re:spheroids

[Guest guest]

Sunflower

I dont' know if this has been addressed because I'm so behind on my mail, but

SOMEWHERE I read several years ago when I was diagnosed that when you stand with

pressure on your feet little spheroids pop out under the skin on the inside

side of your foot. They are called pieozenic(not sure about spelling) papules

and are related to EDS and other connective tissue diseases. It didn't say that

it was only classical type. I remember having these for years- even as a child.

I never said anything to anyone because I thought it was normal. With me when I

start hurting real bad in a certain area unrelated to my OA I can feel those

lumps under my skin. They are real numerous in my hip and thigh area and rib

cage and ankles.

I had a young lady that I worked with last year start complaining of overall

pain everwhere and fatigue. She described the same kind of symptoms as me. Being

the nurse that I am- I started trying to diagnose her. I noticed that in some

pictures that she had of herself in shorts that her body makeup and skin looked

alot like mine. She was very doublejointed. I asked her to take her shoes off

and she had those papules on her feet. That's what alerted me because I remember

reading it very early on in my info obtaining phase. She went to a

rheumatologist and he diagnosed her as Hypermobility Syndrome. It was a start. I

gave her info to read and websites to go to and suggested she not r/o eds even

though that may be what he meant(who knows- Dr.s are so misinformed). She was

only in her very early 20's and though it was heartbreaking to know what she had

to endure in her future, I am so glad that she has been told about EDS now

instead of 10 years from now

Vicki

[Guest guest]

I have these on my ankles. I also learned about them early on in my

investigation of EDS.

I never said anything about them, cause I thought they were normal.

I have the hypermobile type.

My daughter also has these little bumps.

There is a picture of them on the ceda site on the pictures page.

[Guest guest]

I have these on my ankles. I also learned about them early on in my

investigation of EDS.

I never said anything about them, cause I thought they were normal.

I have the hypermobile type.

My daughter also has these little bumps.

There is a picture of them on the ceda site on the pictures page.

[Guest guest]

I have these on my ankles. I also learned about them early on in my

investigation of EDS.

I never said anything about them, cause I thought they were normal.

I have the hypermobile type.

My daughter also has these little bumps.

There is a picture of them on the ceda site on the pictures page.