Re: Re: Newbie in California

March 3, 2004

In a message dated 3/3/04 6:16:57 PM Eastern Standard Time,

kdavis@... writes:

<< The next issue of EDS Today is about the

decision whether or not to have kids, and my story will be in that issue.

>>

I can't wait to see the issue! My sister is getting married in August and I

can pass the issue on to her. She has not been tested (but primary doc is

sure she has it) and is not sure about what to do, but maybe reading other's

opinions will help her with her decisions.

Thanks,

Sue Ginley

March 3, 2004

In a message dated 3/3/04 6:16:57 PM Eastern Standard Time,

kdavis@... writes:

<< The next issue of EDS Today is about the

decision whether or not to have kids, and my story will be in that issue.

>>

I can't wait to see the issue! My sister is getting married in August and I

can pass the issue on to her. She has not been tested (but primary doc is

sure she has it) and is not sure about what to do, but maybe reading other's

opinions will help her with her decisions.

Thanks,

Sue Ginley

March 3, 2004

In a message dated 3/3/04 6:16:57 PM Eastern Standard Time,

kdavis@... writes:

<< The next issue of EDS Today is about the

decision whether or not to have kids, and my story will be in that issue.

>>

I can't wait to see the issue! My sister is getting married in August and I

can pass the issue on to her. She has not been tested (but primary doc is

sure she has it) and is not sure about what to do, but maybe reading other's

opinions will help her with her decisions.

Thanks,

Sue Ginley

March 3, 2004

Hi ,

> Fortunately, though, my

> husband and I don't plan on having children. We do have a dog,

> though. :-)

Me too! My husband and I knew from the time we met 10 years ago that we

weren't going to have kids. We both have EDS. We adopted a dog just over 3

years ago and he's quite enough. The next issue of EDS Today is about the

decision whether or not to have kids, and my story will be in that issue.

-Barb

March 3, 2004

Hi ,

> Fortunately, though, my

> husband and I don't plan on having children. We do have a dog,

> though. :-)

Me too! My husband and I knew from the time we met 10 years ago that we

weren't going to have kids. We both have EDS. We adopted a dog just over 3

years ago and he's quite enough. The next issue of EDS Today is about the

decision whether or not to have kids, and my story will be in that issue.

-Barb

March 3, 2004

Hi ,

> Fortunately, though, my

> husband and I don't plan on having children. We do have a dog,

> though. :-)

Me too! My husband and I knew from the time we met 10 years ago that we

weren't going to have kids. We both have EDS. We adopted a dog just over 3

years ago and he's quite enough. The next issue of EDS Today is about the

decision whether or not to have kids, and my story will be in that issue.

-Barb

March 3, 2004

> I can't wait to see the issue! My sister is getting married in August and

I

> can pass the issue on to her. She has not been tested (but primary doc is

> sure she has it) and is not sure about what to do, but maybe reading

other's

> opinions will help her with her decisions.

I'm glad to know you're looking forward to it. EDS Today is doing a series

on life-decisions including whether or not to have kids, pregnancy &

childbirth, birth control, sterilization, etc. It's a bold venture, and one

I hope resonates with our readers, regardless of which decisions they have

made or will make on the issue of having kids.

-Barb

March 3, 2004

> I can't wait to see the issue! My sister is getting married in August and

I

> can pass the issue on to her. She has not been tested (but primary doc is

> sure she has it) and is not sure about what to do, but maybe reading

other's

> opinions will help her with her decisions.

I'm glad to know you're looking forward to it. EDS Today is doing a series

on life-decisions including whether or not to have kids, pregnancy &

childbirth, birth control, sterilization, etc. It's a bold venture, and one

I hope resonates with our readers, regardless of which decisions they have

made or will make on the issue of having kids.

-Barb

March 3, 2004

http://www.ndrf.org/NDRF%20Patient%20Handbook/SecB_pp265-274.PDF

This has info on SSD and disability....

Re: Newbie in California

, do you work or stay at home? Have young children at home?

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

March 3, 2004

http://www.ndrf.org/NDRF%20Patient%20Handbook/SecB_pp265-274.PDF

This has info on SSD and disability....

Re: Newbie in California

, do you work or stay at home? Have young children at home?

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

March 3, 2004

http://www.ndrf.org/NDRF%20Patient%20Handbook/SecB_pp265-274.PDF

This has info on SSD and disability....

Re: Newbie in California

, do you work or stay at home? Have young children at home?

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

March 3, 2004

Thanks, . I just wondered if " fogginess " would be a problem for you,

and if so, you should mention it to the rheumy so that he doesn't give you

something that puts you in lala land. I take Ultram (Tramadol) and my

doctor told me it wasn't a narcotic, so he felt better about giving that to

me. I started with one each morning and night, and then went to two. He's

told me I can take it a third time if I need to. It has done pretty well

for me, and I didn't have any funny feelings from it. I also take Vioxx.

Hope this helps.

Love Lana

p.s. you'll find lots of dog lovers on the list, as well as cat lovers,

parrot lovers, lizard lovers, etc. Seems most of us have a pet of some

sort! I have a cock-a-poo (Bucky). He's the REAL head of the household!

LOL

Re: Newbie in California

Lana - I work full time as a speech therapist in an elementary

school. I work with individual students or small groups of kids (my

largest group right now is 4 students). I am able to sit for most of

the day but also have the flexibility to get up and move around my

office between groups of kids every 25-30 minutes. Plus, if I'm

really achy I can fidget during a group. I've been able to do my job

when I had my left arm in a sling and my right ankle elevated in a

chair next to me. If I had been a regular classroom teacher, I think

I would be in serious trouble with all the standing and would need to

make serious modifications. As for your other question, I don't have

any children, and I don't see how I would make it through the

pregnancy, let alone chasing toddlers. Fortunately, though, my

husband and I don't plan on having children. We do have a dog,

though. :-) She can be enough trouble! But, the best thing about

her is that she is an English Bulldog, which means she is lazy, so I

don't have to worry about taking her on long walks or having her jump

up on me and hurt me!

Jen - I actually went armed to my primary care Dr with printed out

articles as well as the Beighton and Brighton criteria all

highlighted. He glanced at the criteria sheets adn I didnt bother to

show him the others (linking syncope, fatigue, and anasthesia effects

to HEDS and HMS) since he was willing to refer me to the

rheumatologist. But, I plan to bring the same articles to show the

rheumy. I figure if nothing else, it helps show that I have some

idea what I'm talking about and I find the doctors tend to treat

patients who have done a little research with more respect. And with

documentation, I feel less like a hypochondriac. I was also planning

to check withthe nurse about his experience with EDS, but I haven't

gotten the return call yet. It is nice to hear that I seem to be

taking some of the right steps.

To learn more about EDS, visit our website: http://www.ceda.ca

_____

March 3, 2004