Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Hi Sue, I would suggest that you see a fibroid specialist. From what I have read, there isn't a bugger that can't be safely removed. Where are you located? Maybe someone here could recommend a specialist. I have read that fat releases estrogen which is thought to feed fibroids. I have read a woman's story that was in menopause and still had some occassional bleeding. When her fibroids were removed the bleeding stopped. Here is a site of a fibroid specialist in NYC. He does have a regular chat and you could pose your question to him regarding removal options. It is important to know the size, type of fibroid and location. http://www.repmed.com/index.html best, suz > I have read a lot of back posts and didn't see anything like what I > am having. I'm 57 years old and have two fairly large fibroids. I > was told they would shrink up when I got through menopause. They > haven't so far. I stopped periods for 15 months and then had 2-3 > periods. Then I stopped again for a little over 2 years and thought > I was done, but I started spotting and last March had a D & C, but > it didn't help. The doctor said my hormones are spiking and to come > back in a year if I'm still spotting. It's getting worse but not > bad, just a few large spots each day for a week or so. I've had > very heavy periods and clotting my whole life so this is nothing, > but I was wondering if you all think it's probably the fibroids that > are causing the trouble. > I was told several years ago that they couldn't take the fibroids > out because they were attached to a muscle and if they did I would > bleed to death. I had gone in for a hysterectomy and all they did > was a D & C then. I know if I go back this March this doctor is going > to want to do a hysterectomy and I don't want one. > I am also very overweight. Does weight have something to do with > fibroids and spotting? I never had kids, but until I read your > posts, no one told me that fibroids could have been the reason why. > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Thank you so much Suz. I have learned so much more than I knew by just looking at Dr. West's site. I think I do need to find a new gyn. He doesn't seem to know much about all this. I'm in Michigan, so I couldn't go to NYC to see Dr. West, but I'll look around here. Sue > Hi Sue, > > I would suggest that you see a fibroid specialist. From what I have > read, there isn't a bugger that can't be safely removed. Where are > you located? Maybe someone here could recommend a specialist. I > have read that fat releases estrogen which is thought to feed > fibroids. I have read a woman's story that was in menopause and > still had some occassional bleeding. When her fibroids were removed > the bleeding stopped. Here is a site of a fibroid specialist in > NYC. He does have a regular chat and you could pose your question to > him regarding removal options. It is important to know the size, > type of fibroid and location. > > http://www.repmed.com/index.html > > best, > suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Sue, Teaching hospitals are always a good bet. I would check out U of M medical center and ask for a referral for a fibroid specialist. If you look online, usually you only see that the docs are ob/gyns. I did this with Stanford and asked for a referal. I was very pleased with the doc I saw who was a researcher in fibroids. Gals do travel to meet with fibroid specialists. I wish you the very best. Here is another good site on fibroid info. This doc is in No Cal. http://www.myomectomy.net/ best, suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Thank you Suz. Very interesting site. I will check out U of M at some point. Sue > Sue, > > Teaching hospitals are always a good bet. I would check out U of M > medical center and ask for a referral for a fibroid specialist. If > you look online, usually you only see that the docs are ob/gyns. I > did this with Stanford and asked for a referal. I was very pleased > with the doc I saw who was a researcher in fibroids. Gals do travel > to meet with fibroid specialists. I wish you the very best. Here is > another good site on fibroid info. This doc is in No Cal. > > http://www.myomectomy.net/ > > best, > suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 MLE - Welcome to the group. I assume that MLE is not your name but I guess it will have to do for now. The group is a pretty active one. Very quickly you will begin to see a large number of posts. Feel free to chime in at anytime that something is of interest to you and know that it's okay to bring up things also. The folks here are terrific and a family atmosphere has bree developed complete with hugs, kind thoughts, support, resources, and occasional squabbles (though we try to keep those to a minimum and eal with them by writng privately to the person and respectfully airing our concern). It's great to have a place to come to where folks really understand what you have to deal with on a day to day basis. Please make yourself at home. We only ask that you rinse your coffee cup before you leave it in the sink. Barbaramle24@... wrote: Hi allI am new here- Not new with RCD/CRPS... I just had my 3rd Stelli Block and hopeful that it will help! would keep my fingers crossed- only my left hand hasn't really cooperated since 03-04-2003- the day I injured it... I won't write too much as I am sure tired of trying to type tonight- it takes me a while. Also I have a 5 month old who is finally asleep- which is another factor in my drive to get better. I am not sure what these post type/chat rooms are like but thought it was worth a shot- I am sick of talking with friends and loved ones about it- and I am sure they are tired of the injury talk too... thanks for readingMLE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Welcome to the Group mle, This is a great group..everyone is informative, compassionate, and very good listeners when needed to be. I was dx with RSD in July and I have it in both hands..so I can empathize with you having trouble typing. Hope the blocks give you relief from this...Ginnymle24@... wrote: Hi all I am new here- Not new with RCD/CRPS... I just had my 3rd Stelli Block and hopeful that it will help! would keep my fingers crossed- only my left hand hasn't really cooperated since 03-04-2003- the day I injured it... I won't write too much as I am sure tired of trying to type tonight- it takes me a while. Also I have a 5 month old who is finally asleep- which is another factor in my drive to get better. I am not sure what these post type/chat rooms are like but thought it was worth a shot- I am sick of talking with friends and loved ones about it- and I am sure they are tired of the injury talk too... thanks for readingMLE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Welcome to the Group mle, This is a great group..everyone is informative, compassionate, and very good listeners when needed to be. I was dx with RSD in July and I have it in both hands..so I can empathize with you having trouble typing. Hope the blocks give you relief from this...Ginnymle24@... wrote: Hi all I am new here- Not new with RCD/CRPS... I just had my 3rd Stelli Block and hopeful that it will help! would keep my fingers crossed- only my left hand hasn't really cooperated since 03-04-2003- the day I injured it... I won't write too much as I am sure tired of trying to type tonight- it takes me a while. Also I have a 5 month old who is finally asleep- which is another factor in my drive to get better. I am not sure what these post type/chat rooms are like but thought it was worth a shot- I am sick of talking with friends and loved ones about it- and I am sure they are tired of the injury talk too... thanks for readingMLE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Welcome to the Group mle, This is a great group..everyone is informative, compassionate, and very good listeners when needed to be. I was dx with RSD in July and I have it in both hands..so I can empathize with you having trouble typing. Hope the blocks give you relief from this...Ginnymle24@... wrote: Hi all I am new here- Not new with RCD/CRPS... I just had my 3rd Stelli Block and hopeful that it will help! would keep my fingers crossed- only my left hand hasn't really cooperated since 03-04-2003- the day I injured it... I won't write too much as I am sure tired of trying to type tonight- it takes me a while. Also I have a 5 month old who is finally asleep- which is another factor in my drive to get better. I am not sure what these post type/chat rooms are like but thought it was worth a shot- I am sick of talking with friends and loved ones about it- and I am sure they are tired of the injury talk too... thanks for readingMLE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 > > Hi MLE Welcome to the group, sit down, grab yourself a nice hot cup of something yummy and relax. You have found yourself a great group of people who are more than willing to hear what you have to say and can hopefully give you some sound advice as well to whatever questions you have. Good meeting you! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 WELCOME MLE YOU SURE CAN GET HELP AND SUPPORT AND I HOPE YOU JUMP RIGHT IN. I WISH YOU A HAPPY HOLIDAYS AND CONGRADS ON YOUR BABY .... SOFT HUGS PAMGinny Barrientos wrote: Welcome to the Group mle, This is a great group..everyone is informative, compassionate, and very good listeners when needed to be. I was dx with RSD in July and I have it in both hands..so I can empathize with you having trouble typing. Hope the blocks give you relief from this...Ginnymle24@... wrote: Hi all I am new here- Not new with RCD/CRPS... I just had my 3rd Stelli Block and hopeful that it will help! would keep my fingers crossed- only my left hand hasn't really cooperated since 03-04-2003- the day I injured it... I won't write too much as I am sure tired of trying to type tonight- it takes me a while. Also I have a 5 month old who is finally asleep- which is another factor in my drive to get better. I am not sure what these post type/chat rooms are like but thought it was worth a shot- I am sick of talking with friends and loved ones about it- and I am sure they are tired of the injury talk too... thanks for readingMLE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Welcome, "MLE" I am sure it must be very difficult trying to deal with RSD AND a five month old, too. There is another woman in the group, Tonia, who also had a child while dealing with RSD. It sounds as if you are having treatments, which is good. I'm sure you'll find that this group is wonderful. Full of caring, supportive people who will do what they can to help. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Welcome, "MLE" I am sure it must be very difficult trying to deal with RSD AND a five month old, too. There is another woman in the group, Tonia, who also had a child while dealing with RSD. It sounds as if you are having treatments, which is good. I'm sure you'll find that this group is wonderful. Full of caring, supportive people who will do what they can to help. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Marisa- wrote: >>>>>>>>Anyway, my doctor prescribed 2% lidocaine. Does anyone else have experience with this? One concern that occurred to me was that it could make my fiance numb as well...Hi, and welcome to the group...several of us do use/have used the Lidocaine. I use it every time before sex and it has never made my husband numb. You usually use it about 15-30 minutes before and I think it absorbs by then. You can go to the home page for the group and then do a search in the archives, just type in Lidocaine and it will give you past posts about it. If you have any other questions, ask away *grin*, and we'll try to help.... Take care, Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Thanks, Chelle. I forgot to give my name! It's Marisa- but I go by Mara. How rude of me :-) >>>>>>>>Anyway, my doctor prescribed 2% lidocaine. Does anyone else have > experience with this? One concern that occurred to me was that it could > make my fiance numb as well... > > > > Hi, and welcome to the group...several of us do use/have used the Lidocaine. I use it every time before sex and it has never made my husband numb. You usually use it about 15-30 minutes before and I think it absorbs by then. You can go to the home page for the group and then do a search in the archives, just type in Lidocaine and it will give you past posts about it. If you have any other questions, ask away *grin*, and we'll try to help.... Take care, Chelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Marisa- wrote: Thanks, Chelle. I forgot to give my name! It's Marisa- but I go by Mara. How rude of me :-) You're welcome, Mara....and not rude at all. Some of the ladies on here never give their real names...it just depends on what you are comfortable with...I will say that you will find a lot a good info on this group. Dee, who is the group owner is awesome...which has anybody heard from Dee? Is she back from vacation? Anyway, look through old posts...ask questions and you'll learn more than you ever dreamed possible about vulvar pain! *grin* ~Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 > > I'm new here, so I'll just go down a list of my symptoms and what I've done > to try to relieve them. Here we go: > > Symptoms: > > itchy labia minora and vestibule > frequency in urination > feeling I can't void my bladder completely > occasional burning while urinating > occasional swelling of vulva area > painful intercourse, feels like I'm being rubbed raw > Vagina extremely itchy after ejaculation > Frequent burning or itching after intercourse > foul, urine/ammonia-like odor > > > (Sounds like a classic infection, doesn't it????) > > > Now, we embark on the odyssey I've taken to try to solve this problem: > > First, I went to see my OB/GYN and told her I was having pain during > intercourse. She checked me for infections, VD, and performed a urinalysis. > All were clean. She asked me to come back in a couple of weeks to discuss > the results of the tests. > > > I went back and we discussed the results of the tests. She examined me > again and found a small area of skin near the hymenal ring that looked very > red. She called it " contact dermatitis " and prescribed a topical cream (a > steroid cream) for it. > > > I went back when the cream didn't work (it cleared up that particular area > of redness, but I still itched like crazy). She examined me again and found > nothing wrong with me. She suggested that my problem was psychological and > referred me to a sex therapist. I started trying to find one. She asked me > to make another appointment for my yearly exam. > > > At my yearly exam, I burst into tears. I was extremely frustrated at this > problem (and at her) by this point. She basically told me that she'd have > to do exploratory surgery to find anything wrong since she had examined me > four times and not found anything wrong. She again suggested that I see a > sex therapist. > > > I finally DID find a sex therapist who told me I have vaginismus, a > diagnosis that I do not agree with. I contacted my OB/GYN and told her > about the diagnosis. She disagrees with it too since she never saw any > evidence of it while examining me and it doesn't match my symptoms, but she > said to give the therapist a chance. > > > > I'm CONVINCED there's something physically wrong and I'm tired of getting > the run-around. In the meantime, I need something to RELIEVE THIS ITCHING. > Please help! I know what you have been through. Try and find a derm or a vulvar specialist. It sounds as if you may have Lichen Planus which causes severe pain, itch and burning in the area affected. The specialist may have to do a biopsy to determine the disease. LP can be treated with topical steroids. > > ________________________________________________________________________\ _ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > Quote Link to comment Share on other sites More sharing options...
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