Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 It sounds like you're going to CT (as this trial schedule is what they recommended to us), and what they mean is to leave the band off UNTIL the red marks disappear, then it's OK to put it back on. I'm sure they'll clarify when you have your visit. good luck.ishtob2019 <ishtob2019@...> wrote: Hi all, We just got Skylar's Starband 3 days ago (Tues). We were told to remove the band every 3-4 hrs for the first 2 days and do a skin check for red marks. And that if there were any, to wait as long as it took for them to disappear then put the band back on. We were also told to let her sleep all night with the band on without doing any 3-4 hour checks and to call the clinician on THURSDAY to let her know if we saw any red marks lasting longer than 1 hour. After we got home, I pulled out the information sheet we were given also, and read it. It stated this: Skin checks should be done every 3-4 hours during the first two days of wear. Remove the band at 3-4 hour intervals. If there are any dark red areas, the band should be left off until the redness has faded. If the redness fades in one hour's time, the band should be placed back on. For redness lasting longer than one hour, the band should be left off, and the clinic notified. The clinic will need to know how long it takes for the redness to fade. This was confusing to me. When we did the 3-4 hour skin checks we found red marks that did not disappear for over 3 hours. We put the band back on after the red marks disappeared (as we were told by the clinician), even though the red marks lasted longer than an hour. We didn't let her sleep thru the night with it on however, because we knew the red marks were lasting longer than 1 hour. And from what the information sheet said we weren't suppost to put it back on her head anyway. We did this for the first two days (not letting her wear it during sleep thru the night), and the red marks continued to last over three hours. When I called the clinician today (Thurs) I was told to bring Skylar in either today or tomorrow so they can adjust the band. I told her that I wasn't going to put the band back on until after the adjustment tomorrow, and that I wasn't letting her sleep with it on thru the night because the red marks were lasting longer than 1 hour. She basically didn't make much sense when she replied by saying, "I need you to remove the band one hour before you come for the adjustment at 10:30 in the morning, so I can see how red the marks are. If the red marks are lasting longer than 1 hour, then leave it off." I tell you, she makes no sense to me. I repeated that the red marks ARE lasting longer than 1 hour (over THREE hours) and she basically said the same thing again. Is it just me, or does it seem to anyone else like she is somewhat confused? When we took Skylar in for the casting, she told us she had been doing this for 8 years. So I just don't get it. I'm not going to put the band back on Skylar until 5:30 tomorrow morning (oh, the joy of waking her up that early to put the band back on. LOL). That will give us 4 hours of wear time and 1 hour with it off before we see the clinician for the adjustment. Then she'll see the red marks. Has anyone else had this kind of experience in the beginning? Should I put the band back on her today? Confused, Tammy gets better. Check out the new email design. Plus there’s much more to come. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 HI Tammy - My son wears a DOC band and we had a very similar experience during his first two weeks - he had one red spot on the back of his head that would not go away. In our experience, we left the helmet off until the mark almost went away - this was over 24 hours when it first occurred. We contacted Cranial Tech and they had us bring him in for an adjustment, where they shaved a portion of the helmet where it was rubbing. He still had a slight red mark in the same area during the next few days, taking up to three and four hours for it to resolve. We went back again, for a second shaving, and that did the trick. He has been wearing it for over two months now, and we haven't had any re-occurances. Once we got the initial fit to be a "proper one" things have been smooth sailing - that process took almost two weeks - so don't worry too much about a couple hours or a couple days, for that matter. The most important thing is to make sure she has a proper fit. It sounds like you are doing all the right things. Keep an eye on any red spots... you don't want any open sores or areas that look like that they are leading in that direction... It you are in doubt, keep the helmet off until you see your contacts. They will know what to do. Hang in there. It will get better. This is a great site. Keep asking questions and people will answer! Best of Luck - Danene, Mom to , my DOC band boy!ishtob2019 <ishtob2019@...> wrote: Hi all,We just got Skylar's Starband 3 days ago (Tues). We were told to remove the band every 3-4 hrs for the first 2 days and do a skin check for red marks. And that if there were any, to wait as long as it took for them to disappear then put the band back on. We were also told to let her sleep all night with the band on without doing any 3-4 hour checks and to call the clinician on THURSDAY to let her know if we saw any red marks lasting longer than 1 hour. After we got home, I pulled out the information sheet we were given also, and read it. It stated this:Skin checks should be done every 3-4 hours during the first two days of wear. Remove the band at 3-4 hour intervals. If there are any dark red areas, the band should be left off until the redness has faded. If the redness fades in one hour's time, the band should be placed back on. For redness lasting longer than one hour, the band should be left off, and the clinic notified. The clinic will need to know how long it takes for the redness to fade.This was confusing to me.When we did the 3-4 hour skin checks we found red marks that did not disappear for over 3 hours. We put the band back on after the red marks disappeared (as we were told by the clinician), even though the red marks lasted longer than an hour. We didn't let her sleep thru the night with it on however, because we knew the red marks were lasting longer than 1 hour. And from what the information sheet said we weren't suppost to put it back on her head anyway.We did this for the first two days (not letting her wear it during sleep thru the night), and the red marks continued to last over three hours. When I called the clinician today (Thurs) I was told to bring Skylar in either today or tomorrow so they can adjust the band. I told her that I wasn't going to put the band back on until after the adjustment tomorrow, and that I wasn't letting her sleep with it on thru the night because the red marks were lasting longer than 1 hour. She basically didn't make much sense when she replied by saying, "I need you to remove the band one hour before you come for the adjustment at 10:30 in the morning, so I can see how red the marks are. If the red marks are lasting longer than 1 hour, then leave it off." I tell you, she makes no sense to me. I repeated that the red marks ARE lasting longer than 1 hour (over THREE hours) and she basically said the same thing again. Is it just me, or does it seem to anyone else like she is somewhat confused? When we took Skylar in for the casting, she told us she had been doing this for 8 years. So I just don't get it.I'm not going to put the band back on Skylar until 5:30 tomorrow morning (oh, the joy of waking her up that early to put the band back on. LOL). That will give us 4 hours of wear time and 1 hour with it off before we see the clinician for the adjustment. Then she'll see the red marks.Has anyone else had this kind of experience in the beginning?Should I put the band back on her today?Confused,Tammy New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 When we went back to visit about the red spots, the orthotist told us to leave the helmet off if we were concerned about the red marks, because we didn't want them to turn into a blister or sore, but put the helmet back on when we were getting in the car to drive there. That way she could see them enough to tell what was going on. Hope this helps! Lesley > > Hi all, > We just got Skylar's Starband 3 days ago (Tues). We were told to > remove the band every 3-4 hrs for the first 2 days and do a skin > check for red marks. And that if there were any, to wait as long as > it took for them to disappear then put the band back on. We were > also told to let her sleep all night with the band on without doing > any 3-4 hour checks and to call the clinician on THURSDAY to let her > know if we saw any red marks lasting longer than 1 hour. After we > got home, I pulled out the information sheet we were given also, and > read it. It stated this: > > Skin checks should be done every 3-4 hours during the first two days > of wear. Remove the band at 3-4 hour intervals. If there are any > dark red areas, the band should be left off until the redness has > faded. If the redness fades in one hour's time, the band should be > placed back on. For redness lasting longer than one hour, the band > should be left off, and the clinic notified. The clinic will need to > know how long it takes for the redness to fade. > > This was confusing to me. > > When we did the 3-4 hour skin checks we found red marks that did not > disappear for over 3 hours. We put the band back on after the red > marks disappeared (as we were told by the clinician), even though > the red marks lasted longer than an hour. We didn't let her sleep > thru the night with it on however, because we knew the red marks > were lasting longer than 1 hour. And from what the information sheet > said we weren't suppost to put it back on her head anyway. > > We did this for the first two days (not letting her wear it during > sleep thru the night), and the red marks continued to last over > three hours. When I called the clinician today (Thurs) I was told to > bring Skylar in either today or tomorrow so they can adjust the > band. I told her that I wasn't going to put the band back on until > after the adjustment tomorrow, and that I wasn't letting her sleep > with it on thru the night because the red marks were lasting longer > than 1 hour. She basically didn't make much sense when she replied > by saying, " I need you to remove the band one hour before you come > for the adjustment at 10:30 in the morning, so I can see how red the > marks are. If the red marks are lasting longer than 1 hour, then > leave it off. " I tell you, she makes no sense to me. I repeated that > the red marks ARE lasting longer than 1 hour (over THREE hours) and > she basically said the same thing again. Is it just me, or does it > seem to anyone else like she is somewhat confused? When we took > Skylar in for the casting, she told us she had been doing this for 8 > years. So I just don't get it. > > I'm not going to put the band back on Skylar until 5:30 tomorrow > morning (oh, the joy of waking her up that early to put the band > back on. LOL). That will give us 4 hours of wear time and 1 hour > with it off before we see the clinician for the adjustment. Then > she'll see the red marks. > > Has anyone else had this kind of experience in the beginning? > Should I put the band back on her today? > > Confused, > > Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 DS got banded on Friday so we've been doing the 3 hour skin checks. My DOC band instructions say that if the red marks go away within an hour, put the band back on. We made it through two 3 hours periods with no problems. But then, two spots appeared. They have taken more than an hour to go away. After they go away we put the band back on for 3 hours, but they keep coming back. He's slept 2 nights without it now. Are we still in a breaking in period or does he need an adjustment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Are the red spots fading? I think they are okay if they are fading. 8 1/2 month old son, DOC band L <hula1974@...> wrote: DS got banded on Friday so we've been doing the 3 hour skin checks. My DOC band instructions say that if the red marks go away within an hour, put the band back on.We made it through two 3 hours periods with no problems. But then, two spots appeared. They have taken more than an hour to go away. After they go away we put the band back on for 3 hours, but they keep coming back. He's slept 2 nights without it now.Are we still in a breaking in period or does he need an adjustment? Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.