Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Yes, I have/had very high antibodies, and my TSH was a .006 awhile back. Then my last testing on November 1st, I suddenly had a very low Free T4 again, with a Free T3 right back barely in the midrange. But it was the TSH that had me more than upset, at a .9 this time. This is one time that I think that the TSH is very important, with high antibodies, particularly. Need I say, I don't WANT my thyroid stimulated any more than necessary. Hashi's patients have a higher rate of thyroid cancer, among thyroid patients, period, hands down. I suspect there are nodules on my thyroid at this point, but I don't have a picture of it to prove it. However, whatever was/is there I know has shrunken, but it rears it's head at intervals. I say 0 TSH is the best for us, with eventual total replacement, as long as my body doesn't start rejecting the hormone, i.e., real hyperthyroidism, as in WAY overboard. Re: I need some help > > In a message dated 12/14/2004 1:25:11 PM Eastern Standard Time, > klb58@... writes: > > > > > > > is that because I am on a less than optimal dose of Armour? > > > > let me be a bit clearer on that. antibodies can flare up even on an optimal > dose of Armour i would think. that's the nature of autoimmune disease. but > that's why a lot of us feel better when we're taking more Armour and the > thyroid is not producing so much...because then the antibodies slow down (hopefully) > their attack on the thyroid gland. It's my opinion that with Hashi's that > most folks will do better having the suppressed TSH for this reason...the > thyroid is not so much an enemy anymore to the antibodies. > cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 In a message dated 12/17/2004 12:15:37 PM Eastern Standard Time, marin@... writes: > whatever > was/is there I know has shrunken, but it rears it's head at intervals. I > say 0 TSH is the best for us, with eventual total replacement, as long as my > body doesn't start rejecting the hormone, i.e., real hyperthyroidism, as in > WAY overboard. > > , I agree with your statements. I too think it is better for a Hashi's patients to have a suppressed TSH. I'll be glad when the docs catch on to this. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 In a message dated 12/18/2004 10:18:33 AM Eastern Standard Time, kguynn@... writes: > How high is very high. I haven't been able to find a range. Mine 63. My > sister had Hashi's and then cancer. What do we need to be looking for? > > do you mean your antibodies are 63? if so, that's not a high number of antibodies. however, number of antibodies does not have a direct relation to thyroid damage. antibodies may have decreased after causing thyroid damage. some folks with low antibodies have worse symptoms than those with high antibodies. It's the having antibodies - denoting Hashi's - that is important and significant. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 How high is very high. I haven't been able to find a range. Mine 63. My sister had Hashi's and then cancer. What do we need to be looking for? Kate At 10:30 AM 12/16/2004, you wrote: >Yes, I have/had very high antibodies, and my TSH was a .006 awhile back. >Then my last testing on November 1st, I suddenly had a very low Free T4 >again, with a Free T3 right back barely in the midrange. But it was the TSH >that had me more than upset, at a .9 this time. This is one time that I >think that the TSH is very important, with high antibodies, particularly. >Need I say, I don't WANT my thyroid stimulated any more than necessary. >Hashi's patients have a higher rate of thyroid cancer, among thyroid >patients, period, hands down. I suspect there are nodules on my thyroid at >this point, but I don't have a picture of it to prove it. However, whatever >was/is there I know has shrunken, but it rears it's head at intervals. I >say 0 TSH is the best for us, with eventual total replacement, as long as my >body doesn't start rejecting the hormone, i.e., real hyperthyroidism, as in >WAY overboard. > > > > Re: I need some help > > > > > > In a message dated 12/14/2004 1:25:11 PM Eastern Standard Time, > > klb58@... writes: > > > > > > > > > > > is that because I am on a less than optimal dose of Armour? > > > > > > > let me be a bit clearer on that. antibodies can flare up even on an >optimal > > dose of Armour i would think. that's the nature of autoimmune disease. >but > > that's why a lot of us feel better when we're taking more Armour and the > > thyroid is not producing so much...because then the antibodies slow down >(hopefully) > > their attack on the thyroid gland. It's my opinion that with Hashi's that > > most folks will do better having the suppressed TSH for this reason...the > > thyroid is not so much an enemy anymore to the antibodies. > > cindi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 In a message dated 12/18/2004 3:38:25 PM Eastern Standard Time, martian.303@... writes: > hmmm - I do't have my orignal blood work, where my anti-bodies were low, so > the dr. and bloodwork implied that I didn't have Hashi's. > Are you saying that I still might? even though my numbers were 'normal' ? > 63 on either Thryoid Peroxidase or Thyroid Antithyroglobulin antibodies WOULD indicate Hashi's. It's not much over, but it's over and sufficient for a diagnosis of Hashi's. TPO range is 0 -34 and the globulin one is 0-40. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 In a message dated 12/18/2004 3:38:25 PM Eastern Standard Time, martian.303@... writes: > I don't honestly recall what they were. > i would write and request a copy. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 In a message dated 12/18/2004 4:16:07 PM Eastern Standard Time, MamaMaha@... writes: > So then do you mean that if tests show there are antibodies present > regardless of their range, that means something? But if the antibodies results are > zero on the report then that means there aren't any so nothing to worry about? > What's the treatment if antibodies are present? > what they say is that some portion of the population do have thyroid antibodies. but it has to be over that range to be diagnosed as Hashimoto's. As Shoman puts it, knowing if you have Hashi's makes all the difference in the world. Hashi's is an autoimmune disease and that means you have to deal with the autoimmune aspect of the disease as well as the resultant hypo. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 In a message dated 12/18/2004 4:38:58 PM Eastern Standard Time, martian.303@... writes: > this is what I was trying to ask! LOL > if a person has ANY thyroid antibodies...even if they are below range...I would be suspicious that they might increase. And I would be sure to be tested again in the future to see if they had risen to diagnosis level. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 So then do you mean that if tests show there are antibodies present regardless of their range, that means something? But if the antibodies results are zero on the report then that means there aren't any so nothing to worry about? What's the treatment if antibodies are present? Re: I need some help do you mean your antibodies are 63? if so, that's not a high number of antibodies. however, number of antibodies does not have a direct relation to thyroid damage. antibodies may have decreased after causing thyroid damage. some folks with low antibodies have worse symptoms than those with high antibodies. It's the having antibodies - denoting Hashi's - that is important and significant. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 hmmm - I do't have my orignal blood work, where my anti-bodies were low, so the dr. and bloodwork implied that I didn't have Hashi's. Are you saying that I still might? even though my numbers were 'normal' ? I don't honestly recall what they were. Cris Re: I need some help In a message dated 12/18/2004 10:18:33 AM Eastern Standard Time, kguynn@... writes: > How high is very high. I haven't been able to find a range. Mine 63. My > sister had Hashi's and then cancer. What do we need to be looking for? > > do you mean your antibodies are 63? if so, that's not a high number of antibodies. however, number of antibodies does not have a direct relation to thyroid damage. antibodies may have decreased after causing thyroid damage. some folks with low antibodies have worse symptoms than those with high antibodies. It's the having antibodies - denoting Hashi's - that is important and significant. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 I interjected into someone elses post -oops... I don't know what my levels were. just that they were 'normal' and she said I didn't have hashi's. I was surprised, because I had nodules at one point, and had lots of the symptoms of hashi's. Cris Re: I need some help In a message dated 12/18/2004 3:38:25 PM Eastern Standard Time, martian.303@... writes: > hmmm - I do't have my orignal blood work, where my anti-bodies were low, so > the dr. and bloodwork implied that I didn't have Hashi's. > Are you saying that I still might? even though my numbers were 'normal' ? > 63 on either Thryoid Peroxidase or Thyroid Antithyroglobulin antibodies WOULD indicate Hashi's. It's not much over, but it's over and sufficient for a diagnosis of Hashi's. TPO range is 0 -34 and the globulin one is 0-40. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 this is what I was trying to ask! LOL Cris Re: I need some help do you mean your antibodies are 63? if so, that's not a high number of antibodies. however, number of antibodies does not have a direct relation to thyroid damage. antibodies may have decreased after causing thyroid damage. some folks with low antibodies have worse symptoms than those with high antibodies. It's the having antibodies - denoting Hashi's - that is important and significant. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Got it! I'll ask my dr. to retest them the next time she does testing. That isn't supposed to be for several months though, at this point. Cris Re: I need some help In a message dated 12/18/2004 4:38:58 PM Eastern Standard Time, martian.303@... writes: > this is what I was trying to ask! LOL > if a person has ANY thyroid antibodies...even if they are below range...I would be suspicious that they might increase. And I would be sure to be tested again in the future to see if they had risen to diagnosis level. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 And keep in mind too that having one autoimmune disease puts you at a greater risk of getting another. That's why it's good to know if you have one. Louise > In a message dated 12/18/2004 4:16:07 PM Eastern Standard Time, > MamaMaha@M... writes: > > > So then do you mean that if tests show there are antibodies present > > regardless of their range, that means something? But if the antibodies results are > > zero on the report then that means there aren't any so nothing to worry about? > > What's the treatment if antibodies are present? > > > > what they say is that some portion of the population do have thyroid > antibodies. but it has to be over that range to be diagnosed as Hashimoto's. As > Shoman puts it, knowing if you have Hashi's makes all the difference in the > world. Hashi's is an autoimmune disease and that means you have to deal with > the autoimmune aspect of the disease as well as the resultant hypo. > Cindi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 If you're talking about the height of the antibodies, mine were almost 2000 and the other one well over 1000, for both of them for Hashi's. When it comes to the height of the thyroid hormone on lab ranges, it's going to be an individual thing, with different circumstances and reasons for these great heights, from person to person. Re: I need some help > > How high is very high. I haven't been able to find a range. Mine 63. My > sister had Hashi's and then cancer. What do we need to be looking for? > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Yes, mine were 63. That's what I thought but someone else was talking about having high antibodies...... Kate At 09:24 AM 12/18/2004, you wrote: >In a message dated 12/18/2004 10:18:33 AM Eastern Standard Time, >kguynn@... writes: > > > How high is very high. I haven't been able to find a range. Mine 63. My > > sister had Hashi's and then cancer. What do we need to be looking for? > > > > > >do you mean your antibodies are 63? if so, that's not a high number of >antibodies. however, number of antibodies does not have a direct relation to >thyroid damage. antibodies may have decreased after causing thyroid >damage. some >folks with low antibodies have worse symptoms than those with high >antibodies. > It's the having antibodies - denoting Hashi's - that is important and >significant. >cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 In a message dated 12/19/2004 11:05:45 AM Eastern Standard Time, kguynn@... writes: > I think there is some confusion. I'm the one who said mine were 63. Yes, > I have Hashi's. I was questioning when someone was talking about high vs > low antibodies. I wanted to know if there was a so called range of > high-low on the aniti-bodies. > > did i confuse folks? I guess one could say antibodies over 1000 were way high...and those in the low part of the range (over 34 is the diagnosis point)....but I think what i wanted to get across was that the numbers of antibodies does not correlate with symptoms. A person with low antibodies can have worse symptoms than a person with high antibodies. It's all very individual and one never knows what stage of the disease it is. Antibodies can go down after launching an attack for example. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Cindi I think there is some confusion. I'm the one who said mine were 63. Yes, I have Hashi's. I was questioning when someone was talking about high vs low antibodies. I wanted to know if there was a so called range of high-low on the aniti-bodies. Kate At 03:36 PM 12/18/2004, you wrote: >I interjected into someone elses post -oops... > I don't know what my levels were. just that they were 'normal' and she > said I didn't have hashi's. I was surprised, because I had nodules at one > point, and had lots of the symptoms of hashi's. >Cris > > Re: I need some help > > >In a message dated 12/18/2004 3:38:25 PM Eastern Standard Time, >martian.303@... writes: > > > hmmm - I do't have my orignal blood work, where my anti-bodies were > low, so > > the dr. and bloodwork implied that I didn't have Hashi's. > > Are you saying that I still might? even though my numbers were 'normal' ? > > > >63 on either Thryoid Peroxidase or Thyroid Antithyroglobulin antibodies WOULD >indicate Hashi's. It's not much over, but it's over and sufficient for a >diagnosis of Hashi's. >TPO range is 0 -34 and the globulin one is 0-40. >Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Thanks ! I was just curios. At 06:22 PM 12/18/2004, you wrote: >If you're talking about the height of the antibodies, mine were almost 2000 >and the other one well over 1000, for both of them for Hashi's. When it >comes to the height of the thyroid hormone on lab ranges, it's going to be >an individual thing, with different circumstances and reasons for these >great heights, from person to person. > > > > Re: I need some help > > > > > > How high is very high. I haven't been able to find a range. Mine 63. My > > sister had Hashi's and then cancer. What do we need to be looking for? > > > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 It looked like there was confusion on WHO said they had antibodies of 63. I was me and not Cris. Thanks for you info! Kate At 10:17 AM 12/19/2004, you wrote: >In a message dated 12/19/2004 11:05:45 AM Eastern Standard Time, >kguynn@... writes: > > > I think there is some confusion. I'm the one who said mine were 63. Yes, > > I have Hashi's. I was questioning when someone was talking about high vs > > low antibodies. I wanted to know if there was a so called range of > > high-low on the aniti-bodies. > > > > > >did i confuse folks? >I guess one could say antibodies over 1000 were way high...and those in the >low part of the range (over 34 is the diagnosis point)....but I think what i >wanted to get across was that the numbers of antibodies does not correlate >with >symptoms. A person with low antibodies can have worse symptoms than a person >with high antibodies. It's all very individual and one never knows what >stage >of the disease it is. Antibodies can go down after launching an attack for >example. >Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 It is said by many authorities that a high range of people have some of these antibodies, and they go on to say that that's normal. I don't believe it. What I think is that, when the antibodies are low, it is either hashi's waiting to happen, or the antibodies may have been higher at one time, and are waxing and waning, in and out. The fact that there are ANY antibodies there at all says something about that person, and, if they have these tests run in the future, at a time when they're feeling really bad from this disease, I think they'll find that they're higher at some point and lower at others. Different labs have different ranges and different ways of doing the blood tests for this. On mine (HealthCheckUSA), one of the antibodies they stop counting after it goes over 1000, so there's not telling how many of this particular antibody that there really is in my body. Some of them have a range that just says something like < 40 is normal and that sort of result. Depends on the lab running the tests. You can have the antibodies and not have quite developed the disease itself. There's no telling how many yrs I had these antibodies, maybe even as a child, for all I know. Who would know, since the test was never run until I ran it myself. A huge # of these antibodies does do massive destruction on the gland, or wherever they are located at, including standing outside the cells, blocking the thyroid hormone receptors. Someone who had low thyroid antibodies one yr, may have high ones the next, depending on that person. Re: I need some help > > > > > > > > > > How high is very high. I haven't been able to find a range. Mine 63. My > > > sister had Hashi's and then cancer. What do we need to be looking for? > > > > > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 That make sense. My test showed the normal to be under 2. Mine was 64, and so my doctor said you have Hashi's. My Dr said that once they are there we don't need to test for them again, I'm assuming that is correct. If nt, what would be the benefit of continuing to test them? I just need to work on her on the Free T3 and no TSH. She took an article to read last time I was in and we came to an agreement on the meds (Armour dosing) for now. She is very open minded. I am working on " educating her " as I become more educated. I am starting to feel better. But of course the holiday stresses etc. I have a business matter that had my stress through the wall yesterday and hopefully with have a resolution tomorrow. At least this week I don't feel like I have a lump in my throat! Kate At 05:52 PM 12/19/2004, you wrote: >It is said by many authorities that a high range of people have some of >these antibodies, and they go on to say that that's normal. I don't believe >it. What I think is that, when the antibodies are low, it is either hashi's >waiting to happen, or the antibodies may have been higher at one time, and >are waxing and waning, in and out. The fact that there are ANY antibodies >there at all says something about that person, and, if they have these tests >run in the future, at a time when they're feeling really bad from this >disease, I think they'll find that they're higher at some point and lower at >others. Different labs have different ranges and different ways of doing >the blood tests for this. On mine (HealthCheckUSA), one of the antibodies >they stop counting after it goes over 1000, so there's not telling how many >of this particular antibody that there really is in my body. Some of them >have a range that just says something like < 40 is normal and that sort of >result. Depends on the lab running the tests. You can have the antibodies >and not have quite developed the disease itself. There's no telling how >many yrs I had these antibodies, maybe even as a child, for all I know. Who >would know, since the test was never run until I ran it myself. A huge # of >these antibodies does do massive destruction on the gland, or wherever they >are located at, including standing outside the cells, blocking the thyroid >hormone receptors. Someone who had low thyroid antibodies one yr, may have >high ones the next, depending on that person. > > > > Re: I need some help > > > > > > > > > > > > > > How high is very high. I haven't been able to find a range. Mine 63. >My > > > > sister had Hashi's and then cancer. What do we need to be looking >for? > > > > > > > > Kate > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 When I was tested for antibodies the range was >70 and my results were >70. I called Quest labs and they said that was as high as their results went. So my anitbodies could have been 71 or 700 or 7000. Louise > In a message dated 12/19/2004 11:05:45 AM Eastern Standard Time, > kguynn@t... writes: > > > I think there is some confusion. I'm the one who said mine were 63. Yes, > > I have Hashi's. I was questioning when someone was talking about high vs > > low antibodies. I wanted to know if there was a so called range of > > high-low on the aniti-bodies. > > > > > > did i confuse folks? > I guess one could say antibodies over 1000 were way high...and those in the > low part of the range (over 34 is the diagnosis point)....but I think what i > wanted to get across was that the numbers of antibodies does not correlate with > symptoms. A person with low antibodies can have worse symptoms than a person > with high antibodies. It's all very individual and one never knows what stage > of the disease it is. Antibodies can go down after launching an attack for > example. > Cindi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 In a message dated 12/21/2004 10:12:30 AM Eastern Standard Time, marin@... writes: > Many many sources that I've read have said that the height of the > thyroid antibodies directly correlate with the height of destruction going > on at that time, and, as a result, the way a person is feeling at the time. > but if it's later in the disease, and the destruction is very extensive, antibodies would be lower. a person then...with lower antibodies (maybe in the hundreds instead of the thousands) could have more extensive...and non-relenting hypo symptoms/damage than someone who is having a flareup with high antibodies in the middle of the disease who goes thru a bad spell of symptoms while the antibodies are attacking. So I think I may tend to agree that it's not necessary to retest antibodies. Once you know you have Hashi's, you know you have to work with the autoimmune part of the disease and make sure your thyroid hormone levels stay optimal. Testing for antibodies again on a routine basis would serve no purpose that I can see. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 In a message dated 12/21/2004 10:12:30 AM Eastern Standard Time, marin@... writes: > There are many people who have had a 70 count > of these antibodies at the time one test was taken, only to find out several > yrs later that they have grossly high counts, and THAT is usually when they > are feeling their worst. There's got to be a reason for that. > I would say that's just the progression of the disease...and one reason why's it 's so important to be diagnosed early in the disease - and get Armour - which slows down the destruction. I would say a person who like the person above - was one who didn't get diagnosed or didn't take Armour to begin with. Or was going thru other illness or stress which the autoimmune part of the disease then allowed an antibody flare. Cindi Quote Link to comment Share on other sites More sharing options...
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