Re:question on V words and my visit to Dr.

[Guest guest]

Hi Lia--

Welcome to the group. I am in that dark place that you speak of.

Can you share what has helped you to feel better?

Thanks,

> >

> > Becky, it doesn't matter (the " V " words - they are all the same). I

> went to

> > my pre-surgical visit to Dr. 's office yesterday (because I

> have LS)

> > and tied her ( - her associate) down with some very hard

> questions for

> > her to answer. I asked her what was the difference between all

those " V "

> > words, and what EXACTLY the treatments were for all of them. I don't

> think

> > she was too happy to answer my questions, but she did say they were

> > virtually all the same (the " V " words) with all basically the same

> > treatments. The list of treatments and suggestions - they are ALL

> here, from

> > all of you, and from Dee. She prescribes all the medications

> (Amitriptalyne,

> > Neurontin, Lyrica, etc. etc. - there are dozens) and the numbing

> creams/gels

> > (Lidocaine or compounded with other medications, etc.), plus the other

> > topicals that Dee has on her lists, plus the suggestions for diets,

> etc.,

> > plus the IC issues and even IBS. EVERYTHING that we discuss here -

> is what

> > she recommends. But she won't prescribe " T " , as Dee likes to call

> it, unless

> > it is for hormonal issues. And she admitted that there is no one thing

> > (method) that works for everyone, and a lot of time nothing works for

> > anybody. And that is why she is so busy with appointments, because

women

> > keep coming back, and back, and back, looking for another solution,

> and so

> > she tries something else on them. So please, don't think you are

> missing out

> > on information because you do not have the opportunity to see Dr.

> .

> > Buy her book, which I think is excellent for putting al the

information

> > together in one spot, and keep reading the posts on this list. But

> > obviously, you do need a doctor familiar enough with vulvar issues to

> > prescribe medication.

> >

> > I asked her what else I could do, and she said nothing - I have done

> it all,

> > there was nothing more she could suggest. (That was encouraging

> LOL.) I told

> > her I was having a vestibulectomy, which she immediately and adamantly

> > discouraged, because she didn't think the results were very good,

> plus it

> > would irritate my LS. She also said Liz (as she calls Doctor

) no

> > longer does them, but reading between the lines, I had the feeling

> that she

> > just doesn't want to do them anymore. And she was horrified that

I was

> > having pudendal nerve compression surgery done. But on continuing the

> > conversation with her, not only did she not know who my doctor was,

> but she

> > had no idea what the surgery entailed that I was having. But (even

> though

> > she didn't know what it was) she still didn't want me to have it.

> (LOL) So

> > upon leaving she said she was sorry that she couldn't help me with

> any of my

> > vulvar (that includes all those that start with a V) problems, and

> she hoped

> > I would reconsider having the surgery done, but she would be very

> interested

> > in hearing how I did following surgery (if I still decided to have

> it). So,

> > in retrospect my husband and I have had a good laugh all the way

> home about

> > it. She couldn't help me, but she didn't want anyone else to help me

> either.

> >

> > My conclusion - that is the end of Dr. . I am going to go to my

> > pudendal specialist for all my GYN issues. When I last talked to him

> he said

> > (besides the fact that he is very confident that he will fix my

pudendal

> > nerve), that he has had great success with the vestibulectomies (95%

> success

> > rate), and that his LS patients actually got better after having a

> > vestibulectomy. Plus he feels the nerve compression surgery will

> take care

> > of any vestibulitis/vulvadynia problems, as my vulvar problems are

being

> > caused by the pudendal nerve over firing and sending the pain to the

> vulvar

> > surface. I just can't believe that Dr. can be so right and

> my doctor

> > so wrong (or vice versus) LOL.

> >

> > The best part of the whole visit was that the nurse who came into

> the exam

> > room first, and who could see I could barely walk - wished me good

> luck and

> > gave me a big hug. I could tell she was sincerely concerned, and

hoped I

> > would feel better.

> >

> > nne

> >

>