Re: uroxatral? fed up with urologist

[Guest guest]

Adrienne,

Did you get the urologist to try any of the meds you were interested

in? I don't know if I told you, but after a year, my PCP finally sent

me to a urologist, but all he was willing to do was teach me how to

self cath. Of course now I am out of a job and with no insurance, so I

guess it is a moot point.

moonchild62579@... wrote:

Hey guys,

Just got back from my urologist and he's really iffy about putting me

on several of the meds for interstitial cystitis and neurogenic

bladder. We already tried detrol LA (pil form) and then the patch (cant

remember the name but similar to detrol). Both of these gave me probs

with my dysmotility. He has me on urostat which helps me some with the

burning and frequency but not enough with urgency and it seems my

kidneys aren't processing it the way it should be processed (it should

work pretty quickly and for 8 hrs but for me it takes 4-5 hrs to work

and only works 2 hrs- dr thinks that since it doesnt color my urine

orange right away- but takes several hours that my kidneys are having

probs with it.) Anyways......he really wants to treat this conditions

and says that if we don't get them treated well that I will keep having

reoccuring kidney and bladder infections which of course aren't good

cuz they throw off all my other probs. He wanted to try elmiron which

is for interstitial cystitis but since I have liver probs he said that

I can't take it until my liver enzymes are normal for at least 2 months

(which hasnt happened in over a year). So now he gives me this med

called uroxatral. But I research it and its only used in men

supposively for prostate issues! It does talk about how it helps the

smooth muscles of the bladder wall also but it keeps talking about how

its not intended for use in women. It also supposively can cause

postural hypotension which I already deal with sometimes. I'm really

scared to try this med but this urologist seems fed up with my issues

with meds- he kept repeating how i was a difficult case for him and

last time I had probs with the meds he gave me and paged him- he never

called back! I dont know what I should do. I'm thinking about changing

urologist- maybe trying to find one that primarily sees women (my gyno

said there was one in the area) but I'm so sick of going to new drs and

repeating my complicated history. I saw a new gastro friday and that

just was loads of fun- specia!

lly him saying 'but you look so healthy!" At least he is going to do

some needed tests this week and is interested in all my records, some

drs just throw their hands up. Oh, and this urologist does know some

stuff about mito- I'm afraid to find another one that doesnt know a

thing but I cant keep taking chances with these weird meds. He also

gave me macrobid which flared up my periphrial neuropathy. I told him I

had it and he just doesnt seem to know enough about these meds. Argh,

anyways, sorry for the long vent.....I just wanted to get some imput

here, specially with those that said they had IC and other uro probs.

(I know yall posted before and I should of responded- sorry for not

keeping up.) Any suggestions would be much appreciated.

take care,

Adrienne

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