > used to have slight muscle pain when I had to go 4-5 hours between > breakfast and lunch. Now I take 4 tablespoons of cornstarch in > orange juice with breakfast and I have absolutely no problems > between breakfast and lunch. I used to take the second dose before > bed (so that I would have energy to burn while sleeping) but I have > since found it more helpful to take it in the evening right before I > go out dancing or to the gym or for a walk. The cornstarch has not > stopped my major episodes however it has made a drastic effect on my > less serious episodes. When my muscles begin hurting I quickly drink > down an extra serving of four tablespoons of cornstarch in orange > juice and then drink a high sugar soda and the muscle pain subsides > within about 30 minutes. When I first began this treatment regimen I > was bothered by the taste of the cornstarch in juice. I just had to > tell myself that I needed to do it. Now orange juice tastes weird to > me when it doesn't contain cornstarch. " > > > > > > >>>>>> > > >>>>>> > > >>>>>> My mom's deficits were scattered. Her biggest problem was > with > > >>>> word > > >>>>> finding > > >>>>>> and it was made worse with fatigue, too much physical > activity or > > >>>>> stress. I > > >>>>>> have the same word finding problems under these conditions. > She > > >>>>> also had > > >>>>>> trouble with memory, especially new learning. She didn't > have any > > >>>>> great > > >>>>>> increase once on the supplements until the past few months, > > >>>>> especially after > > >>>>>> some nutritional issues. > > >>>>>> > > >>>>>> Hugs, > > >>>>>> laurie > > >>>>>> > > >>>>>>> From: " Young " > > >>>>>>> Reply-To: > > >>>>>>> Date: Fri, 19 Mar 2004 17:55:54 -0500 > > >>>>>>> To: > > > >>>>>>> Subject: Re: memory disorder > > >>>>>>> > > >>>>>>> Hi Laurie, > > >>>>>>> > > >>>>>>> Did your mom complain of not being able to process > thoughts and > > >>>>> not > > >>>>>>> remember? Only certain areas are effected they said, and > it is > > >>>>> patchy, not > > >>>>>>> hemispherical or focal. Many of my testing areas still > showed > > >>>>> higher than > > >>>>>>> average. > > >>>>>>> This is really concerning me. I wonder if they will end > up > > >>>> doing > > >>>>> an MRI on > > >>>>>>> me? > > >>>>>>> > > >>>>>>> Smiles, > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> memory disorder > > >>>>>>>>> > > >>>>>>>>> I have just been diagnosed after much official testing > at a > > >>>>> memory > > >>>>>>> disorder > > >>>>>>>>> clinic to have mild to moderate cognitive deficits. It > does > > >>>>> not fit the > > >>>>>>>>> Alzheimer or dementia profile at all at this time. But > there > > >>>> is > > >>>>> most > > >>>>>>> certainly > > >>>>>>>>> something wrong. Not the usual age related > forgetfulness. Does > > >>>>> anyone > > >>>>>>> else > > >>>>>>>>> have a " confirmed " memory disorder like this? I can not > > >>>> think. > > >>>>> learn > > >>>>>>> easily. > > >>>>>>>>> concentrate or multitask. My IQ is very high they > said. so > > >>>> it > > >>>>> makes it > > >>>>>>> hard > > >>>>>>>>> to establish just how much I have lost. But this test > will > > >>>>> give us a > > >>>>>>> base > > >>>>>>>>> line. I have to have more done in 8 months. Would > appreciate > > >>>>> any > > >>>>>>> comments > > >>>>>>>>> from folks that have been officially diagnosed like this. > > >>>>>>>>> > > >>>>>>>>> Smiles, > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>> > > >>>>>>>> > > >>>>>>>> > > >>>>>>>> Medical advice, information, opinions, data and statements > > >>>>> contained > > >>>>>>> herein are not necessarily those of the list moderators. > The > > >>>>> author of this > > >>>>>>> e mail is entirely responsible for its content. List > members are > > >>>>> reminded of > > >>>>>>> their responsibility to evaluate the content of the > postings and > > >>>>> consult > > >>>>>>> with their physicians regarding changes in their own > treatment. > > >>>>>>>> > > >>>>>>>> Personal attacks are not permitted on the list and anyone > who > > >>>>> sends one is > > >>>>>>> automatically moderated or removed depending on the > severity of > > >>>>> the attack. > > >>>>>>>> > > >>>>>>>> Quote Link to comment Share on other sites More sharing options...
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