Re: Please look at my baby!

[Guest guest]

i don't think your son's head looks that bad. i do notice the bulge on the one side, but i don't think it is horrible and do not think i would see it, if i were not looking for it. i definitely notice the tilt that someone else posted about, so you might want to look into that. if you are comfortable with his head then don't get a helmet. if you are not sure then go get an evaluation at CT or some where else. candice, nyLaurie Bryce <laurie@...> wrote: OK, thanks for all the responses (my original post was "8-month old with brachy"). Clearly we're not too late for a helmet.But I'm struggling ... I don't WANT to do the helmet, unless I really have to. My husband and I think his head looks odd, but not terribly so ... we think he's a moderate case. I'm wondering what others think, just subjectively. If people look at my son and immediately think, "Wow, look at that weird-headed baby," then we'd better do the helmet. If it's something that is noticeable when pointed out, but not horribly obvious otherwise, then maybe we'd not do the helmet. I don't know how to tell which direction to go!This may be crazy but I posted some pictures of Camden, my son, in an album on the site:http://health.ph./group/Plagiocephaly/photos/browse/8041?c=Would you all look and see what you think? These are unofficial pics, and you can't see the back of his head -- the back is actually not all that flat. It's more that the top of his head kind of bulges out to his right side, above his ear, but is flat above the other ear. It's a weird shape, no question. But HOW weird? How noticeable?Responses welcome ... promise my feelings won't be hurt! :-)The related question is ... CAN this resolve on its own, with repositioning, or is this the best we can ever expect? I'm at a total loss about what to do, and my husband is too!Laurie> > 8-month old with brachy ... too late?> > Hi -- I have an 8-month old with what is probably moderate > > brachycephaly. I think it started as plagio, just one very mild flat > > area on the right side of the back of his head. (Due to reflux > causing > torticollis causing the plagio ... how I wish I'd know about > that > connection MUCH earlier!)> > We had a scan done at Children's in Boston > when he was six months and > it was such a small number -- 4.5ml -- that we > decided not to do a > helmet and just work on positioning.> > Then just > recently we realized the left side of his head looks like > it bulges a bit, > and the entire back is flatter ... I guess he's > getting worse, not > better.> > I'm trying to get an appointment with Dr.

at > Children's > who specializes in this, for his opinion, but I'm worried -- is > a > helmet going to be effective if we start at this age (and will he > > have to wear it for months and months)? I also thought that helmets > > were less effective on brachy than plagio ... ?> > If we work harder > on the positioning, and he continues to receive PT > for the torticollis > (which is already much better) ... maybe we could > do without the helmet? > Or is he already too old to show much > improvement from this point on? > There's so much I don't know!> > I feel like his head shape is only mildly > off -- although maybe > that's wishful thinking. I'm afraid if we don't do > anything, he's > going to hate me when he's > older.> > Help!> > Laurie> > >

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I looked at the pictures and I don't think his head looks that bad; however, we banded my son and based on pictures you would never have thought he needed to be banded but in person...oh my! I notice the tilt to the right...I would definitely get that looked at. If you are unsure of your son's head shape I would recommend getting an evaluation at CT or somewhere else. Good luck. PS: The helmet is not the end of the world. Most babies adjust just fine. My son was the same happy baby before, during, and after. His sleep was not hindered and neither were developmental milestones. Dumerlin <candicedumerlin@...> wrote: i don't think your son's head looks that bad. i do notice the bulge on the one side, but i don't think it is horrible and do not think i would see it, if i were not looking for it. i definitely notice the tilt that someone else posted about, so you might want to look into that. if you are comfortable with his head then don't get a helmet. if you are not sure then go get an evaluation at CT or some where else. candice, nyLaurie Bryce <laurielauriebryce> wrote: OK, thanks for all the responses (my original post was "8-month old with brachy").

Clearly we're not too late for a helmet.But I'm struggling ... I don't WANT to do the helmet, unless I really have to. My husband and I think his head looks odd, but not terribly so ... we think he's a moderate case. I'm wondering what others think, just subjectively. If people look at my son and immediately think, "Wow, look at that weird-headed baby," then we'd better do the helmet. If it's something that is noticeable when pointed out, but not horribly obvious otherwise, then maybe we'd not do the helmet. I don't know how to tell which direction to go!This may be crazy but I posted some pictures of Camden, my son, in an album on the site:http://health.ph./group/Plagiocephaly/photos/browse/8041?c=Would you all look and see what you think? These are unofficial pics, and you can't

see the back of his head -- the back is actually not all that flat. It's more that the top of his head kind of bulges out to his right side, above his ear, but is flat above the other ear. It's a weird shape, no question. But HOW weird? How noticeable?Responses welcome ... promise my feelings won't be hurt! :-)The related question is ... CAN this resolve on its own, with repositioning, or is this the best we can ever expect? I'm at a total loss about what to do, and my husband is too!Laurie> > 8-month old with brachy ... too late?> > Hi -- I have an 8-month old with what is probably moderate > > brachycephaly. I think it started as plagio, just one very mild flat > > area on

the right side of the back of his head. (Due to reflux > causing > torticollis causing the plagio ... how I wish I'd know about > that > connection MUCH earlier!)> > We had a scan done at Children's in Boston > when he was six months and > it was such a small number -- 4.5ml -- that we > decided not to do a > helmet and just work on positioning.> > Then just > recently we realized the left side of his head looks like > it bulges a bit, > and the entire back is flatter ... I guess he's > getting worse, not > better.> > I'm trying to get an appointment with Dr. at > Children's > who specializes in this, for his opinion, but I'm worried -- is > a > helmet going to be effective if we start at this age (and will he > > have to wear it for months and months)? I also thought that helmets >

> were less effective on brachy than plagio ... ?> > If we work harder > on the positioning, and he continues to receive PT > for the torticollis > (which is already much better) ... maybe we could > do without the helmet? > Or is he already too old to show much > improvement from this point on? > There's so much I don't know!> > I feel like his head shape is only mildly > off -- although maybe > that's wishful thinking. I'm afraid if we don't do > anything, he's > going to hate me when he's > older.> > Help!> > Laurie> > > It's here! Your new message!Get new email alerts with the free Toolbar.

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[Guest guest]

I can see it. Especially in the mirror pic. But also in the others. If the drs are leaving it up to you I'd say band. The time is short when correction can be achieved and while you can do something I always think it's better to try.

BTW - They are both sooooo Cute!!!!

Jen and Luli (16mo)

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

http://www.babiesonline.com/babies/j/jens5th/

Please look at my baby!

OK, thanks for all the responses (my original post was "8-month old

with brachy"). Clearly we're not too late for a helmet.

But I'm struggling ... I don't WANT to do the helmet, unless I really

have to. My husband and I think his head looks odd, but not terribly

so ... we think he's a moderate case. I'm wondering what others

think, just subjectively. If people look at my son and immediately

think, "Wow, look at that weird-headed baby," then we'd better do the

helmet. If it's something that is noticeable when pointed out, but

not horribly obvious otherwise, then maybe we'd not do the helmet. I

don't know how to tell which direction to go!

This may be crazy but I posted some pictures of Camden, my son, in an

album on the site:

http://health.ph./group/Plagiocephaly/photos/browse/80

41?c=

Would you all look and see what you think? These are unofficial pics,

and you can't see the back of his head -- the back is actually not

all that flat. It's more that the top of his head kind of bulges out

to his right side, above his ear, but is flat above the other ear.

It's a weird shape, no question. But HOW weird? How noticeable?

Responses welcome ... promise my feelings won't be hurt! :-)

The related question is ... CAN this resolve on its own, with

repositioning, or is this the best we can ever expect?

I'm at a total loss about what to do, and my husband is too!

Laurie

>

> 8-month old with brachy ... too late?

>

> Hi -- I have an 8-month old with what is probably moderate

>

> brachycephaly. I think it started as plagio, just one very mild

flat

>

> area on the right side of the back of his head. (Due to reflux

> causing

> torticollis causing the plagio ... how I wish I'd know about

> that

> connection MUCH earlier!)

>

> We had a scan done at Children's in Boston

> when he was six months and

> it was such a small number -- 4.5ml -- that we

> decided not to do a

> helmet and just work on positioning.

>

> Then just

> recently we realized the left side of his head looks like

> it bulges a bit,

> and the entire back is flatter ... I guess he's

> getting worse, not

> better.

>

> I'm trying to get an appointment with Dr. at

> Children's

> who specializes in this, for his opinion, but I'm worried -- is

> a

> helmet going to be effective if we start at this age (and will he

>

> have to wear it for months and months)? I also thought that helmets

>

> were less effective on brachy than plagio ... ?

>

> If we work harder

> on the positioning, and he continues to receive PT

> for the torticollis

> (which is already much better) ... maybe we could

> do without the helmet?

> Or is he already too old to show much

> improvement from this point on?

> There's so much I don't know!

>

> I feel like his head shape is only mildly

> off -- although maybe

> that's wishful thinking. I'm afraid if we don't do

> anything, he's

> going to hate me when he's

> older.

>

> Help!

>

> Laurie

>

>

>

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[Guest guest]

Thanks for all the responses on this. Just about everyone pointed out

Cam's torticollis -- it's worse lately for some reason. He is getting

PT once a week through early intervention but it seems kind of ... I

don't know how to describe it. Not enough stretching and she seems to

focus more on getting him to roll over. She doesn't really give us

much to do with him during the week. So it's not very intense, not

sure that it's helping him at all.

I guess his odd head shape is pretty obvious. It's not just us

noticing it. :-0

Laurie

> OK, thanks for all the responses (my original post was " 8-

month old

> with brachy " ). Clearly we're not too late for a helmet.

>

> But I'm struggling ... I don't WANT to do the helmet, unless I

really

> have to. My husband and I think his head looks odd, but not

terribly

> so ... we think he's a moderate case. I'm wondering what others

> think, just subjectively. If people look at my son and immediately

> think, " Wow, look at that weird-headed baby, " then we'd better do

the

> helmet. If it's something that is noticeable when pointed out, but

> not horribly obvious otherwise, then maybe we'd not do the helmet.

I

> don't know how to tell which direction to go!

>

> This may be crazy but I posted some pictures of Camden, my son, in

an

> album on the site:

>

http://health.ph./group/Plagiocephaly/photos/browse/80

> 41?c=

>

> Would you all look and see what you think? These are unofficial

pics,

> and you can't see the back of his head -- the back is actually not

> all that flat. It's more that the top of his head kind of bulges

out

> to his right side, above his ear, but is flat above the other ear.

> It's a weird shape, no question. But HOW weird? How noticeable?

>

> Responses welcome ... promise my feelings won't be hurt! :-)

>

> The related question is ... CAN this resolve on its own, with

> repositioning, or is this the best we can ever expect?

>

> I'm at a total loss about what to do, and my husband is too!

>

> Laurie

>

> >

> > 8-month old with brachy ... too late?

>

> >

> > Hi -- I have an 8-month old with what is probably moderate

> >

> > brachycephaly. I think it started as plagio, just one very mild

> flat

> >

> > area on the right side of the back of his head. (Due to reflux

> > causing

> > torticollis causing the plagio ... how I wish I'd know about

> > that

> > connection MUCH earlier!)

> >

> > We had a scan done at Children's in Boston

> > when he was six months and

> > it was such a small number -- 4.5ml -- that we

> > decided not to do a

> > helmet and just work on positioning.

> >

> > Then just

> > recently we realized the left side of his head looks like

> > it bulges a bit,

> > and the entire back is flatter ... I guess he's

> > getting worse, not

> > better.

> >

> > I'm trying to get an appointment with Dr. at

> > Children's

> > who specializes in this, for his opinion, but I'm worried -- is

> > a

> > helmet going to be effective if we start at this age (and will he

> >

> > have to wear it for months and months)? I also thought that

helmets

> >

> > were less effective on brachy than plagio ... ?

> >

> > If we work harder

> > on the positioning, and he continues to receive PT

> > for the torticollis

> > (which is already much better) ... maybe we could

> > do without the helmet?

> > Or is he already too old to show much

> > improvement from this point on?

> > There's so much I don't know!

> >

> > I feel like his head shape is only mildly

> > off -- although maybe

> > that's wishful thinking. I'm afraid if we don't do

> > anything, he's

> > going to hate me when he's

> > older.

> >

> > Help!

> >

> > Laurie

> >

> >

> >

>

>

>

>

>

> ---------------------------------

> It's here! Your new message!

> Get new email alerts with the free Toolbar.

>

>

>

>

> ---------------------------------

> Bored stiff? Loosen up...

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>

[Guest guest]

I would definitely do the stretches on your own too (if you aren't already). Once a week won't be enough. It is a daily thing (even as much as every diaper change).Laurie Bryce <laurie@...> wrote: Thanks for all the responses on this. Just about everyone pointed out Cam's torticollis -- it's worse lately for some reason. He is getting PT once a week through early intervention but it seems kind of ... I don't know how to describe it. Not enough stretching and she seems to focus more on

getting him to roll over. She doesn't really give us much to do with him during the week. So it's not very intense, not sure that it's helping him at all.I guess his odd head shape is pretty obvious. It's not just us noticing it. :-0Laurie> OK, thanks for all the responses (my original post was "8-month old > with brachy"). Clearly we're not too late for a helmet.> > But I'm struggling ... I don't WANT to do the helmet, unless I really > have to. My husband and I think his head

looks odd, but not terribly > so ... we think he's a moderate case. I'm wondering what others > think, just subjectively. If people look at my son and immediately > think, "Wow, look at that weird-headed baby," then we'd better do the > helmet. If it's something that is noticeable when pointed out, but > not horribly obvious otherwise, then maybe we'd not do the helmet. I > don't know how to tell which direction to go!> > This may be crazy but I posted some pictures of Camden, my son, in an > album on the site:> http://health.ph./group/Plagiocephaly/photos/browse/80> 41?c=> > Would you all look and see what you think? These are unofficial pics, > and you can't see the back of his head -- the back is actually not > all that

flat. It's more that the top of his head kind of bulges out > to his right side, above his ear, but is flat above the other ear. > It's a weird shape, no question. But HOW weird? How noticeable?> > Responses welcome ... promise my feelings won't be hurt! :-)> > The related question is ... CAN this resolve on its own, with > repositioning, or is this the best we can ever expect? > > I'm at a total loss about what to do, and my husband is too!> > Laurie> > > > > 8-month old with brachy ... too late?> > > > > Hi -- I have an 8-month old with what is probably moderate > > > > brachycephaly. I think it started as

plagio, just one very mild > flat > > > > area on the right side of the back of his head. (Due to reflux > > causing > > torticollis causing the plagio ... how I wish I'd know about > > that > > connection MUCH earlier!)> > > > We had a scan done at Children's in Boston > > when he was six months and > > it was such a small number -- 4.5ml -- that we > > decided not to do a > > helmet and just work on positioning.> > > > Then just > > recently we realized the left side of his head looks like > > it bulges a bit, > > and the entire back is flatter ... I guess he's > > getting worse, not > > better.> > > > I'm trying to get an appointment with Dr. at > > Children's > > who specializes in this, for his opinion, but I'm worried --

is > > a > > helmet going to be effective if we start at this age (and will he > > > > have to wear it for months and months)? I also thought that helmets > > > > were less effective on brachy than plagio ... ?> > > > If we work harder > > on the positioning, and he continues to receive PT > > for the torticollis > > (which is already much better) ... maybe we could > > do without the helmet? > > Or is he already too old to show much > > improvement from this point on? > > There's so much I don't know!> > > > I feel like his head shape is only mildly > > off -- although maybe > > that's wishful thinking. I'm afraid if we don't do > > anything, he's > > going to hate me when he's > > older.> > > > Help!> > > >

Laurie> > > > > > > > > > > > ---------------------------------> It's here! Your new message!> Get new email alerts with the free Toolbar. > > > > > ---------------------------------> Bored stiff? Loosen up...> Download and play hundreds of games for free on Games.>

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[Guest guest]

Laurie,

I noticed the head tilt. The head shape I only noticed because you

pointed it out. I looked at your sons picture last night without

seeing your posts. I just joined the site. Anyway, I looked at his

picture and thought wow if he needs a helmut then my child needs one

for sure. I could hardly tell what was wrong with his head shape.

The torticollis was more noticeable.

Jen

> > OK, thanks for all the responses (my original post was " 8-

> month old

> > with brachy " ). Clearly we're not too late for a helmet.

> >

> > But I'm struggling ... I don't WANT to do the helmet, unless I

> really

> > have to. My husband and I think his head looks odd, but not

> terribly

> > so ... we think he's a moderate case. I'm wondering what others

> > think, just subjectively. If people look at my son and

immediately

> > think, " Wow, look at that weird-headed baby, " then we'd better do

> the

> > helmet. If it's something that is noticeable when pointed out,

but

> > not horribly obvious otherwise, then maybe we'd not do the

helmet.

> I

> > don't know how to tell which direction to go!

> >

> > This may be crazy but I posted some pictures of Camden, my son,

in

> an

> > album on the site:

> >

>

http://health.ph./group/Plagiocephaly/photos/browse/80

> > 41?c=

> >

> > Would you all look and see what you think? These are unofficial

> pics,

> > and you can't see the back of his head -- the back is actually

not

> > all that flat. It's more that the top of his head kind of bulges

> out

> > to his right side, above his ear, but is flat above the other

ear.

> > It's a weird shape, no question. But HOW weird? How noticeable?

> >

> > Responses welcome ... promise my feelings won't be hurt! :-)

> >

> > The related question is ... CAN this resolve on its own, with

> > repositioning, or is this the best we can ever expect?

> >

> > I'm at a total loss about what to do, and my husband is too!

> >

> > Laurie

> >

> > >

> > > 8-month old with brachy ... too late?

> >

> > >

> > > Hi -- I have an 8-month old with what is probably moderate

> > >

> > > brachycephaly. I think it started as plagio, just one very mild

> > flat

> > >

> > > area on the right side of the back of his head. (Due to reflux

> > > causing

> > > torticollis causing the plagio ... how I wish I'd know about

> > > that

> > > connection MUCH earlier!)

> > >

> > > We had a scan done at Children's in Boston

> > > when he was six months and

> > > it was such a small number -- 4.5ml -- that we

> > > decided not to do a

> > > helmet and just work on positioning.

> > >

> > > Then just

> > > recently we realized the left side of his head looks like

> > > it bulges a bit,

> > > and the entire back is flatter ... I guess he's

> > > getting worse, not

> > > better.

> > >

> > > I'm trying to get an appointment with Dr. at

> > > Children's

> > > who specializes in this, for his opinion, but I'm worried -- is

> > > a

> > > helmet going to be effective if we start at this age (and will

he

> > >

> > > have to wear it for months and months)? I also thought that

> helmets

> > >

> > > were less effective on brachy than plagio ... ?

> > >

> > > If we work harder

> > > on the positioning, and he continues to receive PT

> > > for the torticollis

> > > (which is already much better) ... maybe we could

> > > do without the helmet?

> > > Or is he already too old to show much

> > > improvement from this point on?

> > > There's so much I don't know!

> > >

> > > I feel like his head shape is only mildly

> > > off -- although maybe

> > > that's wishful thinking. I'm afraid if we don't do

> > > anything, he's

> > > going to hate me when he's

> > > older.

> > >

> > > Help!

> > >

> > > Laurie

> > >

> > >

> > >

> >

> >

> >

> >

> >

> > ---------------------------------

> > It's here! Your new message!

> > Get new email alerts with the free Toolbar.

> >

> >

> >

> >

> > ---------------------------------

> > Bored stiff? Loosen up...

> > Download and play hundreds of games for free on Games.

> >

>