PLS Trial

[Guest guest]

http://clinicalstudies.info.nih.gov/detail/A_2004-N-0017.html

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Regards and best wishes,

Reyerse :-) your ALS Pal

jreyerse@... tel:

Primary Lateral Sclerosis Web Site

http://www.geocities.com/freyerse/

ALS British Columbia Web Site

http://members.shaw.ca/als-bc/index.html

Come Share Society Web Site

http://www.comeshare.ca

[Guest guest]

The tests that you'll read about if you click the link below are the exact ones

I had this past summer. A couple of them were grueling. For the EMG,

I had about 50 or 60 electrodes " screwed " into my head. They actually broke the

skin of my scalp to get a good contact. The test was over 2 hrs. long, wearing

a very tight cap to hold the electrodes in place, then I had to concentrate

very hard when tapping my finger, not blinking for 4 seconds before or after I

tapped. The blinking interferred with the EMG. After 2 hrs. I had a very bad

headache. It took me about 3 weeks to recover from that 1 1/2 days of testing

this year. This was the most difficult and grueling testing I've had in the 4

years I've gone to NIH. Just so you know what to expect if you get into this

trial. It isn't a picnic, but hopefully they can learn something from it.

Take care!

Laurel

PLS Trial

http://clinicalstudies.info.nih.gov/detail/A_2004-N-0017.html

--

Regards and best wishes,

Reyerse :-) your ALS Pal

jreyerse@... tel:

Primary Lateral Sclerosis Web Site

http://www.geocities.com/freyerse/

ALS British Columbia Web Site

http://members.shaw.ca/als-bc/index.html

Come Share Society Web Site

http://www.comeshare.ca