Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Hi again I just found this quote and had a few questions about it. First here is the quote: " In the classic type, the patients are born prematurely because of premature rupture of fetal membranes, and have severe skin and joint involvement but no varicose veins or arterial ruptures. " Well I have been diagnosed with Hypermobility Type but it seems like being born prematurly is a sign of the classical type. I was born at 29 weeks and there had been no history of premature births in my family. The genetisist said that being born prematurely was something to look at when looking at the entire EDS syndrome, but this seems to say that it is part of Classical. How simmilar are classical and hypermobile types? Should I be concerned about the classical type? How likely is it that I could be classical and not hypermobile? I have very hypermobile joints (with only dislocating wrists adn subluxing joints), not too many skin signs (mild bruising, soft velvety skin) and other possibly related health problems (mild asthma, chronic sinusitis etc). Thanks in advance Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Stacey, Premature births can occur in any type of EDS and is often a sign of the baby affected with EDS. It is seen in all types of EDS but predominantly vascular and classic type. The main difference between classic and hypermobility type is the degree of skin and hypermobility issues. In classic type, there are more skin issues than joint dislocations but in hypermobility type, the issues are the opposite - less skin issues but more dislocations, etc. The diagnosis of the two lies completely within the severity of the skin issues. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 I have the classical type too, but not with the excessively fragile skin Fay has, though it is very stretchy, and my joints are hypermobile. When I do have an open wound, it takes a while to heal and leaves a cigarette scar. But I don't often easily have the skin break. Nor do I dislocate easily, but I suspect my joints subluxate much more than I know. I discovered a few weeks ago, for example, that my thumbs are extremely subluxated. Only in the last few years have they started to really cause pain. I do bruise very easily, with all the accompanying pain of bruising, usually lasting a long time. I fell last Wednesday, can't figure out how it happened, didn't twist my ankle, but now have tremendous bruises on either side of my ankle, up the back of the calf, and in a weird series of black bruises running up from the back of the knee, as well as a huge hand-sized one on the side of the thigh where I landed. One of the things I am noticing as I get older is that I am just tired a lot, especially after using my body excessively, or in the weeks after a fall like that. I feel mentally wired, but my body gets slower and slower, and I want to spend more time at home in a comfortable position, just resting. So while I certainly don't have hypermobile type, I also don't have some of the classic symptoms of the classical type. I think I was born a bit prematurely, but not remarkably so. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <image.tiff> > > > > • > > > • > > > • > > Lenore Hietkamp PhD Program Art History Division School of Art University of Washington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 I have the classical type too, but not with the excessively fragile skin Fay has, though it is very stretchy, and my joints are hypermobile. When I do have an open wound, it takes a while to heal and leaves a cigarette scar. But I don't often easily have the skin break. Nor do I dislocate easily, but I suspect my joints subluxate much more than I know. I discovered a few weeks ago, for example, that my thumbs are extremely subluxated. Only in the last few years have they started to really cause pain. I do bruise very easily, with all the accompanying pain of bruising, usually lasting a long time. I fell last Wednesday, can't figure out how it happened, didn't twist my ankle, but now have tremendous bruises on either side of my ankle, up the back of the calf, and in a weird series of black bruises running up from the back of the knee, as well as a huge hand-sized one on the side of the thigh where I landed. One of the things I am noticing as I get older is that I am just tired a lot, especially after using my body excessively, or in the weeks after a fall like that. I feel mentally wired, but my body gets slower and slower, and I want to spend more time at home in a comfortable position, just resting. So while I certainly don't have hypermobile type, I also don't have some of the classic symptoms of the classical type. I think I was born a bit prematurely, but not remarkably so. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <image.tiff> > > > > • > > > • > > > • > > Lenore Hietkamp PhD Program Art History Division School of Art University of Washington Quote Link to comment Share on other sites More sharing options...
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