Dennis -slow progress

[Guest guest]

Dennis a million thankyou.s for you post you dont know how much it means to

me to hear from you and for you to take the time i shouldnt have headed my

posting Bonnie and M aureen its just that their name came up so thankyou

thankyou for posting for me i have printed off your posting to prove i am

not mad and you will know what i mean by that you have just given me a giant

hug and said your not on your own

hug back regards na

Re: Bonnie -Maureen slow progress

>

> , my PLS is slow, I do walk with a limp and my

> speech is only affected at the end of the day or I

> talk alot. I teach in an electronics plant and most

> people do not see my problem. But when I am stiff or

> cannot type they do not see that so I know what you

> are going through.

> Dennis

> --- adriana wrote:

>

> > Bonnie and Maureen i would love to have you both

> > email me as i need your help

> > i have trouble with doctors because i have slow

> > progress

> > they are not believing my problems

> > because i can still talk and only have problems when

> > tressed or talking to fast etc and they dont hear it

> > when i am just answering yes and no questions they

> > dont believe i have a problem my speech therapist is

> > great and when i spend time with her she picks up

> > and hears the problems

> > i would love to hear from you and your storys please

> > so i can show my doc SEE OTHERS ARE SLOW TO

> > because i am not going down fast like they think i

> > should they wont listen to me and as it it rear and

> > even rearer in australia and they no little and

> > nothing about it i do struggle to be heard because

> > they cant see my stiffness its not there because my

> > swelling is at night when i stop moving and they

> > dont see it its not there because they dont hear my

> > speech stuff up,s they arnt there because they cand

> > see the pain the stiffness gives me its not there

> > ,cant see the cramps (not there) it gos on and on

> > even though i have been hospitalised twice unable to

> > walk when i got my p.l.s diagnoses this is my 6th

> > tear

> > i would just love to hear from you

> > na

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

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