Re: Disappointing results after a growth spurt

[Guest guest]

and Molly - I agree about the Starscan margin for error,

and that is interesting about the circumference shrinking (!!) -

that says it right there! He has been doing a mix of overnight and

23 hours...he's been in it, I would say about 15-20 hours per day.

I can understand that slowing the improvement, but for him to

go " backwards " was really disappointing. My husband had commented on

the way there that he thought n had " popped back out " at his

bulgiest part, and I said it was his eyes playing tricks, but now I

think he's right. We have eagle eyes I guess and no one else in the

world would notice the change. The more I think about it, the more

I think it was holding too much on the right (were it should not

have been). That is corrected now, so hopefully moving forward he

will still have some good growth and it will right itself. His

circumference is now 175, which the ortho said is on the big side

for his age, so we have to hit a plateau sometime I would think - I

just dont know when!

> >

> > Hi all - Just to update, n had a fu today with the ortho -

in

> > 2.5 weeks he grew ANOTHER 7mm!!! He is almost 7.5 months old.

That

> > makes for 12mm of growth in 4.5 weeks. However, his CR only

came

> > down one more percent - to 84% and the mild plagio numbers had

> > actually INCREASED by one mm in his worst areas. I am so

> > disappointed. That seems like a whole lot of nothing gained for

> > such a huge growth spurt (to grow 7mm and take a step BACK in

the

> > plagio measurement????) and it really makes me question the fit

of

> > this helmet in general. I guess it could be Starscan error

margins,

> > but still with that much growth I would have expected at least

some

> > measurable improvement however small. Has anyone here had

experience

> > with little to no improvement when they got down to

the " Graduating "

> > level of numbers but were still using the band? His asymmetry

at

> > his worst spot is about 4.5mm now - it was 3.6mm at his last

visit

> > (what the? um wrong direction??). I know, I know these are good

> > mild numbers so I should be happy, but I wanted to get the most

> > correction possible before we finished, and he's had tremendous

> > growth in this band in this last couple visits, so I didn't

think

> > that was unreasonable... Our ortho keeps saying " well we are

working

> > with such small numbers here " - I keep getting the feeling that

our

> > ortho thinks we are overboard because his numbers are almost

normal

> > compared to what she sees. However, just because she sees very

> > severe cases doesn't mean I don't want as much correction as I

can

> > get for my child, who happened to benefit a lot from my

exhaustive

> > repo efforts for 4 months prior and therefore started his band

on

> > the mild to moderate range of a brachy/plagio combo instead of

being

> > severe - he still wasn't within any " normal " ranges when we

started,

> > and he's closer now, but since we have the band, I wanted to

MAKE

> > USE OF IT. Very discouraging and makes me want to throw this

> > helmet in the garbage. Sorry to be negative, I am just

frustrated

> > and something seemed very wrong about the whole picture today of

big

> > growth spurt and not much progress!

> >

> > n, repo 2-6 months, Starband 1.12.07

> >

>

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> For more plagio info