Advise about upcoming surgery

[Guest guest]

Our daughter Madison will be having her skull reshaped next month. She

has severe plagio since birth along with Congenital Torticollis. Her

sutures are closed and she is showing signs of facial deformaity. Her

right eye, cheek and forhead is starting to bulge out. Her ears also

are not aligned. Her neurosurgeon said that this would be a unilateral

surgery. We are going back Oct 12 to schedule the surgery for the end

of Oct. Just last week we also found out she has PVL Periventricular

Leukomalcia which is loss of white matter due to loss of oxygen around

her birth. Poor thing just got problems. Does anyone have any advice

for us about her upcoming surgery. It will be at Christa Santa in

San TX. Or have any insight on PVL. We would appreciate any

of your advice.

Thanks

Adam and

Daughter Maddie 13.5 mos (12mos adj)

Severe Plagio, Congenital Tort, PVL Starband since May 06