Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Kim, thas is a type of seizure, my daughter does that, The scream/cry is usually an aura before the seizure begins. It is a night seizure that usually occurs when children are sleeping. There are so many forms of seizures. Re: Re: Trip to Mayo Kim,>I do not recall him saying what symptoms go with what. I just remember >him saying that he expected to see the girls with smaller heads and frail >bodies. Unfortunately, I seem to not be able to retain a lot of >information in my head.No problem. I know how hard it is to remember all the information in an appointment like that or even keep your head straight to ask all your questions--especially when you're talking about two children! I was just curious because when Emilie was diagnosed with Complex IV, I asked other parents on this list about the symptoms their kids with Complex IV have, and I didn't see much of a pattern. -- Mom to:Emilie (16), mito--complex IV, cp, ld Kaitlin (16), cp, asthma, a few autonomic symptomsIan (21) migraines...and wife to Tim, who has a heart of goldPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Kim, thas is a type of seizure, my daughter does that, The scream/cry is usually an aura before the seizure begins. It is a night seizure that usually occurs when children are sleeping. There are so many forms of seizures. Re: Re: Trip to Mayo Kim,>I do not recall him saying what symptoms go with what. I just remember >him saying that he expected to see the girls with smaller heads and frail >bodies. Unfortunately, I seem to not be able to retain a lot of >information in my head.No problem. I know how hard it is to remember all the information in an appointment like that or even keep your head straight to ask all your questions--especially when you're talking about two children! I was just curious because when Emilie was diagnosed with Complex IV, I asked other parents on this list about the symptoms their kids with Complex IV have, and I didn't see much of a pattern. -- Mom to:Emilie (16), mito--complex IV, cp, ld Kaitlin (16), cp, asthma, a few autonomic symptomsIan (21) migraines...and wife to Tim, who has a heart of goldPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Kim, thas is a type of seizure, my daughter does that, The scream/cry is usually an aura before the seizure begins. It is a night seizure that usually occurs when children are sleeping. There are so many forms of seizures. Re: Re: Trip to Mayo Kim,>I do not recall him saying what symptoms go with what. I just remember >him saying that he expected to see the girls with smaller heads and frail >bodies. Unfortunately, I seem to not be able to retain a lot of >information in my head.No problem. I know how hard it is to remember all the information in an appointment like that or even keep your head straight to ask all your questions--especially when you're talking about two children! I was just curious because when Emilie was diagnosed with Complex IV, I asked other parents on this list about the symptoms their kids with Complex IV have, and I didn't see much of a pattern. -- Mom to:Emilie (16), mito--complex IV, cp, ld Kaitlin (16), cp, asthma, a few autonomic symptomsIan (21) migraines...and wife to Tim, who has a heart of goldPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 I just wanted to thank you for your loving concerns for members of this list. It's very much appreciated. We've been here on the internet for almost 5 years now and it never fails.. when others are going thru trials.. someone is there to fill in the gaps and provide support. Thanks for being there today. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 Alice, Blessings and thank You. Be Well. Hugs, Kim Michele KimGo'sWithFeathers > I just wanted to thank you for your loving concerns for members of this list. It's very much appreciated. We've been here on the internet for almost 5 years now and it never fails.. when others are going thru trials.. someone is there to fill in the gaps and provide support. > > Thanks for being there today. > > Alice Quote Link to comment Share on other sites More sharing options...
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