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NCU~Livi's Ears

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Hi Gang, I have to ask a few more questions about ears to anyone that can answer. I took Livi to the otolaryngologist yesterday and he spent a great deal of time looking at her ear under a microscope and cleaning it out (AGAIN) with a little vaccum cleaner. He then told me (I hate going to these appointments alone) that she has some polyops in her ear and it looks and smells (yep he said smells which hurt Livi's feelings) like a serious infection. He went on to say it appeared the mastoid was severely infected as well and had no idea what other involvment there could be but the infection could even pass to the brain if not treated immediately. I was so scared to ask what that meant, not scared he wouldn't answer but of what the answer would be. The current infection (one of hundreds in her 6 years of life) has lasted a little under four months. He ordered a CT scan of the area, will they put her to sleep?

The only thing he told me about when the define where the infection has spread is that they will have to scrap the bone involved. Does anyone know anything about the mastoid? If an infection spreads this far, what can happen? Do I want to know how many stitches she will need or if they will have to shave off her pretty hair?

I remember when they attempted to patch the hole in her ear drum and all the stitches around her ear and the area of hair they shaved. She had to get her beautiful long hair cut off to a bob (which of course she was still gorgeous to me) but it upset her.

Anyway, anyone have any thoughts?

~mom of the three you know whos

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,

My son had a CAT scan of his sinuses at age 2. We did give him something

which calmed him down but he was not asleep. If she can hold still, they

may not give her anything. I also wore a lead apron and stood by him

holding his hand during the procedure. They will let you do that if you are

not pregnant and with your recent operation, I think you qualify.

I do not know anything about the operation. My ears were operated on as

well in '89 and '91. They only cut a small portion of my hair to secure a

drape. In my case they gave me the equivalent of novacane in the ear,

peeled back the ear drum and drilled out my stapes. I never had any

stitches but my procedure was different from hers.

I have heard the ear-brain connection before with a friend of mine. Are the

antibiotics not working? My son had constant ear infections from age 2 to

age 3.5. In the winter, they put him on a low dose of amoxil to keep his

ears dry - the other option was tubes. He is 9 now and fine. There are

days when I swear he does not hear what I am saying, but he is just

" practicing " to be a husband some day!!!

I hope this helps.

in Pa.

>

>Reply-To: urticaria

>To: " Urticaria (AT) Egroups (DOT) Com " urticaria >

>Subject: NCU~Livi's Ears

>Date: Thu, 24 Jan 2002 08:48:24 -0500

>

>Hi Gang, I have to ask a few more questions about ears to anyone that can

>answer. I took Livi to the otolaryngologist yesterday and he spent a great

>deal of time looking at her ear under a microscope and cleaning it out

>(AGAIN) with a little vaccum cleaner. He then told me (I hate going to

>these appointments alone) that she has some polyops in her ear and it looks

>and smells (yep he said smells which hurt Livi's feelings) like a serious

>infection. He went on to say it appeared the mastoid was severely infected

>as well and had no idea what other involvment there could be but the

>infection could even pass to the brain if not treated immediately. I was

>so scared to ask what that meant, not scared he wouldn't answer but of what

>the answer would be. The current infection (one of hundreds in her 6 years

>of life) has lasted a little under four months. He ordered a CT scan of

>the area, will they put her to sleep?

>

>The only thing he told me about when the define where the infection has

>spread is that they will have to scrap the bone involved. Does anyone know

>anything about the mastoid? If an infection spreads this far, what can

>happen? Do I want to know how many stitches she will need or if they will

>have to shave off her pretty hair?

>

>I remember when they attempted to patch the hole in her ear drum and all

>the stitches around her ear and the area of hair they shaved. She had to

>get her beautiful long hair cut off to a bob (which of course she was still

>gorgeous to me) but it upset her.

>

>Anyway, anyone have any thoughts?

>

>~mom of the three you know whos

_________________________________________________________________

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Hi , What procedure did you have done? She most likely will hold

still, she is a very passive kid. She has been on every antibiotic known to

mankind since birth. The recent four month infection we have tried them all

one after the other including steriods. He did write a script however, for

a cortosteriod with an acid in it to try to dissolve some of the polyop. We

have tried oral antibiotics and ear drops and NOTHING touches it. Even

tried vinegar with sterile water and it just made her ear run more. She has

had tubes twice and the second set is what left the hole which has caused

all this trouble. She has constant running of her ears. Her neck usually

has some running down and I can't even tell you how much she rubs on her

shirt sleeves. Thanks for answering. Love,

NCU~Livi's Ears

> >Date: Thu, 24 Jan 2002 08:48:24 -0500

> >

> >Hi Gang, I have to ask a few more questions about ears to anyone that can

> >answer. I took Livi to the otolaryngologist yesterday and he spent a

great

> >deal of time looking at her ear under a microscope and cleaning it out

> >(AGAIN) with a little vaccum cleaner. He then told me (I hate going to

> >these appointments alone) that she has some polyops in her ear and it

looks

> >and smells (yep he said smells which hurt Livi's feelings) like a serious

> >infection. He went on to say it appeared the mastoid was severely

infected

> >as well and had no idea what other involvment there could be but the

> >infection could even pass to the brain if not treated immediately. I was

> >so scared to ask what that meant, not scared he wouldn't answer but of

what

> >the answer would be. The current infection (one of hundreds in her 6

years

> >of life) has lasted a little under four months. He ordered a CT scan of

> >the area, will they put her to sleep?

> >

> >The only thing he told me about when the define where the infection has

> >spread is that they will have to scrap the bone involved. Does anyone

know

> >anything about the mastoid? If an infection spreads this far, what can

> >happen? Do I want to know how many stitches she will need or if they

will

> >have to shave off her pretty hair?

> >

> >I remember when they attempted to patch the hole in her ear drum and all

> >the stitches around her ear and the area of hair they shaved. She had to

> >get her beautiful long hair cut off to a bob (which of course she was

still

> >gorgeous to me) but it upset her.

> >

> >Anyway, anyone have any thoughts?

> >

> >~mom of the three you know whos

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> urticaria-unsubscribe

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

>

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,

That sounds awful. But, the doctor (compared to some of the others you have

seen) did seem genuinely interested and concerned. From your description of

the exam, there was a sense of urgency there.

Get that CAT scan done immediately. The hospital staff are usually pretty

good with kids. Take her into the room and show her the CAT scan machine.

Tell her that the doctor is going to be taking pictures of her - that is all

an x-ray is (over simplification here but she will be able to relate to it).

The only difference is that the " picture " will be on the inside of the

body and in this case her ear. Just like a regular picture, she has to be

still or it will be blurry. The machine may make some noise and the bed

will move her into position. You can stand there or sit in the corner, it

is up to you. If she asks about the apron, tell her that the doctor doesn't

want Mommy in the picture too.

I have a fairly common hearing problem. My stapes is fused and this is

genetic. It didn't start until I was in my mid-twenties. I had constant

ringing in my ear and a popping sound if I increased my blood flow via

exercise, vigorous housecleaning, etc. Gradually, my hearing started to

lessen. I saw many ear doctors but no one could tell me what it was.

Around age 29, I left Pa for graduate school in Florida. I had a hard time

hearing and went to see a doctor down there. He was stumped but he did one

last test on me that shed some light on the source of the hearing loss. He

struck a tuning fork and first placed it by my ear and then put the handle

of it (while it was still ringing) on my forehead. He asked me which was

louder. I could hear it very loudly when the handle touched me forehead or

tooth. He concluded that my hearing was conductive - I could hear through

my bones (!!) but not my ear. It was caused by a fused stapes which could

not vibrate to transmit the sound.

After graduate school, we moved up the New England and my husband started

calling specialists. He found a doctor at Mass Eye and Ear who had created

a prosthesis to compensate for the fused bones in the ear. The procedure is

called a stapendectomy. I have one of these devices in each ear and the

left one is starting to give me trouble. We are back in Pa now but I went

up to Boston to see this doctor again around Thanksgiving because the left

ear is ringing again. He said he can " adjust " it to bring back some of my

hearing loss which is in the voice range.

This condition is not related to the urticaria - we have discussed it at

length, including the anesthesia that will be used because I am concerned of

a reaction. I have no dizziness, no ear infections or any ear problems for

that matter other than the hearing loss.

I hope this helps. Please keep me posted. My daughter is 5 and I can

really relate. She is never sick because she sucks her fingers. A nasty

habit that I also had as a kid that has now distorted her teeth. The good

news is that she is slowly dropping the habit and the adult teeth are not

impacted by this - yet. This kid is never sick because she is constantly

inoculating herself with these dirty fingers (my theory). So when she gets

sick, I panic because it has to be pretty severe to have an effect on her.

Last year we had one 5th grade student die from meningitis. In previous

years, there have been several day care children who expired quickly from

the same. The occurrence is " normal " but any child death hits me hard. So

when my daughter has a high fever and she says her neck is stiff, I go out

of my mind.

By the way, I noticed that you call your daughter " Livi " , we call ours

" Bibi " which is short for Bibiana.

in Pa.

_________________________________________________________________

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Hi , Thanks for the advice. I will certainly try to calm her fears.

Bibiana is a beautiful name, does it have an ethnic origin? Actually my

girls have english and turkish names. Their american grandparents call them

Kaitlin, Olivia and Alena and their turkish grandparents know them as Ceyda

(pronounced Jayda), Yasemin (turkish version of Jasmine pronounced

YAWSAWMIN) and Aysel (I~SELL funny huh? it is my mother in laws name) They

always get the giggles when they are introduced to turkish speaking people

by their turkish name. I hope someday they know it is part of their

heritage. Much Love, ~Alena's Mom

PS I am with you on the finger sucking anti germ thing. I swear although it

is as gross as even Kaitlin exposes herself to gross stuff by biting her

nails and that is why she never gets sick. Ok I probably won't find any

medical proof on that one but it works for her. Thankfully, she too is

slowly stopping that nasty habit.

Re: NCU~Livi's Ears

> ,

>

> That sounds awful. But, the doctor (compared to some of the others you

have

> seen) did seem genuinely interested and concerned. From your description

of

> the exam, there was a sense of urgency there.

>

> Get that CAT scan done immediately. The hospital staff are usually pretty

> good with kids. Take her into the room and show her the CAT scan machine.

> Tell her that the doctor is going to be taking pictures of her - that is

all

> an x-ray is (over simplification here but she will be able to relate to

it).

> The only difference is that the " picture " will be on the inside of the

> body and in this case her ear. Just like a regular picture, she has to be

> still or it will be blurry. The machine may make some noise and the bed

> will move her into position. You can stand there or sit in the corner, it

> is up to you. If she asks about the apron, tell her that the doctor

doesn't

> want Mommy in the picture too.

>

> I have a fairly common hearing problem. My stapes is fused and this is

> genetic. It didn't start until I was in my mid-twenties. I had constant

> ringing in my ear and a popping sound if I increased my blood flow via

> exercise, vigorous housecleaning, etc. Gradually, my hearing started to

> lessen. I saw many ear doctors but no one could tell me what it was.

> Around age 29, I left Pa for graduate school in Florida. I had a hard

time

> hearing and went to see a doctor down there. He was stumped but he did one

> last test on me that shed some light on the source of the hearing loss.

He

> struck a tuning fork and first placed it by my ear and then put the handle

> of it (while it was still ringing) on my forehead. He asked me which was

> louder. I could hear it very loudly when the handle touched me forehead

or

> tooth. He concluded that my hearing was conductive - I could hear through

> my bones (!!) but not my ear. It was caused by a fused stapes which could

> not vibrate to transmit the sound.

>

> After graduate school, we moved up the New England and my husband started

> calling specialists. He found a doctor at Mass Eye and Ear who had

created

> a prosthesis to compensate for the fused bones in the ear. The procedure

is

> called a stapendectomy. I have one of these devices in each ear and the

> left one is starting to give me trouble. We are back in Pa now but I went

> up to Boston to see this doctor again around Thanksgiving because the left

> ear is ringing again. He said he can " adjust " it to bring back some of my

> hearing loss which is in the voice range.

>

> This condition is not related to the urticaria - we have discussed it at

> length, including the anesthesia that will be used because I am concerned

of

> a reaction. I have no dizziness, no ear infections or any ear problems

for

> that matter other than the hearing loss.

>

> I hope this helps. Please keep me posted. My daughter is 5 and I can

> really relate. She is never sick because she sucks her fingers. A nasty

> habit that I also had as a kid that has now distorted her teeth. The good

> news is that she is slowly dropping the habit and the adult teeth are not

> impacted by this - yet. This kid is never sick because she is constantly

> inoculating herself with these dirty fingers (my theory). So when she

gets

> sick, I panic because it has to be pretty severe to have an effect on her.

> Last year we had one 5th grade student die from meningitis. In previous

> years, there have been several day care children who expired quickly from

> the same. The occurrence is " normal " but any child death hits me hard.

So

> when my daughter has a high fever and she says her neck is stiff, I go out

> of my mind.

>

> By the way, I noticed that you call your daughter " Livi " , we call ours

> " Bibi " which is short for Bibiana.

>

> in Pa.

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> urticaria-unsubscribe

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

>

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Yes, Bibiana is an old family name from Italy. She is the third person in

the 20th century to have it within our family. There are usually 3 given

this name in each century going back to the 1700's. My father-in-law, whose

sister's name is also Bibi was pleased. It means " Bible " and it was

the name of a Saint. In Italy, those given this name, celebrated their

birthday on the saint's day. We have high hopes of visiting Italy this

summer and looking up a few relatives. We don't speak the language but we

will manage.

>

>Reply-To: urticaria

>To: urticaria >

>Subject: Re: NCU~Livi's Ears

>Date: Thu, 24 Jan 2002 10:35:41 -0500

>

>Hi , Thanks for the advice. I will certainly try to calm her fears.

>Bibiana is a beautiful name, does it have an ethnic origin? Actually my

>girls have english and turkish names. Their american grandparents call

>them

>Kaitlin, Olivia and Alena and their turkish grandparents know them as Ceyda

>(pronounced Jayda), Yasemin (turkish version of Jasmine pronounced

>YAWSAWMIN) and Aysel (I~SELL funny huh? it is my mother in laws name) They

>always get the giggles when they are introduced to turkish speaking people

>by their turkish name. I hope someday they know it is part of their

>heritage. Much Love, ~Alena's Mom

>

>PS I am with you on the finger sucking anti germ thing. I swear although

>it

>is as gross as even Kaitlin exposes herself to gross stuff by biting her

>nails and that is why she never gets sick. Ok I probably won't find any

>medical proof on that one but it works for her. Thankfully, she too is

>slowly stopping that nasty habit.

> Re: NCU~Livi's Ears

>

>

> > ,

> >

> > That sounds awful. But, the doctor (compared to some of the others you

>have

> > seen) did seem genuinely interested and concerned. From your

>description

>of

> > the exam, there was a sense of urgency there.

> >

> > Get that CAT scan done immediately. The hospital staff are usually

>pretty

> > good with kids. Take her into the room and show her the CAT scan

>machine.

> > Tell her that the doctor is going to be taking pictures of her - that is

>all

> > an x-ray is (over simplification here but she will be able to relate to

>it).

> > The only difference is that the " picture " will be on the inside of the

> > body and in this case her ear. Just like a regular picture, she has to

>be

> > still or it will be blurry. The machine may make some noise and the bed

> > will move her into position. You can stand there or sit in the corner,

>it

> > is up to you. If she asks about the apron, tell her that the doctor

>doesn't

> > want Mommy in the picture too.

> >

> > I have a fairly common hearing problem. My stapes is fused and this is

> > genetic. It didn't start until I was in my mid-twenties. I had

>constant

> > ringing in my ear and a popping sound if I increased my blood flow via

> > exercise, vigorous housecleaning, etc. Gradually, my hearing started to

> > lessen. I saw many ear doctors but no one could tell me what it was.

> > Around age 29, I left Pa for graduate school in Florida. I had a hard

>time

> > hearing and went to see a doctor down there. He was stumped but he did

>one

> > last test on me that shed some light on the source of the hearing loss.

>He

> > struck a tuning fork and first placed it by my ear and then put the

>handle

> > of it (while it was still ringing) on my forehead. He asked me which

>was

> > louder. I could hear it very loudly when the handle touched me forehead

>or

> > tooth. He concluded that my hearing was conductive - I could hear

>through

> > my bones (!!) but not my ear. It was caused by a fused stapes which

>could

> > not vibrate to transmit the sound.

> >

> > After graduate school, we moved up the New England and my husband

>started

> > calling specialists. He found a doctor at Mass Eye and Ear who had

>created

> > a prosthesis to compensate for the fused bones in the ear. The

>procedure

>is

> > called a stapendectomy. I have one of these devices in each ear and the

> > left one is starting to give me trouble. We are back in Pa now but I

>went

> > up to Boston to see this doctor again around Thanksgiving because the

>left

> > ear is ringing again. He said he can " adjust " it to bring back some of

>my

> > hearing loss which is in the voice range.

> >

> > This condition is not related to the urticaria - we have discussed it at

> > length, including the anesthesia that will be used because I am

>concerned

>of

> > a reaction. I have no dizziness, no ear infections or any ear problems

>for

> > that matter other than the hearing loss.

> >

> > I hope this helps. Please keep me posted. My daughter is 5 and I can

> > really relate. She is never sick because she sucks her fingers. A

>nasty

> > habit that I also had as a kid that has now distorted her teeth. The

>good

> > news is that she is slowly dropping the habit and the adult teeth are

>not

> > impacted by this - yet. This kid is never sick because she is

>constantly

> > inoculating herself with these dirty fingers (my theory). So when she

>gets

> > sick, I panic because it has to be pretty severe to have an effect on

>her.

> > Last year we had one 5th grade student die from meningitis. In previous

> > years, there have been several day care children who expired quickly

>from

> > the same. The occurrence is " normal " but any child death hits me hard.

>So

> > when my daughter has a high fever and she says her neck is stiff, I go

>out

> > of my mind.

> >

> > By the way, I noticed that you call your daughter " Livi " , we call ours

> > " Bibi " which is short for Bibiana.

> >

> > in Pa.

> >

> >

> > _________________________________________________________________

> > Chat with friends online, try MSN Messenger: http://messenger.msn.com

> >

> >

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > If you do wish to unsubscribe then you can click on the following link:

> > urticaria-unsubscribe

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> >

> > This list is in the service of those who suffer from Chronic Urticaria

>(hives). We strive to support and lift each other as a worldwide

>cyber-family.

> >

> > We share whatever needs to be shared to help one another in our struggle

>with Chronic Urticria. Information provided in this forum is not to be

>taken

>as medical advice. Always consult your health professional before trying

>anything new.

> >

> > Any posting that is off the main topic of Chronic Urticaria, we post

>with

>a prefix of NCU -. This is done out of respect for those who do not wish

>to

>read such postings.

> >

> >

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Hi ,

You poor thing. I'm not sure how you did this doctor visit by yourself.

Poor Livi! I feel so bad for her too. She surely has suffered. About the

CT Scan, like said, if she can lay still, they probably won't give her

anything. When my son was sick, he was first diagnosed with cancer when he

was a year old, so you can imagine that CT scans, MRI's and Bone Scans were

very much a part of our lives. I can't even recall how many times he has

had these tests, way too many !! They did try something called Chlora

Hydrate on him in the very beginning and when they did Radiation to his

brain, but then they realized (after me hounding them) that he would do much

better without it! Like Livi, he is and was a very passive child, so he

basically did whatever we told him, in the beginning, he used to cry, but

then he realized that if he laid REAL still, it was over quicker!!

It sounds to me as if she will be fine for the CT without any sedation.

As far as the infection, I'm not sure about this. has Septicemia a

few times because he had a cathetar that went directly into his heart for

infusion of chemo and drawing of blood. When this became infected around

the entry site, they would cutlure it and in the mean time until the culture

would come back, they would treat him systemically with IV antibiotics. Did

they do a culture of the drainage? That would be the best thing, then they

would know exactly what was growing in there and they could treat it with

the proper antibiotic.

I think you've got yourself and Livi and good, caring doc! I'm not sure if

I left anything out, hope this helps in some way. xoxo Ann

Ann

" I get by with a little help from my friends. "

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

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,

Poor Livi and poor you...I remember having earaches when I was her

age..But nothing like you have described..I have just gotten off

the phone with a friend that spend 10 days in the hospital about 6

years ago with a bad ear infection that went to the brain..DO NOT

want to scare you...Her infection drained in instead of out..She

has come a long way...So Livi and you seem to be on the right

track...As for as her hair, tell the dr. that if they have to shave

the area, just to shave what they must...Her long hair should cover

most of it...Tell Livi that so many of the teens now days are

shaving the under part of their hair and leaving the top

longer...She will think she is cool..Wished I was there to

help...Looks like they would have sent her to this Dr. long before

now...Should not have let it go this far...Know you are just

frustrated...All I can say is what I have already said..Build her

up for a punk hair do...Tell her you will put some of those crazy

colors in it or something like that...She want mind as bed...Or buy

her some of those little fake hair color braids...If you can't find

them, let me know...Just trying to think of something that want

dramatize that child...Prayers are with you...

Love,

Rita

> Hi Gang, I have to ask a few more questions about ears to anyone

that can answer. I took Livi to the otolaryngologist yesterday and he

spent a great deal of time looking at her ear under a microscope and

cleaning it out (AGAIN) with a little vaccum cleaner. He then told me

(I hate going to these appointments alone) that she has some polyops

in her ear and it looks and smells (yep he said smells which hurt

Livi's feelings) like a serious infection. He went on to say it

appeared the mastoid was severely infected as well and had no idea

what other involvment there could be but the infection could even pass

to the brain if not treated immediately. I was so scared to ask what

that meant, not scared he wouldn't answer but of what the answer would

be. The current infection (one of hundreds in her 6 years of life)

has lasted a little under four months. He ordered a CT scan of the

area, will they put her to sleep?

>

> The only thing he told me about when the define where the infection

has spread is that they will have to scrap the bone involved. Does

anyone know anything about the mastoid? If an infection spreads this

far, what can happen? Do I want to know how many stitches she will

need or if they will have to shave off her pretty hair?

>

> I remember when they attempted to patch the hole in her ear drum and

all the stitches around her ear and the area of hair they shaved. She

had to get her beautiful long hair cut off to a bob (which of course

she was still gorgeous to me) but it upset her.

>

> Anyway, anyone have any thoughts?

>

> ~mom of the three you know whos

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Hi : I'm sorry about Livi.

It's unfortunate that Doctor's don't always think about their comments and the impact that they might have on a patient. Odour is indicative of infection and unfortunately the smell of infection in an ear is quite bad.

I agree with what everyone has said about the CT scan. If she can be still for the short time that it takes to perform one she should be ok. If not a small amount of sedative could be administered. As Ann mentioned Choral Hydrate is one that is used but I've even seen things like Benadryl or Gravol used just for their sedative effect.

I'm sending you a link on the Mastoid and Mastoditis that may help you understand all that's going on. I will keep my fingers crossed that the antibiotics will clear it up.

http://www.nlm.nih.gov/medlineplus/ency/article/001034.htm

Good luck

Barb

London, Ontario, Canada

Give my mini-me a hug!

May the wind be always at your back.mtnbiker@... mountainbiker41@...

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Hi -

I don't have any experience with ears so I can't help

you there. I just wanted to wish you and your

daughter well and that I hope you are able to get her

problem fixed with as little discomfort to her as

possible. You have all been through so much and I am

so sorry for it. Somehow, some way, I know you and

your girls will all be stronger for it and they will

go on to do something great with their lives (you

already are). , Myra's daughter is an example of

that. They will know how precious and fragile life

is, they will know compassion, they will know never to

take things for granted. Perhaps they will go into

medicine and be the kind of doctors we wish we could

have!

Another example of this is my friend's daughter

Steffie. Can you believe that at age 13, she was

diagnosed with breast cancer?! She had her breast

removed, reconstruction, chemo, radiation, the works.

She is now 20 and away at college. She is taking

pre-med courses and wants to be a doctor. She still

has to see the oncologist every 3 months and it is

always in the back of her mind but the experience has

changed her in a way that nothing else could've.

We're all here for you and we care.

-Sheryl in NJ

--- Ersan and Ilgar ilgar@...> wrote:

> Hi Gang, I have to ask a few more questions about

> ears to anyone that can answer. I took Livi to the

> otolaryngologist yesterday and he spent a great deal

> of time looking at her ear under a microscope and

> cleaning it out (AGAIN) with a little vaccum

> cleaner. He then told me (I hate going to these

> appointments alone) that she has some polyops in her

> ear and it looks and smells (yep he said smells

> which hurt Livi's feelings) like a serious

> infection. He went on to say it appeared the

> mastoid was severely infected as well and had no

> idea what other involvment there could be but the

> infection could even pass to the brain if not

> treated immediately. I was so scared to ask what

> that meant, not scared he wouldn't answer but of

> what the answer would be. The current infection

> (one of hundreds in her 6 years of life) has lasted

> a little under four months. He ordered a CT scan of

> the area, will they put her to sleep?

>

> The only thing he told me about when the define

> where the infection has spread is that they will

> have to scrap the bone involved. Does anyone know

> anything about the mastoid? If an infection spreads

> this far, what can happen? Do I want to know how

> many stitches she will need or if they will have to

> shave off her pretty hair?

>

> I remember when they attempted to patch the hole in

> her ear drum and all the stitches around her ear and

> the area of hair they shaved. She had to get her

> beautiful long hair cut off to a bob (which of

> course she was still gorgeous to me) but it upset

> her.

>

> Anyway, anyone have any thoughts?

>

> ~mom of the three you know whos

>

__________________________________________________

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