New to site

[Guest guest]

> Lori...thanks for that info. If a child is on enzymes...do they

still need to be on a restricted diet?

Sometimes yes, other times no.

My son used HNI enzymes and I still had to remove artificials, rice,

corn, and orange/green foods. He did fine with all other foods tho.

Before enzymes, he tolerated no foods.

>>the more we limit him...the more intolerances he develops. I try to

rotate...but the choices he will take are so limited.

This is common. I was able to end my food rotations, once I started

using HNI enzymes.

Dana

[Guest guest]

> I don't understand what is happening to our children. It seems that

autism is creeping up everywhere.

For many kids, autism is metal toxicity, from vaccines and other sources.

http://www.generationrescue.org/

>>This is the first time I hear people talking about recovery....and

believing it. What a hope!!!!!

Here is my " Stories of Recovery " page

http://www.danasview.net/recover.htm

My son's story is the first one. He is biomedically recovered now,

altho still delayed in language. But no longer autistic, even tho his

dx is " classic genetic Kanner's autism " , severe, low functioning.

Recovery is possible, the tricky part is finding what your specific

child needs.

Dana

[Guest guest]

Thanks for your call Haleh. I work every weekend so missed it. The days are full

of therapies...kindergarten for older sibling...and a new baby.

You are a precious person for showing such concern for me.

Deanne

Re: New to site

Hi ,

I too have an almost three year old. He turns three this Sunday. No functional

language and lost of issues. I came to this site about three months ago and

haven't found a better group or resource any where. I feel lucky that I found

this group.

Like you, I have been broken hearted and hurt and sometimes frightened about

my child's future.

There is a lot we can do. For me listening to my son's pediatricians have

often been a set back, so, I double check their recommendations with this

group. My son started enzymes in his drink at the start of my joining this

group (about 3 months ago) with Houston Naturacuetical Inc Zyme Pryme and a

month later I added AFT Peptizide by the same company. Then I started the

Gluten Free Casein Free diet. We are on our third week and I love the diet and

Enzyme combination. Finally on Monday after I saw blood in my child stool, I

took him to a pediatrician who totally dismissed that, so, I started No-PHenol

enzyme and I am amazed. Suddenly, a child that has had 3-6 BM per day (every

day of all his life) has one only yeasterday. His behavior and cognitive

development has improved greatly and he is a happier person. I mix the powders

in his drink and have seen no signs of reflux. Also, Huoston also makes two of

these enzymes in chewable forms.

At the beginning the GFCF diet seemed so impossible to me, but after the

enzymes, my sons appetite improved and not being in tummy ache all the time,

he became more open to new stuff. His eye contact improved greatly and he runs

and gives me hugs many times a day.

Our children are special human beings and we must help them thrive and respect

their uniqueness. After all no major accomplishment in the history of humanity

has come from people who were perfectly Neuro Typical (if such thing exist).

Welcome, You couldn't join a better group to help your child.

And the following URL is were I get my son's enzymes. You can call them and

they are very helpful on the phone as well. There are other reputable

companies as well but I have only used Houston's and I love them.

http://houstonni.com/Merchant2/merchant.mvc?

Also, are you in an area to get him to a DAN (Deafeat Autism Now) doctor?

I am sending you my two favorite autism websites. I read them extensively to

learn about my options of helping mt child.

http://www.generationrescue.org

http://www.autismwebsite.com/ari/index.htm

Best to you and your precious child and remember when you get him recovered,

you have quite story to tell.

Haleh

>

> --- bignelson5 <gdnelson5@...> wrote:

>

> > Hello to all....My precious son is almost 3 years

> > old and has been

> > diagnosed with autism. I am completely overwhelmed

> > with all of

> > the 'therapies and treatments.' I am desperate to

> > know how to help him.

> > I keep coming across the issue of enzymes. My sons'

> > tests showed high

> > allergy to dairy and casein products...but our

> > doctor also feels he

> > should avoid gluten. The diet is so hard...and I am

> > not sure if it is

> > helping him at all. What form of enzyme is

> > recommended? When we saw our

> > doctor last she mentioned enzyes would be

> > great...but wanted to wait

> > until he could swallow the capsules...she felt the

> > powder in food would

> > cause reflux. I would like to try enzymes but don't

> > know where to

> > start. I feel parents are the true

> > professionals....any advice???

> > Deanne

> >

> >

> >

> >

> >

> >

>

>

>

>

> __________________________________

> for Mobile

> Take with you! Check email on your mobile phone.

> http://mobile./learn/mail

>

>

>

[Guest guest]

Dear Deanne,

Hope all is well and managable. I am glad you are finding support in this

group and seeing the picture of recovery for your son in the horizon.

I too am overwhelmed with work right now and just trying to keep my head above

the water.

Best to you,

Haleh

--- gdnelson5@... wrote:

> Thanks for your call Haleh. I work every weekend so missed it. The days are

> full of therapies...kindergarten for older sibling...and a new baby.

> You are a precious person for showing such concern for me.

> Deanne

> Re: New to site

>

>

> Hi ,

> I too have an almost three year old. He turns three this Sunday. No

> functional

> language and lost of issues. I came to this site about three months ago

> and

> haven't found a better group or resource any where. I feel lucky that I

> found

> this group.

> Like you, I have been broken hearted and hurt and sometimes frightened

> about

> my child's future.

> There is a lot we can do. For me listening to my son's pediatricians have

> often been a set back, so, I double check their recommendations with this

> group. My son started enzymes in his drink at the start of my joining

> this

> group (about 3 months ago) with Houston Naturacuetical Inc Zyme Pryme and

> a

> month later I added AFT Peptizide by the same company. Then I started the

> Gluten Free Casein Free diet. We are on our third week and I love the diet

> and

> Enzyme combination. Finally on Monday after I saw blood in my child stool,

> I

> took him to a pediatrician who totally dismissed that, so, I started

> No-PHenol

> enzyme and I am amazed. Suddenly, a child that has had 3-6 BM per day

> (every

> day of all his life) has one only yeasterday. His behavior and cognitive

> development has improved greatly and he is a happier person. I mix the

> powders

> in his drink and have seen no signs of reflux. Also, Huoston also makes

> two of

> these enzymes in chewable forms.

> At the beginning the GFCF diet seemed so impossible to me, but after the

> enzymes, my sons appetite improved and not being in tummy ache all the

> time,

> he became more open to new stuff. His eye contact improved greatly and he

> runs

> and gives me hugs many times a day.

>

> Our children are special human beings and we must help them thrive and

> respect

> their uniqueness. After all no major accomplishment in the history of

> humanity

> has come from people who were perfectly Neuro Typical (if such thing

> exist).

>

> Welcome, You couldn't join a better group to help your child.

> And the following URL is were I get my son's enzymes. You can call them

> and

> they are very helpful on the phone as well. There are other reputable

> companies as well but I have only used Houston's and I love them.

>

> http://houstonni.com/Merchant2/merchant.mvc?

>

> Also, are you in an area to get him to a DAN (Deafeat Autism Now) doctor?

> I am sending you my two favorite autism websites. I read them extensively

> to

> learn about my options of helping mt child.

>

> http://www.generationrescue.org

>

> http://www.autismwebsite.com/ari/index.htm

>

> Best to you and your precious child and remember when you get him

> recovered,

> you have quite story to tell.

> Haleh

> >

> > --- bignelson5 <gdnelson5@...> wrote:

> >

> > > Hello to all....My precious son is almost 3 years

> > > old and has been

> > > diagnosed with autism. I am completely overwhelmed

> > > with all of

> > > the 'therapies and treatments.' I am desperate to

> > > know how to help him.

> > > I keep coming across the issue of enzymes. My sons'

> > > tests showed high

> > > allergy to dairy and casein products...but our

> > > doctor also feels he

> > > should avoid gluten. The diet is so hard...and I am

> > > not sure if it is

> > > helping him at all. What form of enzyme is

> > > recommended? When we saw our

> > > doctor last she mentioned enzyes would be

> > > great...but wanted to wait

> > > until he could swallow the capsules...she felt the

> > > powder in food would

> > > cause reflux. I would like to try enzymes but don't

> > > know where to

> > > start. I feel parents are the true

> > > professionals....any advice???

> > > Deanne

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > for Mobile

> > Take with you! Check email on your mobile phone.

> > http://mobile./learn/mail

> >

> >

> >

[Guest guest]

> Hi Dana..thanks for your wisdom. I read your story of recovery and I

don't know how you managed all that...with 4 children. I have

three...and don't have much time to research on what to do for my son

with autism.

Lots of late nights and early mornings.

>>Seems like there are so many things.. What is your feeling on B12

injections?

I don't believe in injections unless there is no other way to obtain

the benefits, and the person REALLY needs the medication/supplement.

I used sublinguals for my kids, with good success. They needed folic

acid and flax oil, otherwise they (1) had problems without folic acid,

and (2) very little benefit without flax oil.

Other parents are having good success with the mB12 shots, so it is

your decision.

>>Have you ever considered glutathione?

I used it for about 2-3 weeks, and then my kids no longer needed it.

>>Have you had your kids genetically tested for weaknesses in

glutathione production?

No testing here, genetic or otherwise.

My kids were vaccine injured.

> Can I just come live with you for a weak so you can tell me what

course to take???!!!

Do you do laundry?

=)

Dana

[Guest guest]

Dana...fabulous answers. I do laundry...but I am not so great about separating

colors. My husbands' co-workers have commented on his pink socks....

Our big question is...what does recovery mean?? My husband and I meet parents

who say their child is high functioning...but to us, that child has ' a lot of

autism'...as my husband would say. We are very confused about what high and low

functioning means. We have been told that our son has 'classic autism'...which I

believe must mean low functioning. His doctor was not all that straight forward

with us. Then we hear recovery...which to me must not mean cure. You mention

your son acts younger than his age...do you mean he is developmentally behind

and without charcteristics of autism?? We are new to this and have no idea what

it all means. Does recovery mean that the child now could qualify as

'typical " ..don't like that word but I don't know how else to state it.

Is 'recovered from autism' a official medical terminology that doctors use...and

do they have criteria to conclude such a thing.

Thanks for any help you can provide. I know these are big and broad questions.

People tell me not to get my hopes up as there is 'no cure.'

Deanne

Re: New to site

> Hi Dana..thanks for your wisdom. I read your story of recovery and I

don't know how you managed all that...with 4 children. I have

three...and don't have much time to research on what to do for my son

with autism.

Lots of late nights and early mornings.

>>Seems like there are so many things.. What is your feeling on B12

injections?

I don't believe in injections unless there is no other way to obtain

the benefits, and the person REALLY needs the medication/supplement.

I used sublinguals for my kids, with good success. They needed folic

acid and flax oil, otherwise they (1) had problems without folic acid,

and (2) very little benefit without flax oil.

Other parents are having good success with the mB12 shots, so it is

your decision.

>>Have you ever considered glutathione?

I used it for about 2-3 weeks, and then my kids no longer needed it.

>>Have you had your kids genetically tested for weaknesses in

glutathione production?

No testing here, genetic or otherwise.

My kids were vaccine injured.

> Can I just come live with you for a weak so you can tell me what

course to take???!!!

Do you do laundry?

=)

Dana

[Guest guest]

> Dana...fabulous answers. I do laundry...but I am not so great about

separating colors. My husbands' co-workers have commented on his pink

socks....

LOL

Buy him black socks.

=)

> Our big question is...what does recovery mean??

It means different things for different people. Here are a few

examples of what has been referred to as " recovery " .

1. Indistinguishable from peers. This is the most common definition.

Many times, the child is only indistinguishable " so long as " he

follows a certain diet, takes certain medications/supplements, etc.

Some parents still refer to those kids as recovered, others don't.

2. No longer autistic, but has other issues which do not qualify as

autism.

3. My son will be " biomedically recovered " in a few months. He no

longer qualifies as autistic, no longer needs any diet restrictions,

no longer has yeast overgrowth issues, and the last two supplements

should no longer be necessary in a few months. But he is not

indistinguishable, because he is still delayed in language.

>>My husband and I meet parents who say their child is high

functioning...but to us, that child has ' a lot of autism'...as my

husband would say. We are very confused about what high and low

functioning means.

Here are my thoughts on that. A child can be " very autistic " and

still be high functioning

http://www.danasview.net/funclevl.htm

>>We have been told that our son has 'classic autism'...which I

believe must mean low functioning.

My son's dx is " classic Kanner's autism " , severe, low functioning.

The " classic Kanner's " part means he was born this way, he did not

have a period of normal development followed by regression. Most kids

like that are low functioning, but I do know a few who are higher

functioning.

>>His doctor was not all that straight forward with us. Then we hear

recovery...which to me must not mean cure. You mention your son acts

younger than his age...do you mean he is developmentally behind and

without charcteristics of autism??

Yes. If you watch him, you would swear you were watching a typical

3yo child, but my son is 9.

> Is 'recovered from autism' a official medical terminology that

doctors use...

I don't know. What I *do* know, is because most doctors believe

autism is genetic, then if the child no longer qualifies as autistic,

it " must have been " an incorrect dx to begin with.

>>and do they have criteria to conclude such a thing.

Dx criteria

http://www.danasview.net/parentin.htm#diagnostic

> Thanks for any help you can provide. I know these are big and broad

questions. People tell me not to get my hopes up as there is 'no cure.'

No DAN doctors would accept my son as a patient 5+ years ago when I

was calling around. They all said he was a genetic case, so there was

nothing they could do for him. But now he is no longer autistic =)

Dana

[Guest guest]

> started him approximately 3 weeks ago on Zyme Prime, and

> Peptizyde. He also has been taking Carnaware for about a month and

> a half. 40 mg of Strattera also in the am.

> Thanks Fran

Hi Fran,

I have an 11 year old son. Three years ago we trialed Srattera. He

is in the 97% for growth; fit and strong. We started on 18 mg. He

was miserable. Then we incerased it a bit. It was worse. He was

terribly emotional and not at all like himself. (most likey one of

the suicidal ones.) The three months we trialed Strattera

were 'dim.' Every child is different, but if I were you, I would

ditch the Strattera, and work GRADUALLY with the boimed.

Are you supplementing with magnesium/calcium? Magnesium helped us

ALOT with hyper behavoir. Give him 100mg of magnesium before school

instead of the strattera.

Get him off dairy!

Could the enzymes be intensifying the Strattera?

I just read an article last week that mentioned Strattera and sent

an excerpt to my husband at work. (Only because Strattera is a bad

name in our house!) Although my son did not have the problem noted

below, it is still a concern. Only an excerpt is copied from the e-

mail, but you can try to find more info.

''The ADHD drugs include Ritalin, manufactured by Novartis

Pharmaceuticals Corp. and in generic form by other companies;

Adderall, made by Shire Pharmaceuticals Inc., and Strattera,

produced by Eli Lilly and Company.

FDA officials say patients and doctors should be aware that the

small number of events could represent side effects of the drugs,

although they cannot point to a definitive link. However, they noted

a " complete absence " of similar reports in children treated with

dummy pills during dozens of clinical trials of the drugs. And in

many children, the events ceased once they stopped taking the drugs —

and resumed if they restarted.

" The predominance in young children of hallucinations, both visual

and tactile, involving insects, snakes and worms is striking, and

deserves further evaluation, " FDA officials said in a March 3

memorandum included in the briefing documents.''

You are doing great catching this now with your dear son...when I

had my son on Strattera at age 8, that was our first step... you are

well ahead.

Robyn

[Guest guest]

>

> Hi, I'm new to this site and I have a 6 1/2 yr.old son with Sensory

> issues and has been diagnosed with PDD. I believe he has a leaky gut

> and have started him approximately 3 weeks ago on Zyme Prime, and

> Peptizyde.

If these contain papain/bromelain, try the AFP Peptizyde and the SCD

version of Zyme Prime, which don't contain those ingredients. Certain

kids don't do well with papain/bromelain.

> receives 1 capsule of both ZymePrime and Peptizyde in the am & at

> dinner time,

Try giving them at lunch also. You can also try adding No-Fenol.

Sorry, I don't know much about Strattera, except that the No-Fenol

might help with the same issues.

Dana

[Guest guest]

>

Does anyone have any experience in trying to

> get a classification changed? I am wondering if it is worth the

> fight........He likes his ED teacher, and is in a " regular " math

> class, otherwise he is in his ED class for all other subjects.

>

My 11 yr old son is in an EBD (emotional behavior disorder) classroom

and has been for 3 years. I am having the battle of a lifetime trying

to get him out of it. I have found out through research on the net

and personal experience this this has been the worst placement for

kids with HFA. The noise level, and the general unrest in the

classroom sends him into sensory overload. There are just so many

triggers for his aggressive behaviors in this setting, because of the

behaviors in the other kids. When he is around " normal " kids, he

doesn't have the aggresive behaviors. The anxiety carries over at

home because he is already dreading the next day at school.

How is your son doing in his current placement? Is he having problems

in his ED class? Is he making progress with social skills? Academics?

All AS kids are different, so I would ask myself those questions. I

would definately still have his classification changed to ASD or AS,

so if he has problems in the future it will be easier to

get " appropriate " supports. Good luck to you and welcome to the group!

Theresa Harding

[Guest guest]

Hi,

I'm homeschooling my son so I am able to really monitor any changes in

behavior. After a month on Carnaware we stopped. His behavior really

improved after stopping. Even his speech therapist and OT noticed a

big difference. He wasn't as frustrated, moody,emotional and hyper.

Normally he is not hyper at all. For us it was the Carnaware. So maybe

you could discontinue that only and see how it goes.

Diane

[Guest guest]

This is a great site. Generation Rescue. You can find a Rescue Angel in

your area.

www.generationrescue.org <http://www.generationrescue.org/>

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

_____

From: [mailto: ]

On Behalf Of ezpartiesrus

Sent: Monday, January 08, 2007 10:09 PM

Subject: [ ] new to site

Hello,

I am seeking information and personal results for those of you have

tried chelation. My son is 5 and is on the autism spectrum. He is non-

verbal and is quite delayed. My husband and I are thinking of trying

chelation and we would like to hear from families who have done or are

in the process. Where can I find a doctor? What is the average cost?

Are there side effects? How soon did you sdee results, if any? Your

input and information is greatly appreciated.

thank you

Eve

[Guest guest]

Hello Eve,

Welcome to the list ! I think you will find that the people here are most

helpful and willing to answer any questions you have.

I suggest you start by having a look at the Files section, most FAQ's are

covered there.

Many parents on this site are chelating their kids with great success with

little or no support from doctors. Since you are new to this process, you

will likely feel more comfortable finding a DAN! practitioner to help you

get started but it isn't required.

First thing you want to do is send away to Direct Labs for a DDI Hair Test

(make sure you order the right one). You can post the results here online

(template in the files section, have them also send you a PDF via Email). I

suggest you think about purchasing Cutlers books, lots of valuable

info there.

Your son is 5, ours was about 4.5 when we started the process and have done

it mostly on our own, our only regret is not starting sooner.

Feel free to post any questions or you can also email me offline if you

like.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of ezpartiesrus

Sent: Monday, January 08, 2007 9:09 PM

Subject: [ ] new to site

Hello,

I am seeking information and personal results for those of you have

tried chelation. My son is 5 and is on the autism spectrum. He is non-

verbal and is quite delayed. My husband and I are thinking of trying

chelation and we would like to hear from families who have done or are

in the process. Where can I find a doctor? What is the average cost?

Are there side effects? How soon did you sdee results, if any? Your

input and information is greatly appreciated.

thank you

Eve

[Guest guest]

It's the DDI Hair Elements test you want. You can order it without a doctor

through Direct Lab Services and they'll give you a discount if you mention this

list.

S S

<p>Hello Eve,<br>

First thing you want to do is send away to Direct Labs for a DDI Hair Test<br>

(make sure you order the right one). Good Luck !<br>

<br>

Neil<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Eve,

While my children were not as severly affected, my son had PDD like

symptoms and my daughter more the Hyperactive, bipolar type. My son

is fine motor delay and sensory integration as well.

We hair tested them, and they both show mercury problems, and some

other metals. We tried chelation, and with the first round we saw

changes that were very good. So we continued. My son had done 17

rounds with dmsa/ala and is aiming towards normal now. The PDD

symptoms are gone, he is in a regular preschool, his fine motor is

almost corrected. I have seen so many things go away with chelation.

We still have a road to go, as chelation is a long process, but well

worth trying to see if it will help your child. My daughter no

longer acts bipolar and has settle down. She is positive, and

enjoying life for the first time. I have even undergone changes for

the better with chelation on myself. It is too easy of a thing not

to try it.

We are not using a doctor because there are not any in our area that

know what they are doing. We use Andy's books as our guide and this

message board. I educated myself on the protocol, vitamins,

minerals, nutrition and toxicology with metals. Most of what you

need to know is right in the files of this board. Further

information are in Andy's books. You can use a doc if you can find

one willing to use Andy's protocol to safely chelate your child.

Many DAN! do not use safe protocols and are VERY expensive. There

are good ones too though I am sure.

For us I used the money to buy dmsa and the supplements and books

that we needed. We saw results with the first round.

It costs us about $40 a month in supplements roughly. Some months a

bit more, some less, depends what we run out of. Some people need

more, some less. It will depend on what your child needs. The ALA is

cheap, and dmsa is $28 a bottle but last about three months for

three of us. Likely longer for just one child.

You can bargain shop for some things, as long as they are natural

and decent quality. No doubt it cost money but far less than paying

special doctors to tell me nothing is wrong with my son. His PDD

specialist was $650. And they told me nothing other than he

was " quirky " . And yeah, probably metals so keep doing whatever I

was doing that was working. Not very useful at all. Others here can

recomend docs that might be good.

>

> Hello,

>

> I am seeking information and personal results for those of you

have

> tried chelation. My son is 5 and is on the autism spectrum. He is

non-

> verbal and is quite delayed. My husband and I are thinking of

trying

> chelation and we would like to hear from families who have done or

are

> in the process. Where can I find a doctor? What is the average

cost?

> Are there side effects? How soon did you sdee results, if any?

Your

> input and information is greatly appreciated.

>

>

> thank you

> Eve

>

[Guest guest]

>

>. Where can I find a doctor?

I didn't use one.

> What is the average cost?

I've never separated out chelation costs from other supplements such

as enzymes, so it's hard to say exactly. Totally a guess but I'd say

less than $75 a month.

> Are there side effects?

Mostly yeast. As you go along though you should see positive things

mixed in with anything negative.

> How soon did you sdee results, if any?

The very first round.

You can get lots of info from reading the files of the list

(especially Love Letters, the supp file, and the Andy Index), and

using the onibasu search engine on the home page to investigate

particular subjects further. Good luck.

Nell

[Guest guest]

> I am seeking information and personal results for those of you have

> tried chelation.

Information

http://www.danasview.net/parent3.htm#chelation

My son's results, scroll down to the middle of this page

http://www.danasview.net/myson.htm

My results

http://www.danasview.net/my_ala.htm

>>My son is 5 and is on the autism spectrum. He is non-

> verbal and is quite delayed.

My son was 5-1/2 when I started chelating him. At that time, he was

mostly non-verbal and VERY delayed.

Dana

[Guest guest]

Eve,

we see Dr. Megson in Richmond, Va. She is noted as having the highest

recovery rate of autistic children. First visit is $600, follow-up every 3-4

months at $195. We began chelating with transdermal DMSA 3 months ago. We've

seen a lot of improvement but our son is nowhere near recovered. No

side-effects initially. Around his 5th treatment my son became pale and seemed

not to feel well. Dr. Megson advises to take things slowly, and when negative

reactions occur, to take a break. We have and we'll began again next week.

Keep us posted.

Sissy

[ ] new to site

Hello,

I am seeking information and personal results for those of you have

tried chelation. My son is 5 and is on the autism spectrum. He is non-

verbal and is quite delayed. My husband and I are thinking of trying

chelation and we would like to hear from families who have done or are

in the process. Where can I find a doctor? What is the average cost?

Are there side effects? How soon did you sdee results, if any? Your

input and information is greatly appreciated.

thank you

Eve

[Guest guest]

That should not be happening. Definatley go back to the ortho asap and have them fix it. Don't put a band back on the baby if there is any redness that does not go away after an hour.

Let us know how your baby is doing after you see the ortho!!!

Jen and LuliLeft Tort - Right Plagio - Hanger Band Grad - CATallulah Jayne -AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

This is the first week my daughter had the helmet on. She had a red

sore and within an hour it split and was bleeding. Is this going to

happen all of the time? We are going back to the ortho to get re-

fitted.

[Guest guest]

this is not normal. a few adjustments at the beginning are normal but

open sores are a problem, and don't happen that often. usually you

have to leave the band off until it is completely healed (and the band

is adjusted.

Poor little thing. When you go to the ortho make sure you think the

fit is good (as much as you can), and maybe do some additional skin

checks so any red spot doesn't get that bad again.

Please let us know how she does.

-christine

mom to sydney/ 14 mo/ starband grad 10-06

>

> This is the first week my daughter had the helmet on. She had a red

> sore and within an hour it split and was bleeding. Is this going to

> happen all of the time? We are going back to the ortho to get re-

> fitted.

>

[Guest guest]

I agree...any sores and bleeding are NOT normal. All red spots should fade within an hour. If not then work with the ortho to correct the problem asap. Hopefully, you are able to get this problem corrected right away and hopefully it doesn't happen again as it shouldn't happen in the first place. AZ 8 month old son, DOC bandSheila <lotspeis@...> wrote: Welcome! A red bleeding sore is NOT normal and should NOT happen all the time.

Which brand of helmet do you have?? Hopefully the ortho can adjust it properly and she won't have any more issues. If the spots become problematic you can often ask for a new band - free of charge - if the ortho can't get it adjusted properly. Good luck!Sheila, mom to , 18 months, DOCband>> This is the first week my daughter had the helmet on. She had a red > sore and within an hour it split and was bleeding. Is this going to > happen all of the time? We are going back to the ortho to get re-> fitted.>

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