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Coming to the UK in June

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Hi Bonnie,

What a wonderful opportunity for ...and you!! I went on a similar

three week trip when I was in high school with a small group one summer. There

was

only one other girl so it was ffffuuuuunn!!

I can certainly understand your concerns about how your body will hold up.

I'd be concerned too. Is there any way you can get on Lotronex before then for

you IBS? That would at least help put that considerable worry to rest. Do you

have things that help you to sleep when you need to? What about helping with

all the walking that you will be doing? Do you use a cane, wheelchair or

scooter?

Trying to come up with as many adaptive and assitance things as possible will

be a big help. Aase Marit travels alot . She would be a good resource.

It sounds wonderful!!

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Guest guest

Hi Bonnie,

What a wonderful opportunity for ...and you!! I went on a similar

three week trip when I was in high school with a small group one summer. There

was

only one other girl so it was ffffuuuuunn!!

I can certainly understand your concerns about how your body will hold up.

I'd be concerned too. Is there any way you can get on Lotronex before then for

you IBS? That would at least help put that considerable worry to rest. Do you

have things that help you to sleep when you need to? What about helping with

all the walking that you will be doing? Do you use a cane, wheelchair or

scooter?

Trying to come up with as many adaptive and assitance things as possible will

be a big help. Aase Marit travels alot . She would be a good resource.

It sounds wonderful!!

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Guest guest

asked me on Friday to please please please go with her on her school

trip to the UK in June this year. I've been thinking about it since she

first found out about the trip in the fall of 2003. We will be in Ireland

for a week, then ferry over to Swansea, Wales, spend time in Wales, then bus

to Bath for a couple of days. Then drive to London via Stonehenge for the

last 3 days of the trip. Anyone on the route in Ireland (see itinerary

below), near Swansea area, Bath, or London? I know a couple people live near

London....

I was to the UK in 1971 for a month with my sister and we rented a car and

drove around England and Scotland, then flew over to Ireland and took bus

trips around parts of Ireland. I was in London in 1976 on a university

class trip where we also went to Paris to continue our class. That was a 2

week course. So, I'm excited and nervous about this new trip to the UK

because of how my body is falling apart and the horrible IBS I have....

Unfortunately, we will be on an overnight flight and I don't sleep except in

my own bed.... Any suggestions to help me on the flight would be

appreciated. We will be on a coach bus for the rest of the trip. I'm

looking for an inflatable cushion to take with as I have a really bad time

sitting for any length of time. Thanks in advance for any help!

Day 1 > Overnight Flight

Fly to Ireland

Day 2 > Hello Dublin

Meet your Tour Director

Dublin free time

Day 3 > Dublin Landmarks

Dublin guided sightseeing tour

Phoenix Park

St. 's Cathedral visit

Trinity College Book of Kells visit

Dublin city walk

O'Connell Street

Parnell Square

Henry Street

Irish folklore evening

Day 4 > Dublin--Galway

Travel to Galway

Bog Train excursion

Day 5 > Galway Landmarks

Galway city walk

Spanish Arch

Quay Street

St. ' Church

Eyre Square

Connemara excursion

more Abbey visit

Day 6 > Galway--Killarney

Travel to Killarney via Cliffs of Moher & Limerick

Day 7 > Ring of Kerry

Ring of Kerry excursion

Visit sheep farm

Lunch

Day 8 > Killarney--Kinsale

Blarney Castle visit

Kinsale Crystal visit

Day 9 > Cork--Cardiff

Ferry ride across the Irish Sea to Swansea

Travel to Cardiff

Day 10 > Cardiff--Bath

Cardiff Castle visit

Travel to Bath

Day 11 > Bath Landmarks

Bath guided sightseeing tour

Pulteney Bridge

Roman Baths visit

Abbey

Tintern Abbey visit

Day 12 > Bath--London

Travel to London

Stonehenge visit

London Eye Millennium Wheel

Day 13 > London Landmarks

London guided sightseeing tour

Buckingham Palace

Big Ben

Houses of Parliament

Tower Bridge

Hyde Park

Westminster Abbey visit

Tower of London guided tour

Day 14 > London

London free day

Day 15 > Flight Home

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Guest guest

Bonnie, I don't have a lot of time right at the moment, but I know places

like Dr. Leonard's and other online health places would have them if you

look for " inflatable seat cushion " for pillow. I know there are others, I

just can't bring them to mind right away. Do a search under Google, and I

know you'll find something.

Love Lana

Coming to the UK in June

asked me on Friday to please please please go with her on her school

trip to the UK in June this year. I've been thinking about it since she

first found out about the trip in the fall of 2003. We will be in Ireland

for a week, then ferry over to Swansea, Wales, spend time in Wales, then bus

to Bath for a couple of days. Then drive to London via Stonehenge for the

last 3 days of the trip. Anyone on the route in Ireland (see itinerary

below), near Swansea area, Bath, or London? I know a couple people live near

London....

I was to the UK in 1971 for a month with my sister and we rented a car and

drove around England and Scotland, then flew over to Ireland and took bus

trips around parts of Ireland. I was in London in 1976 on a university

class trip where we also went to Paris to continue our class. That was a 2

week course. So, I'm excited and nervous about this new trip to the UK

because of how my body is falling apart and the horrible IBS I have....

Unfortunately, we will be on an overnight flight and I don't sleep except in

my own bed.... Any suggestions to help me on the flight would be

appreciated. We will be on a coach bus for the rest of the trip. I'm

looking for an inflatable cushion to take with as I have a really bad time

sitting for any length of time. Thanks in advance for any help!

Day 1 > Overnight Flight

Fly to Ireland

Day 2 > Hello Dublin

Meet your Tour Director

Dublin free time

Day 3 > Dublin Landmarks

Dublin guided sightseeing tour

Phoenix Park

St. 's Cathedral visit

Trinity College Book of Kells visit

Dublin city walk

O'Connell Street

Parnell Square

Henry Street

Irish folklore evening

Day 4 > Dublin--Galway

Travel to Galway

Bog Train excursion

Day 5 > Galway Landmarks

Galway city walk

Spanish Arch

Quay Street

St. ' Church

Eyre Square

Connemara excursion

more Abbey visit

Day 6 > Galway--Killarney

Travel to Killarney via Cliffs of Moher & Limerick

Day 7 > Ring of Kerry

Ring of Kerry excursion

Visit sheep farm

Lunch

Day 8 > Killarney--Kinsale

Blarney Castle visit

Kinsale Crystal visit

Day 9 > Cork--Cardiff

Ferry ride across the Irish Sea to Swansea

Travel to Cardiff

Day 10 > Cardiff--Bath

Cardiff Castle visit

Travel to Bath

Day 11 > Bath Landmarks

Bath guided sightseeing tour

Pulteney Bridge

Roman Baths visit

Abbey

Tintern Abbey visit

Day 12 > Bath--London

Travel to London

Stonehenge visit

London Eye Millennium Wheel

Day 13 > London Landmarks

London guided sightseeing tour

Buckingham Palace

Big Ben

Houses of Parliament

Tower Bridge

Hyde Park

Westminster Abbey visit

Tower of London guided tour

Day 14 > London

London free day

Day 15 > Flight Home

To learn more about EDS, visit our website: http://www.ceda.ca

_____

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Guest guest

Bonnie, I don't have a lot of time right at the moment, but I know places

like Dr. Leonard's and other online health places would have them if you

look for " inflatable seat cushion " for pillow. I know there are others, I

just can't bring them to mind right away. Do a search under Google, and I

know you'll find something.

Love Lana

Coming to the UK in June

asked me on Friday to please please please go with her on her school

trip to the UK in June this year. I've been thinking about it since she

first found out about the trip in the fall of 2003. We will be in Ireland

for a week, then ferry over to Swansea, Wales, spend time in Wales, then bus

to Bath for a couple of days. Then drive to London via Stonehenge for the

last 3 days of the trip. Anyone on the route in Ireland (see itinerary

below), near Swansea area, Bath, or London? I know a couple people live near

London....

I was to the UK in 1971 for a month with my sister and we rented a car and

drove around England and Scotland, then flew over to Ireland and took bus

trips around parts of Ireland. I was in London in 1976 on a university

class trip where we also went to Paris to continue our class. That was a 2

week course. So, I'm excited and nervous about this new trip to the UK

because of how my body is falling apart and the horrible IBS I have....

Unfortunately, we will be on an overnight flight and I don't sleep except in

my own bed.... Any suggestions to help me on the flight would be

appreciated. We will be on a coach bus for the rest of the trip. I'm

looking for an inflatable cushion to take with as I have a really bad time

sitting for any length of time. Thanks in advance for any help!

Day 1 > Overnight Flight

Fly to Ireland

Day 2 > Hello Dublin

Meet your Tour Director

Dublin free time

Day 3 > Dublin Landmarks

Dublin guided sightseeing tour

Phoenix Park

St. 's Cathedral visit

Trinity College Book of Kells visit

Dublin city walk

O'Connell Street

Parnell Square

Henry Street

Irish folklore evening

Day 4 > Dublin--Galway

Travel to Galway

Bog Train excursion

Day 5 > Galway Landmarks

Galway city walk

Spanish Arch

Quay Street

St. ' Church

Eyre Square

Connemara excursion

more Abbey visit

Day 6 > Galway--Killarney

Travel to Killarney via Cliffs of Moher & Limerick

Day 7 > Ring of Kerry

Ring of Kerry excursion

Visit sheep farm

Lunch

Day 8 > Killarney--Kinsale

Blarney Castle visit

Kinsale Crystal visit

Day 9 > Cork--Cardiff

Ferry ride across the Irish Sea to Swansea

Travel to Cardiff

Day 10 > Cardiff--Bath

Cardiff Castle visit

Travel to Bath

Day 11 > Bath Landmarks

Bath guided sightseeing tour

Pulteney Bridge

Roman Baths visit

Abbey

Tintern Abbey visit

Day 12 > Bath--London

Travel to London

Stonehenge visit

London Eye Millennium Wheel

Day 13 > London Landmarks

London guided sightseeing tour

Buckingham Palace

Big Ben

Houses of Parliament

Tower Bridge

Hyde Park

Westminster Abbey visit

Tower of London guided tour

Day 14 > London

London free day

Day 15 > Flight Home

To learn more about EDS, visit our website: http://www.ceda.ca

_____

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Guest guest

Bonnie, I don't have a lot of time right at the moment, but I know places

like Dr. Leonard's and other online health places would have them if you

look for " inflatable seat cushion " for pillow. I know there are others, I

just can't bring them to mind right away. Do a search under Google, and I

know you'll find something.

Love Lana

Coming to the UK in June

asked me on Friday to please please please go with her on her school

trip to the UK in June this year. I've been thinking about it since she

first found out about the trip in the fall of 2003. We will be in Ireland

for a week, then ferry over to Swansea, Wales, spend time in Wales, then bus

to Bath for a couple of days. Then drive to London via Stonehenge for the

last 3 days of the trip. Anyone on the route in Ireland (see itinerary

below), near Swansea area, Bath, or London? I know a couple people live near

London....

I was to the UK in 1971 for a month with my sister and we rented a car and

drove around England and Scotland, then flew over to Ireland and took bus

trips around parts of Ireland. I was in London in 1976 on a university

class trip where we also went to Paris to continue our class. That was a 2

week course. So, I'm excited and nervous about this new trip to the UK

because of how my body is falling apart and the horrible IBS I have....

Unfortunately, we will be on an overnight flight and I don't sleep except in

my own bed.... Any suggestions to help me on the flight would be

appreciated. We will be on a coach bus for the rest of the trip. I'm

looking for an inflatable cushion to take with as I have a really bad time

sitting for any length of time. Thanks in advance for any help!

Day 1 > Overnight Flight

Fly to Ireland

Day 2 > Hello Dublin

Meet your Tour Director

Dublin free time

Day 3 > Dublin Landmarks

Dublin guided sightseeing tour

Phoenix Park

St. 's Cathedral visit

Trinity College Book of Kells visit

Dublin city walk

O'Connell Street

Parnell Square

Henry Street

Irish folklore evening

Day 4 > Dublin--Galway

Travel to Galway

Bog Train excursion

Day 5 > Galway Landmarks

Galway city walk

Spanish Arch

Quay Street

St. ' Church

Eyre Square

Connemara excursion

more Abbey visit

Day 6 > Galway--Killarney

Travel to Killarney via Cliffs of Moher & Limerick

Day 7 > Ring of Kerry

Ring of Kerry excursion

Visit sheep farm

Lunch

Day 8 > Killarney--Kinsale

Blarney Castle visit

Kinsale Crystal visit

Day 9 > Cork--Cardiff

Ferry ride across the Irish Sea to Swansea

Travel to Cardiff

Day 10 > Cardiff--Bath

Cardiff Castle visit

Travel to Bath

Day 11 > Bath Landmarks

Bath guided sightseeing tour

Pulteney Bridge

Roman Baths visit

Abbey

Tintern Abbey visit

Day 12 > Bath--London

Travel to London

Stonehenge visit

London Eye Millennium Wheel

Day 13 > London Landmarks

London guided sightseeing tour

Buckingham Palace

Big Ben

Houses of Parliament

Tower Bridge

Hyde Park

Westminster Abbey visit

Tower of London guided tour

Day 14 > London

London free day

Day 15 > Flight Home

To learn more about EDS, visit our website: http://www.ceda.ca

_____

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Guest guest

Bonnie, I will write to you offlist about your trip to the UK as I'd

love to think we could manage to meet up at some point! :-)

As to making the flight easier, in 2001 I did a 26 straight flight to

Australia on crutches and only a few months after surgery so

everything I could find to help I used! If possible call your airline

in advance to warn them of your condition (get back up from youe GP

and specialists if necessary) most companies are very cooperative and

will make sure you get assistance to and from the plane and with your

luggage. I found Kuala Lumper adn Brisbane airport staff fantastic

and I was met off the plane with a wheelchair and whisked through

customs and bagge reclaim etc - and allowed to board first without

the hassle of impateint people pushing and shoving too - it's

certainly wirth asking for help that's for sure.

As for on the flight, ask if you could have an unrestricted leg room

seat, i.e, on a bulkhead/row front. The inflatable cushions are a

real help as are the neck pillows you can buy as well. Here are a few

links to places that do travel and inflatable cushions:

http://www.putnams.co.uk/travel_pillows_seats_cushions.htm

http://www.pinnaclepetsupply.com/bunzeeze.htm

http://www.pocketseat.com/IDY052/cont/default.asp

Apart from that it's just the usual flight precuations - getting up

to hobble around to get the joints moving and exercising the limbs

while seated. Try to drink plenty of water and ask your GP about

precuationary medications that will help you endure the sitting and

cramped conditions. I'll wrack my brain for anything else that helped

me and drop you a note. Hope thise helps though.

Love and hugs....Jo

xxx

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Guest guest

Bonnie, I will write to you offlist about your trip to the UK as I'd

love to think we could manage to meet up at some point! :-)

As to making the flight easier, in 2001 I did a 26 straight flight to

Australia on crutches and only a few months after surgery so

everything I could find to help I used! If possible call your airline

in advance to warn them of your condition (get back up from youe GP

and specialists if necessary) most companies are very cooperative and

will make sure you get assistance to and from the plane and with your

luggage. I found Kuala Lumper adn Brisbane airport staff fantastic

and I was met off the plane with a wheelchair and whisked through

customs and bagge reclaim etc - and allowed to board first without

the hassle of impateint people pushing and shoving too - it's

certainly wirth asking for help that's for sure.

As for on the flight, ask if you could have an unrestricted leg room

seat, i.e, on a bulkhead/row front. The inflatable cushions are a

real help as are the neck pillows you can buy as well. Here are a few

links to places that do travel and inflatable cushions:

http://www.putnams.co.uk/travel_pillows_seats_cushions.htm

http://www.pinnaclepetsupply.com/bunzeeze.htm

http://www.pocketseat.com/IDY052/cont/default.asp

Apart from that it's just the usual flight precuations - getting up

to hobble around to get the joints moving and exercising the limbs

while seated. Try to drink plenty of water and ask your GP about

precuationary medications that will help you endure the sitting and

cramped conditions. I'll wrack my brain for anything else that helped

me and drop you a note. Hope thise helps though.

Love and hugs....Jo

xxx

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Share on other sites

Guest guest

Bonnie, I will write to you offlist about your trip to the UK as I'd

love to think we could manage to meet up at some point! :-)

As to making the flight easier, in 2001 I did a 26 straight flight to

Australia on crutches and only a few months after surgery so

everything I could find to help I used! If possible call your airline

in advance to warn them of your condition (get back up from youe GP

and specialists if necessary) most companies are very cooperative and

will make sure you get assistance to and from the plane and with your

luggage. I found Kuala Lumper adn Brisbane airport staff fantastic

and I was met off the plane with a wheelchair and whisked through

customs and bagge reclaim etc - and allowed to board first without

the hassle of impateint people pushing and shoving too - it's

certainly wirth asking for help that's for sure.

As for on the flight, ask if you could have an unrestricted leg room

seat, i.e, on a bulkhead/row front. The inflatable cushions are a

real help as are the neck pillows you can buy as well. Here are a few

links to places that do travel and inflatable cushions:

http://www.putnams.co.uk/travel_pillows_seats_cushions.htm

http://www.pinnaclepetsupply.com/bunzeeze.htm

http://www.pocketseat.com/IDY052/cont/default.asp

Apart from that it's just the usual flight precuations - getting up

to hobble around to get the joints moving and exercising the limbs

while seated. Try to drink plenty of water and ask your GP about

precuationary medications that will help you endure the sitting and

cramped conditions. I'll wrack my brain for anything else that helped

me and drop you a note. Hope thise helps though.

Love and hugs....Jo

xxx

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Guest guest

Re: Coming to the UK in June

Is there any way you can get on Lotronex before then for

you IBS? That would at least help put that considerable worry to rest. Do you

have things that help you to sleep when you need to? What about helping with

all the walking that you will be doing? Do you use a cane, wheelchair or

scooter?

Trying to come up with as many adaptive and assitance things as possible will

be a big help. Aase Marit travels alot . She would be a good resource.

It sounds wonderful!!

~~~~~~`

Thanks for the tips, ! I don't know about the Lotronex... will have to

visit with the GI doc again and get some meds for the diarrhea...

I can usually manage some walking. I don't normally use a wheelchair and don't

own a scooter. We do have a manual wheelchair we could take with since we are

on a bus most of the time. I do have a cane I could take with if the joints act

up.

I was at the chiropractor today and he suggested a blowup swim ring kids use

to sit on in the plane and in the bus....hadn't thought of that one!

Bonnie

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Re: Coming to the UK in June

Bonnie, I will write to you offlist about your trip to the UK as I'd

love to think we could manage to meet up at some point! :-)

thanks Jo!!! I'd love to meet you too!!!

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Guest guest

Re: Coming to the UK in June

Bonnie, I will write to you offlist about your trip to the UK as I'd

love to think we could manage to meet up at some point! :-)

thanks Jo!!! I'd love to meet you too!!!

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