Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Yes Jeannie....I have occasional bouts where my neck goes very rigid....followed by real weakness. It can last for an hour...or a few days. Makes my head bob around a bit! Di....PLS....Canada > Hi Group, > Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Jeannie, I've noticed when I get my hair done or if I sit and hold my neck down for any length of time that it is hard to lift my neck up again--so yes I have noticed that! Sue Me > Hi Group, > Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 I do. It is just plain hard to hold my head up a lot of the time. Jeanne Young wrote:Hi Group, Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 --- Hi Jennie: I have problems with my neck but I just saw a nerosurgeon at Vanderbilt in Nashville Tn. and he said that my little canal that carries the fluid from my brain down my spinal cord was closing up when he compared a mri from march 2003 to a mri that I had done in march 2005 and he said they see alot of that in als and pls people and said doing surgery would probably make it worse and only if it closed up and choked the fluid flow off would he even consider doing surgery but it does feel like a bad neck weakness.I don't know if I helped you any but they say that is what is causing my neck weakness. Danny in West Tenn. In PLS-FRIENDS , " Jeanne Young " <pinkflamingo984@h...> wrote: > Hi Group, > Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 I wouldn't actually call it muscle weakness, but I have severe arthritis in my neck and it gets stiff and tight and pain radiates into my upper back from my neck and there are times when my head feels too heavy for my neck. I just found out this spring that I have such bad arthritis in my neck and I've had problems with my neck and upper back for years, part of the reason I went to the wheelchair all the time. Have you ruled out arthritis in your neck? Xrays showed mine really well. Donna HSP Ca dianamj_canuck wrote: Yes Jeannie....I have occasional bouts where my neck goes very rigid....followed by real weakness. It can last for an hour...or a few days. Makes my head bob around a bit! Di....PLS....Canada > Hi Group, > Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 Hi Jeanne. I posted a similar question back in january but my problem was more neck pain which most probably orginiated from neck weakness. I found out I had whiplash which took till now for the pain to completely go away. I was told by my neuro that it is easy for us to get whiplash or a " pain in the neck " because we do have a weakness there. There are 2 great exercises you can do to strengthen your neck. These helped me with the pain also. Just do a " google " on " neck strengthening exercises " . Maureen in Australia. > Hi Group, > Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 Yes, Jeannie. I have neck muscle weakness and have had even before other symptoms of PLS appeared (I DO think it's related though). I noticed at least ten years ago in an exercise class that I couldn't raise my head up from the floor without using my hands to help, unlike most others in the class. Also, while watching TV I'll often drop my head, even when I'm only partly dozing. My husband rarely drops his head, and if he does it drops backward. I'm now making sure to do neck exercises as part of my exercise program, hoping that will ward off disaster!! Regards, Mata > Hi Group, > Does anyone else out there have problems with neck muscle weakness? Thanks in advance to any replies.........Jeannie/nj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 Every time I go to the UCSF ALS Research Center for my " evaluation " , neck pain is always one of the questions. To now, I've always been able to report no neck pain and hope it stays that way. Today was my appointment and I'd skipped a couple appointments so hadn't been in almost 1-1/2 years. I knew I had progressed but I was surprised at how much less arm strength I had. Also my neck did not have as much strength either (but now I can't remember if it was when she was pushing it back or pulling it forward, but I think pushing it back). Also my breathing numbers weren't as good either. She told me not to be discouraged because it wasn't significant especially given it had been almost 1-1/2 years but I certainly couldn't leave their office all smiles. I know I have been lax in some things I could be doing (like breathing exercises) and trying to take off a few pounds so now I have a goal to see if I can get those numbers back by the time I go back. G. Quote Link to comment Share on other sites More sharing options...
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