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Vicki,

This post certainly made my claws come out !And I have to comment on this !

Im sorry that you were offended by my post,you KNOW where the delete button is..I stated my own personal experiences,and I could tell you many more..Its a FACT,that when your hearing impaired,your treated retarded,I in NO way insinuated we were Retarded !I have been treated that way countless times,and it will happen again and again.I choose to see the humor in this and dont take it seriously...

Humor comes from tragidy and thats so TRUE ! I have been so damn sick from this NF crud,I have almost died....I rely on humor to get me through and its done a DAMN good job.and I WILL continue to use it...If some people do NOT have a sense of humor,it's NOT my fault !I don't choose to suck lemons,I face reality...We as deaf people are going to be treated this way and we have to be prepaired for it.It's a FACT of life.Another FACT,I am NOT ignorant,and I DID NOT make fun of people haveing this HORRIBLE disease,NOT at all,its NOT funny,but rather sad.I read posts all the time from crew members that make me cry,yours included ! What I simply stated was how I was treated by other people,and my experiences. What I said was all TRUE! The way I am treated is a FACT of life and it will only continue...I have learned to accept this.In my years of struggeling with this NF2,I have found that if your in any way differnt,,physically mentally etc.You are treated DIFFERNT..Thats a FACT,I choose to accept.I have found a way to deal with mine ! It's clear to me that some people have NOT...

If I was truelly IGNORANT and stupid,I could NOT of learned all these TRUE facts, in my 11 and a half years of being deaf, and struggeling with this disease...Sorry some people are dissapointed by my telling the TRUTH,thats their problem

Lana

n a message dated 9/9/02 5:09:39 AM !!!First Boot!!!, vjpcook@... writes:

Crew members who use the word "retard" and further laugh about it are just as ignorant as those who have critical or denegrating comments about those affected by NF2 surgeries and nerve loss. I can't believe I read these posts. Since I work with all kinds of people with disabilities including the NF issue, I am sensitive to this and frankly, disappointed. Vicki

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I agree with you Joyce!! :o) Jodi, I have had the exact same experience and I agree with Marie...I think that is why we hesitate to tell others we are deaf. I do have a deaf/dumb friend that I call on the TTY, and I think I know where part of this mass stupidness comes from. ASL is NOT proper English, so when a person tries to talk in ASL, they sound DUMB. Of course that does not apply to us late-deafies, but the public regards ANYBODY that is deaf as being of less intelligence.

Donna H.

This is what i would like to do to people like you talked about

earlier.

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I am so sorry about yours and 's trials Pam. My son Lee is 16, so I can really feel for you. He still has his hearing but has poor vision, has been declared Legally Blind. He also has a scar running up the back of his neck from brainstem surgery last summer and a scar over his ear from another surgery when he was 5 years old, but he wears his hair short. He said the scars makes him look tough! :o)

Donna H.

My son ....lost his hearing and has some lovely scars on the left side of his head....When he moved to Calgary and started working...as soon as they saw his scars and found out he was hearing impaired...he lost his job....people stare at him....whisper behind his back...all kinds of things that piss me off....usually when i catch them staring....i walk up to them ask them if they would like a picture....that shut's them up real fast...even me mother tells him to grow his hair long...tells him all those scars make him look like a freak.....then i do lose my mind and tell her off...he will never get his grade 12 because of the trauma that has happened because of the 3 AN operations....teachers weren't understand school board didnt give a damn...so i told to ignore people like that and just do what makes you feel happy.....Pam

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My son ....lost his hearing and has some lovely scars on the left side of his head....When he moved to Calgary and started working...as soon as they saw his scars and found out he was hearing impaired...he lost his job....people stare at him....whisper behind his back...all kinds of things that piss me off....usually when i catch them staring....i walk up to them ask them if they would like a picture....that shut's them up real fast...even me mother tells him to grow his hair long...tells him all those scars make him look like a freak.....then i do lose my mind and tell her off...he will never get his grade 12 because of the trauma that has happened because of the 3 AN operations....teachers weren't understand school board didnt give a damn...so i told to ignore people like that and just do what makes you feel happy.....Pam

deaf but not dumb

Vicki,This post certainly made my claws come out !And I have to comment on this !Im sorry that you were offended by my post,you KNOW where the delete button is..I stated my own personal experiences,and I could tell you many more..Its a FACT,that when your hearing impaired,your treated retarded,I in NO way insinuated we were Retarded !I have been treated that way countless times,and it will happen again and again.I choose to see the humor in this and dont take it seriously...Humor comes from tragidy and thats so TRUE ! I have been so damn sick from this NF crud,I have almost died....I rely on humor to get me through and its done a DAMN good job.and I WILL continue to use it...If some people do NOT have a sense of humor,it's NOT my fault !I don't choose to suck lemons,I face reality...We as deaf people are going to be treated this way and we have to be prepaired for it.It's a FACT of life.Another FACT,I am NOT ignorant,and I DID NOT make fun of people haveing this HORRIBLE disease,NOT at all,its NOT funny,but rather sad.I read posts all the time from crew members that make me cry,yours included ! What I simply stated was how I was treated by other people,and my experiences. What I said was all TRUE! The way I am treated is a FACT of life and it will only continue...I have learned to accept this.In my years of struggeling with this NF2,I have found that if your in any way differnt,,physically mentally etc.You are treated DIFFERNT..Thats a FACT,I choose to accept.I have found a way to deal with mine ! It's clear to me that some people have NOT...If I was truelly IGNORANT and stupid,I could NOT of learned all these TRUE facts, in my 11 and a half years of being deaf, and struggeling with this disease...Sorry some people are dissapointed by my telling the TRUTH,thats their problemLana n a message dated 9/9/02 5:09:39 AM !!!First Boot!!!, vjpcook@... writes:

Crew members who use the word "retard" and further laugh about it are just as ignorant as those who have critical or denegrating comments about those affected by NF2 surgeries and nerve loss. I can't believe I read these posts. Since I work with all kinds of people with disabilities including the NF issue, I am sensitive to this and frankly, disappointed. Vicki

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Hi Donna and Pam; My daughter is going to have surgery on wed. 9-11 02 for the tumors on her ears so this is the first side and in about 3 or 4 mos. later she will have the other side done and hopefully the ABI implant will work. We just found out she has nf2 her father also has it he's had it since 1981 but the Dr.'s didn't put a name to it until 1994 he's been in his own little world all these yrs. won't talk much to anyone wanted me or my daughter to do it all now she won't be able to.I'm hope she cna be more independent. I'm afraid that the kids are going to pick on her she has no friends all these yrs. she is 15yrs. old her dad didn;allow her to have any; I hope she can have a few to talk to on here.

Re: deaf but not dumb

I am so sorry about yours and 's trials Pam. My son Lee is 16, so I can really feel for you. He still has his hearing but has poor vision, has been declared Legally Blind. He also has a scar running up the back of his neck from brainstem surgery last summer and a scar over his ear from another surgery when he was 5 years old, but he wears his hair short. He said the scars makes him look tough! :o)Donna H.

My son ....lost his hearing and has some lovely scars on the left side of his head....When he moved to Calgary and started working...as soon as they saw his scars and found out he was hearing impaired...he lost his job....people stare at him....whisper behind his back...all kinds of things that piss me off....usually when i catch them staring....i walk up to them ask them if they would like a picture....that shut's them up real fast...even me mother tells him to grow his hair long...tells him all those scars make him look like a freak.....then i do lose my mind and tell her off...he will never get his grade 12 because of the trauma that has happened because of the 3 AN operations....teachers weren't understand school board didnt give a damn...so i told to ignore people like that and just do what makes you feel happy.....Pam

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Thank you its good to have friends.

-- Re: deaf but not dumb

Dear Joyce,I dont know you personally but i'm so happy for you and Angie. There is almost always a positive that comes from a negative and even though when i'm going through a tough patch, trying to deal with a physical loss of some sort those sort of things are the last thing i want to hear it's true.Hope to hear more good news_________________________________________________________________Send and receive Hotmail on your mobile device: http://mobile.msn.com

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Oh my gosh....I pray she finds some wonderful friends..........She needs them! Hugs for her....

Carol

I'm hope she cna be more independent. I'm afraid that the kids are going to pick on her she has no friends all these yrs. she is 15yrs. old her dad didn;allow her to have any; I hope she can have a few to talk to on here.

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Tami...when was 1st diagnosed when he was 12 he had alot of friends....now after everything he has been thru he has 1 friend that has stuck by him thru thick and thin...i hope this happens to your daughter...after had his 1st surgery i went to his school and spoke to his class...i talked for nearly an hour and the principal was there...that made it alot easier for and he never got picked on...it was mostly the adults on the street that have been the nasty ones....This disease just makes us all special..if outsiders dont understand...well aint that to bad...we're a strong bunch of people.....e-mail us anytime Tami...Pam

Re: deaf but not dumb

I am so sorry about yours and 's trials Pam. My son Lee is 16, so I can really feel for you. He still has his hearing but has poor vision, has been declared Legally Blind. He also has a scar running up the back of his neck from brainstem surgery last summer and a scar over his ear from another surgery when he was 5 years old, but he wears his hair short. He said the scars makes him look tough! :o)Donna H.

My son ....lost his hearing and has some lovely scars on the left side of his head....When he moved to Calgary and started working...as soon as they saw his scars and found out he was hearing impaired...he lost his job....people stare at him....whisper behind his back...all kinds of things that piss me off....usually when i catch them staring....i walk up to them ask them if they would like a picture....that shut's them up real fast...even me mother tells him to grow his hair long...tells him all those scars make him look like a freak.....then i do lose my mind and tell her off...he will never get his grade 12 because of the trauma that has happened because of the 3 AN operations....teachers weren't understand school board didnt give a damn...so i told to ignore people like that and just do what makes you feel happy.....Pam

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Lana

You go girl. we always have to be so understanding . But every

dam day we have to deal with stupid people. Dictionary retard (to delay

or slow the progress of ). Those people who are so incapable of perceiving

or feeling are deprived of a consciousness. I do think they are delayed.

They think if you not perfect your are under them. Well my daughter is

perfect. And she is under no one. Except God we will bow down to

him. They live in there own little world and need to be invited to the real

world. Reality there are as many people in this world who have some

kind of disability as the so called perfect people. And most all of us

are going to grow old. You know some people think old age is

a disability. I can guarantee that some time in are lives we will

all have some kind of a disability.Yes even the so called perfect

people. Yes some people even stare at old people. If they stare

at me i going to hit them with my cane.

Oh wait i forgot i'm going blind i won't be able to see

them. But i know they will be out there so i will just swing at

everyone with my white cane. Remember not everyone out

there are delayed give people a chance. Some people just aren't

out to hurt . They just don't know how to react they want to

be supportive they feel stupid. Because they don't know how

sign or don't know about lip reading. Im just saying don't always

think the worst.

Some thing happen to me the other a day in the store. I saw these two

ladies signing well in our small town I was sooooooo happy to see

these ladies . I walked up to them to ask a question about pokemon

cards they worked there. One girl didn't look me in the face she acted

angry . Like just another hearing person. that won't understand me

or that will treat me like shit. But she had no idea i had child who is

going deaf . And my kid needs friends because she feels very much

alone. And has no friends in this small town. So don't be so

quick to think the worst. sometimes things aren't always what they

seem.

Joyce McCann

-- deaf but not dumb

Vicki,This post certainly made my claws come out !And I have to comment on this !Im sorry that you were offended by my post,you KNOW where the delete button is..I stated my own personal experiences,and I could tell you many more..Its a FACT,that when your hearing impaired,your treated retarded,I in NO way insinuated we were Retarded !I have been treated that way countless times,and it will happen again and again.I choose to see the humor in this and dont take it seriously...Humor comes from tragidy and thats so TRUE ! I have been so damn sick from this NF crud,I have almost died....I rely on humor to get me through and its done a DAMN good job.and I WILL continue to use it...If some people do NOT have a sense of humor,it's NOT my fault !I don't choose to suck lemons,I face reality...We as deaf people are going to be treated this way and we have to be prepaired for it.It's a FACT of life.Another FACT,I am NOT ignorant,and I DID NOT make fun of people haveing this HORRIBLE disease,NOT at all,its NOT funny,but rather sad.I read posts all the time from crew members that make me cry,yours included ! What I simply stated was how I was treated by other people,and my experiences. What I said was all TRUE! The way I am treated is a FACT of life and it will only continue...I have learned to accept this.In my years of struggeling with this NF2,I have found that if your in any way differnt,,physically mentally etc.You are treated DIFFERNT..Thats a FACT,I c! hoose to accept.I have found a way to deal with mine ! It's clear to me that some people have NOT...If I was truelly IGNORANT and stupid,I could NOT of learned all these TRUE facts, in my 11 and a half years of being deaf, and struggeling with this disease...Sorry some people are dissapointed by my telling the TRUTH,thats their problemLana n a message dated 9/9/02 5:09:39 AM !!!First Boot!!!, vjpcook@... writes:

Crew members who use the word "retard" and further laugh about it are just as ignorant as those who have critical or denegrating comments about those affected by NF2 surgeries and nerve loss. I can't believe I read these posts. Since I work with all kinds of people with disabilities including the NF issue, I am sensitive to this and frankly, disappointed. Vicki

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Well most people are co clueless about how to communicate with me when I

tell them I'm deaf, but maybe you

right, I will have to try that. Marie

Re: deaf but not dumb

>

>

> I know exactly where you are coming from; I think that is why many of us

> hesitate to announce " I am deaf " because invariably people

> subconsciously

> add " and DUMB " . Marie

>

>

>

>

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