Re: Helmet questions/Lehrman and Sons Helmet

[Guest guest]

Hi,

I am extremely alarmed to read about your helmet experience. Multiple

sores as you are describing are unacceptable and not part of normal

band or helmet therapy no matter which brand you are using. Rarely a

persistant red area will go undetected and develop into a skin

breakdown before an adjustment is made to the helmet interior. This

is a first for me to hear of " foul smelling sores. " Have you already

taken the helmet off of your baby? It is my understand that when

there is a skin breakdown under the helmet, the helmet should be

removed until it heals.

Was your baby recasted for the second band when it was determined that

the first helmet was sized improperly? How much time passed between

casting and fitting for the second helmet? Regardless of what

happened, the fact that you have suffered an improperly sized helmet,

and a multiple sore-causing helmet is quite disheartening. These are

symptoms of an improper fit, which, at best, might not correct the

deformity, and, at worst, might actually make the deformity worse!

What does your ortho say about the sores your baby is having, and what

is the current treatment game plan?

We have had other members switch band providers after an unhappy

experience with a former provider, unfortunately. I understand how

your insurance won't cover another brand, but perhaps a case could be

made that the covered provider is unable to provide corrective

treatment. Do you have documentation of the first, improperly sized

band, and the sores on your baby's head from the current band? It

might behoove you to gather up this info and take a few photos.

Others in your uncommon situation who decided to pursue another

product have successfully petitioned to get their money refunded, or

approval for a different brand of band.

There are avenues for formal complaint if you feel you have not

received proper customer care despite giving the ortho ample

opportunity to rectify the situation.

I wish I could be of more help! We just had a new group member post

yesterday asking if anyone had used the Lerman and Son's helmet.

Christie (Mom to Repo'd Remy)

> > >

> > > My daughter was diagnosed with asymetrical brachy at around

> 5

> months.

> > > We have been using a helmet that was cast. I see many

> people

> using

> > > the DOC bands (not covered under my insurance but the helmet

>

> was) The

> > > specialist I saw in LA, Dr. Graham, recommends the helmet

> over

> the

> > DOC

> > > band. I have no reason to disbelieve him as he has written

> many

> > > articles on the subject but the helmet has been such a huge

> pain.

> > She

> > > has developed oozing sores due to the helmet. A couple of

> > questions -

> > >

> > > What is the difference between the two and are the results

> the

> same?

> > > Has anyone else has to deal with foul smelling sores?

> > >

> > > Thanks!

> > >

> >

>

>

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> For more plagio info