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[Guest guest]

My son was diagnosed with plagiocephaly and torticollis at around 7

months. I had repeatedly complained to his pediatrician that something

was not right with his skull shape, and he always held his head tilted

to the right. When they did the CT scan, they were pretty sure it was

craniosynostosis. Well, thankfully, after visits to 3 neurosurgeons,

they ruled that out and said he would need to be fitted for a helmet,

and receive PT for the torticollis. We tried for 7 months to get our

insurance to cover the expense of having the helmet made, but it was

always no. They wouldn't even cover the PT! I was told by one of the

neurosurgeons that after 12 months or so, the helmet sort of loses its

effectiveness... so we gave up. I had called so many nonprofit

organizations and even tried fundraising...but nothing worked. His

head is still significantly deformed, and I really just want to know

what implications this could have on his development later on... He

seems to be developing fine (he is 23 months now) but I did see

something on Discovery Health Channel that caused me to start worrying

all over- these twin boys (4 yrs old) were undergoing plastic surgery

to fix their skull deformities because they were suffering from

extreme headaches, poor vision, etc... is there anyone out there who

can tell me if there are significant problems that could develop? And

if so, what can I do about them? I would really like Josiah to have

surgery to correct the deformity... but how?