Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi Dawn I put in about 3 3/4 hrs today and Id had it. I am getting some exercise on my legs walking up and down the stairs LOL..I hate their elevator and dont like to take it very often..its only a 3 floor building, I can handle it I have to go do a couple simple errands but then I can rest a bit, I think I'll read for a little while. Ginny gave me a good book that I havent had much time to enjoy, so thats my destination this afternoon! My legs ache but the burning in my back aggrivates me more at this point. Anyway, no worries it is the weekend so I can rest a bit before Christmas hits full force..welllllll...except for the wrapping and buying I still need to do LOL. Hope you are having a great day Dawn. Talk to you soon! Hugs Donna > So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi Dawn I put in about 3 3/4 hrs today and Id had it. I am getting some exercise on my legs walking up and down the stairs LOL..I hate their elevator and dont like to take it very often..its only a 3 floor building, I can handle it I have to go do a couple simple errands but then I can rest a bit, I think I'll read for a little while. Ginny gave me a good book that I havent had much time to enjoy, so thats my destination this afternoon! My legs ache but the burning in my back aggrivates me more at this point. Anyway, no worries it is the weekend so I can rest a bit before Christmas hits full force..welllllll...except for the wrapping and buying I still need to do LOL. Hope you are having a great day Dawn. Talk to you soon! Hugs Donna > So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi Dawn I put in about 3 3/4 hrs today and Id had it. I am getting some exercise on my legs walking up and down the stairs LOL..I hate their elevator and dont like to take it very often..its only a 3 floor building, I can handle it I have to go do a couple simple errands but then I can rest a bit, I think I'll read for a little while. Ginny gave me a good book that I havent had much time to enjoy, so thats my destination this afternoon! My legs ache but the burning in my back aggrivates me more at this point. Anyway, no worries it is the weekend so I can rest a bit before Christmas hits full force..welllllll...except for the wrapping and buying I still need to do LOL. Hope you are having a great day Dawn. Talk to you soon! Hugs Donna > So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lin I work mon-fri but Im only doing a few hrs. Im still quite able to handle a small load of work at home such as dishes, a load or two of laundry and light housekeeping...cant remember the last time my floors were washed though LOL!! Im doing alright though, but at the end of the week Im beat...I left after almost 4 hrs today to come home and do a few things, run a couple errands and relax a bit before going out tonight...I dont see too much slowing down until after the holiday but I get my breaks in when I can Take care Lin, its good hearing from you! Hugs Donna > I agree with Dawn. Don't try and do much at all at home the days you worked. > When I was still working full time, I would of course not do much, mainly > because I was in so much pain, a lot of times in tears, I would take my pain > medication and try to rest. I really am amazed and proud of those that can > still work after they get this monster. That is why I am concerned for you, > because I didn't know what I had I kept pushing my left leg until the day it > said NO when I was getting ready for work. > I hope you have a restful weekend. > Lin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lin I work mon-fri but Im only doing a few hrs. Im still quite able to handle a small load of work at home such as dishes, a load or two of laundry and light housekeeping...cant remember the last time my floors were washed though LOL!! Im doing alright though, but at the end of the week Im beat...I left after almost 4 hrs today to come home and do a few things, run a couple errands and relax a bit before going out tonight...I dont see too much slowing down until after the holiday but I get my breaks in when I can Take care Lin, its good hearing from you! Hugs Donna > I agree with Dawn. Don't try and do much at all at home the days you worked. > When I was still working full time, I would of course not do much, mainly > because I was in so much pain, a lot of times in tears, I would take my pain > medication and try to rest. I really am amazed and proud of those that can > still work after they get this monster. That is why I am concerned for you, > because I didn't know what I had I kept pushing my left leg until the day it > said NO when I was getting ready for work. > I hope you have a restful weekend. > Lin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lin I work mon-fri but Im only doing a few hrs. Im still quite able to handle a small load of work at home such as dishes, a load or two of laundry and light housekeeping...cant remember the last time my floors were washed though LOL!! Im doing alright though, but at the end of the week Im beat...I left after almost 4 hrs today to come home and do a few things, run a couple errands and relax a bit before going out tonight...I dont see too much slowing down until after the holiday but I get my breaks in when I can Take care Lin, its good hearing from you! Hugs Donna > I agree with Dawn. Don't try and do much at all at home the days you worked. > When I was still working full time, I would of course not do much, mainly > because I was in so much pain, a lot of times in tears, I would take my pain > medication and try to rest. I really am amazed and proud of those that can > still work after they get this monster. That is why I am concerned for you, > because I didn't know what I had I kept pushing my left leg until the day it > said NO when I was getting ready for work. > I hope you have a restful weekend. > Lin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi Its more out of necessity than anything else that drives me to work each day. I have a full mortgage, a child in middle school and all of the bills that come with home ownership. It has been too tight lately to live that way so in the time I CAN work, I will..I know that unless things change there may be a day I cant work any longer but for now even if its part time, its still a job. I've been fairly active thru this whole thing, Im stubborn and determined, whether thats a good thing is yet to be decided LOL. Anyway, I've gotta fly, I'll talk to you soon! Hugs Donna > I just want to say ditto what Dawn says. I also want to emphasize the word > rest. Believe me if you push your body, it will one day push back hard. > After I got this no one knew what it was until I found my doctor.There were > some days that I would be driving my 45 minute drive in tears, I would come > home and take 2 of my vicoden and lay down with my feet elevated I worked > full time for 6 months, only missing work for appointments. Then one day I > was getting ready for work, my left leg was swollen and hurting so bad that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi Its more out of necessity than anything else that drives me to work each day. I have a full mortgage, a child in middle school and all of the bills that come with home ownership. It has been too tight lately to live that way so in the time I CAN work, I will..I know that unless things change there may be a day I cant work any longer but for now even if its part time, its still a job. I've been fairly active thru this whole thing, Im stubborn and determined, whether thats a good thing is yet to be decided LOL. Anyway, I've gotta fly, I'll talk to you soon! Hugs Donna > I just want to say ditto what Dawn says. I also want to emphasize the word > rest. Believe me if you push your body, it will one day push back hard. > After I got this no one knew what it was until I found my doctor.There were > some days that I would be driving my 45 minute drive in tears, I would come > home and take 2 of my vicoden and lay down with my feet elevated I worked > full time for 6 months, only missing work for appointments. Then one day I > was getting ready for work, my left leg was swollen and hurting so bad that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, The only thing that saved me was that one of my benefits I could have and only had to pay a little from each check about 5 dollars a paycheck. It is long term benefits, where once the short term ended, the long term took effect and for a year I had full benefits and 1/2 my pay. I am still on long term, even though my year is up, I know longer have my benefits paid for, but Dwight's boss decided that it would be cheaper to pay the 376 a month to keep my benefits going than to add me to their insurance. Otherwise I don't know what we would do if I didn't get that. The pay would probably be the same as if I was working 20 hours, but the person who was the manager at the time would not ask if they could do something like that, so it was either full time or no time. My doctor said there is no way that I could handle full time so here I am, and after 1 year I am no longer considered an employee if I am able to go back to work I would have to go on unemployment and go looking for jobs. That would work let's see you have 20 people come walking in and me come in with my walker, now who would you hire. Okay I am going to stop feeling sorry for myself. Didn't mean to dump that on you or anybody else for that matter. So now I am going to quit it and get on with life as it is now. Do the best I can which what we all have to do. Have a good weekend, Lin Hi Its more out of necessity than anything else that drives me to work each day. I have a full mortgage, a child in middle school and all of the bills that come with home ownership. It has been too tight lately to live that way so in the time I CAN work, I will..I know that unless things change there may be a day I cant work any longer but for now even if its part time, its still a job.I've been fairly active thru this whole thing, Im stubborn and determined, whether thats a good thing is yet to be decided LOL.Anyway, I've gotta fly, I'll talk to you soon!HugsDonna> I just want to say ditto what Dawn says. I also want to emphasize the word> rest. Believe me if you push your body, it will one day push back hard.> After I got this no one knew what it was until I found my doctor.There were> some days that I would be driving my 45 minute drive in tears, I would come> home and take 2 of my vicoden and lay down with my feet elevated I worked> full time for 6 months, only missing work for appointments. Then one day I> was getting ready for work, my left leg was swollen and hurting so bad that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, The only thing that saved me was that one of my benefits I could have and only had to pay a little from each check about 5 dollars a paycheck. It is long term benefits, where once the short term ended, the long term took effect and for a year I had full benefits and 1/2 my pay. I am still on long term, even though my year is up, I know longer have my benefits paid for, but Dwight's boss decided that it would be cheaper to pay the 376 a month to keep my benefits going than to add me to their insurance. Otherwise I don't know what we would do if I didn't get that. The pay would probably be the same as if I was working 20 hours, but the person who was the manager at the time would not ask if they could do something like that, so it was either full time or no time. My doctor said there is no way that I could handle full time so here I am, and after 1 year I am no longer considered an employee if I am able to go back to work I would have to go on unemployment and go looking for jobs. That would work let's see you have 20 people come walking in and me come in with my walker, now who would you hire. Okay I am going to stop feeling sorry for myself. Didn't mean to dump that on you or anybody else for that matter. So now I am going to quit it and get on with life as it is now. Do the best I can which what we all have to do. Have a good weekend, Lin Hi Its more out of necessity than anything else that drives me to work each day. I have a full mortgage, a child in middle school and all of the bills that come with home ownership. It has been too tight lately to live that way so in the time I CAN work, I will..I know that unless things change there may be a day I cant work any longer but for now even if its part time, its still a job.I've been fairly active thru this whole thing, Im stubborn and determined, whether thats a good thing is yet to be decided LOL.Anyway, I've gotta fly, I'll talk to you soon!HugsDonna> I just want to say ditto what Dawn says. I also want to emphasize the word> rest. Believe me if you push your body, it will one day push back hard.> After I got this no one knew what it was until I found my doctor.There were> some days that I would be driving my 45 minute drive in tears, I would come> home and take 2 of my vicoden and lay down with my feet elevated I worked> full time for 6 months, only missing work for appointments. Then one day I> was getting ready for work, my left leg was swollen and hurting so bad that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, The only thing that saved me was that one of my benefits I could have and only had to pay a little from each check about 5 dollars a paycheck. It is long term benefits, where once the short term ended, the long term took effect and for a year I had full benefits and 1/2 my pay. I am still on long term, even though my year is up, I know longer have my benefits paid for, but Dwight's boss decided that it would be cheaper to pay the 376 a month to keep my benefits going than to add me to their insurance. Otherwise I don't know what we would do if I didn't get that. The pay would probably be the same as if I was working 20 hours, but the person who was the manager at the time would not ask if they could do something like that, so it was either full time or no time. My doctor said there is no way that I could handle full time so here I am, and after 1 year I am no longer considered an employee if I am able to go back to work I would have to go on unemployment and go looking for jobs. That would work let's see you have 20 people come walking in and me come in with my walker, now who would you hire. Okay I am going to stop feeling sorry for myself. Didn't mean to dump that on you or anybody else for that matter. So now I am going to quit it and get on with life as it is now. Do the best I can which what we all have to do. Have a good weekend, Lin Hi Its more out of necessity than anything else that drives me to work each day. I have a full mortgage, a child in middle school and all of the bills that come with home ownership. It has been too tight lately to live that way so in the time I CAN work, I will..I know that unless things change there may be a day I cant work any longer but for now even if its part time, its still a job.I've been fairly active thru this whole thing, Im stubborn and determined, whether thats a good thing is yet to be decided LOL.Anyway, I've gotta fly, I'll talk to you soon!HugsDonna> I just want to say ditto what Dawn says. I also want to emphasize the word> rest. Believe me if you push your body, it will one day push back hard.> After I got this no one knew what it was until I found my doctor.There were> some days that I would be driving my 45 minute drive in tears, I would come> home and take 2 of my vicoden and lay down with my feet elevated I worked> full time for 6 months, only missing work for appointments. Then one day I> was getting ready for work, my left leg was swollen and hurting so bad that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lin - Please don't consider what you said as dumping. Many of us here are either in a similar boat or facing it. I recently received the last of my checks from work and will soon be facing a similar scenario. I don't don't yet whether the insurance company has approved me for long term idsability insurance and even then I'm not eligible until Jan 12. I would imagine a check doesn't just pop in the mailbox on the 12th. I may have to look into what kind of supports I an entitled to unless I can get back to work soon. Looking kinda bleak around here too. Thankfully my health insurance is fully covered until April12th. Barbara wrote: Donna, The only thing that saved me was that one of my benefits I could have and only had to pay a little from each check about 5 dollars a paycheck. It is long term benefits, where once the short term ended, the long term took effect and for a year I had full benefits and 1/2 my pay. I am still on long term, even though my year is up, I know longer have my benefits paid for, but Dwight's boss decided that it would be cheaper to pay the 376 a month to keep my benefits going than to add me to their insurance. Otherwise I don't know what we would do if I didn't get that. The pay would probably be the same as if I was working 20 hours, but the person who was the manager at the time would not ask if they could do something like that, so it was either full time or no time. My doctor said there is no way that I could handle full time so here I am, and after 1 year I am no longer considered an employee if I am able to go back to work I would have to go on unemployment and go looking for jobs. That would work let's see you have 20 people come walking in and me come in with my walker, now who would you hire. Okay I am going to stop feeling sorry for myself. Didn't mean to dump that on you or anybody else for that matter. So now I am going to quit it and get on with life as it is now. Do the best I can which what we all have to do. Have a good weekend, Lin Hi Its more out of necessity than anything else that drives me to work each day. I have a full mortgage, a child in middle school and all of the bills that come with home ownership. It has been too tight lately to live that way so in the time I CAN work, I will..I know that unless things change there may be a day I cant work any longer but for now even if its part time, its still a job.I've been fairly active thru this whole thing, Im stubborn and determined, whether thats a good thing is yet to be decided LOL.Anyway, I've gotta fly, I'll talk to you soon!HugsDonna> I just want to say ditto what Dawn says. I also want to emphasize the word> rest. Believe me if you push your body, it will one day push back hard.> After I got this no one knew what it was until I found my doctor.There were> some days that I would be driving my 45 minute drive in tears, I would come> home and take 2 of my vicoden and lay down with my feet elevated I worked> full time for 6 months, only missing work for appointments. Then one day I> was getting ready for work, my left leg was swollen and hurting so bad that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 I honestly believe that we are all put here on this Earth for a reason and we have been given this illness for a reason as well. It may seem like whatever that reason is it cant be all that fair but once we are able to face the fact that ideed we are here for a purpose it is sometimes easier to face the days ahead and find out what we are supposed to be doing. For some maybe its to teach others and be an outreach source to the community, perhaps it is to help others become more independant or to uplift a persons spirit when they are at their lowest. Maybe its to befriend someone who otherwise would have no one to vent to. There are thousands of various reasons we deal with this monster. Being positive may not always seem possible believe me i know this but being negative or retreating within ourselves doesnt suit a purpose either. I try and focus on at least one positive thing that has happened today that may make the rest of what may have been a horrible painful day seem easier to handle. Lets see today started out painful but my sweet cat curled up with me and nuzzled me THEN proceeded to attack my winter village but thats besides the point...lets see work...eh ok lets go on LOL! My w/c check didnt come BUT 2 others did...my daughter misplaced her phone BUT someone called her dad and we got it back. My husbands grouchy BUT we are going to a X-mas concert tonight...see so as crummy as the day could have been something good came from it LOL...sorry, Im rambling but you get the point. I havent found my reason yet for dealing with this but I have found alot of positive aspects that have helped me. I hope that for all that makes us feel sorry for ourselves we are able to take a step back and see that there is good in every things around us. Have a wonderful weekend! Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 I honestly believe that we are all put here on this Earth for a reason and we have been given this illness for a reason as well. It may seem like whatever that reason is it cant be all that fair but once we are able to face the fact that ideed we are here for a purpose it is sometimes easier to face the days ahead and find out what we are supposed to be doing. For some maybe its to teach others and be an outreach source to the community, perhaps it is to help others become more independant or to uplift a persons spirit when they are at their lowest. Maybe its to befriend someone who otherwise would have no one to vent to. There are thousands of various reasons we deal with this monster. Being positive may not always seem possible believe me i know this but being negative or retreating within ourselves doesnt suit a purpose either. I try and focus on at least one positive thing that has happened today that may make the rest of what may have been a horrible painful day seem easier to handle. Lets see today started out painful but my sweet cat curled up with me and nuzzled me THEN proceeded to attack my winter village but thats besides the point...lets see work...eh ok lets go on LOL! My w/c check didnt come BUT 2 others did...my daughter misplaced her phone BUT someone called her dad and we got it back. My husbands grouchy BUT we are going to a X-mas concert tonight...see so as crummy as the day could have been something good came from it LOL...sorry, Im rambling but you get the point. I havent found my reason yet for dealing with this but I have found alot of positive aspects that have helped me. I hope that for all that makes us feel sorry for ourselves we are able to take a step back and see that there is good in every things around us. Have a wonderful weekend! Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lin, Whatever you do, do not blame yourself for not being able to work anylonger! If I even attempted to go back to work, I think my Mom would be buying a casket. I really do believe that because the small stuff that I do anymore takes everything out of me! I get so loopy off the medication sometimes and I am always completely exhausted! My immune system is so low that I am always catching something and I never know if I am going to be able to sleep or not! I really think work would kill me right now! I say prayers that someday I will feel much better and I hope that is true for us all! My Mom and I are considering going to Europe next year to see about getting treated for the RSD. She has a friend that was 100% cured and was bed ridden in the US for 10 years with it. She could not walk at all and now is teaching exercise classes at Curves!! She said the treatment was extremely painful and lasted 8 hours a day for three months straight! She used to take an incredible amount of narcotics and neurontin 4000mg daily! Now she takes asprin when needed! She keeps telling my Mom that I should look into it even though it is expensive, it has a great outcome and could change my life drastically! I am only 40 and do not want to feel this awful for the rest of my life! I want more info on these treatments and doctors though! Well hope that you have an enjoyable evening and nice weekend. LOL and Best Wishes Always!!! Dawn wrote: Donna, I just want to say ditto what Dawn says. I also want to emphasize the word rest. Believe me if you push your body, it will one day push back hard. After I got this no one knew what it was until I found my doctor.There were some days that I would be driving my 45 minute drive in tears, I would come home and take 2 of my vicoden and lay down with my feet elevated I worked full time for 6 months, only missing work for appointments. Then one day I was getting ready for work, my left leg was swollen and hurting so bad that I stayed home and here I am 13 months and waiting for SSDI, the problem with me going back to work other than the fact that if I have to do anything that requires a lot of focus, I can only do it for about 10 minutes before I get so sleepy and dizzy that I have to take my medication for dizziness it begins with a M I can't remember the name, oh now there is a shock. I really hope that this works out for you, my prayers are with you, I sometimes think if I had known earlier I could of gone down to part time and may have been able to work longer. Have a great weekend. Lin -- Re: Re: Quick update Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! DawnDonna wrote: > > G'Morning> I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time.> I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that.> All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going.> Well, the child will be up soon and I have a buch to do so I will > talk to you all later!> > HUGS> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lin, Whatever you do, do not blame yourself for not being able to work anylonger! If I even attempted to go back to work, I think my Mom would be buying a casket. I really do believe that because the small stuff that I do anymore takes everything out of me! I get so loopy off the medication sometimes and I am always completely exhausted! My immune system is so low that I am always catching something and I never know if I am going to be able to sleep or not! I really think work would kill me right now! I say prayers that someday I will feel much better and I hope that is true for us all! My Mom and I are considering going to Europe next year to see about getting treated for the RSD. She has a friend that was 100% cured and was bed ridden in the US for 10 years with it. She could not walk at all and now is teaching exercise classes at Curves!! She said the treatment was extremely painful and lasted 8 hours a day for three months straight! She used to take an incredible amount of narcotics and neurontin 4000mg daily! Now she takes asprin when needed! She keeps telling my Mom that I should look into it even though it is expensive, it has a great outcome and could change my life drastically! I am only 40 and do not want to feel this awful for the rest of my life! I want more info on these treatments and doctors though! Well hope that you have an enjoyable evening and nice weekend. LOL and Best Wishes Always!!! Dawn wrote: Donna, I just want to say ditto what Dawn says. I also want to emphasize the word rest. Believe me if you push your body, it will one day push back hard. After I got this no one knew what it was until I found my doctor.There were some days that I would be driving my 45 minute drive in tears, I would come home and take 2 of my vicoden and lay down with my feet elevated I worked full time for 6 months, only missing work for appointments. Then one day I was getting ready for work, my left leg was swollen and hurting so bad that I stayed home and here I am 13 months and waiting for SSDI, the problem with me going back to work other than the fact that if I have to do anything that requires a lot of focus, I can only do it for about 10 minutes before I get so sleepy and dizzy that I have to take my medication for dizziness it begins with a M I can't remember the name, oh now there is a shock. I really hope that this works out for you, my prayers are with you, I sometimes think if I had known earlier I could of gone down to part time and may have been able to work longer. Have a great weekend. Lin -- Re: Re: Quick update Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! DawnDonna wrote: > > G'Morning> I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time.> I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that.> All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going.> Well, the child will be up soon and I have a buch to do so I will > talk to you all later!> > HUGS> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, Glad to hear that you did not over do it today and will be able to get some rest and read for a while! Reading always calms me down when things are hectic! This is certainly that time of year! I have been also having some burning in my right leg and will talk to my doctors about that the next time I see him! The disc in my neck is also in a flare, because depending on which way I hold my head, I get the tingling and electrical shock in it! It is probally due to the fact that I carried lots of stuff today, because I had to get my laundry done! Well get some rest and have a great and joyous weekend! I am going to wrap some furry friend presents that I bought when I was out yesterday! A talking Christmas Bunny that is to cute to give to Holly! I want to keep it and play it for you and Ginny! Well gotta get a move on and want to write a little more so talk soon and LOL and Best Wishes Always!!!! Dawn Donna wrote: Hi DawnI put in about 3 3/4 hrs today and Id had it. I am getting some exercise on my legs walking up and down the stairs LOL..I hate their elevator and dont like to take it very often..its only a 3 floor building, I can handle it :)I have to go do a couple simple errands but then I can rest a bit, I think I'll read for a little while. Ginny gave me a good book that I havent had much time to enjoy, so thats my destination this afternoon!My legs ache but the burning in my back aggrivates me more at this point.Anyway, no worries it is the weekend so I can rest a bit before Christmas hits full force..welllllll...except for the wrapping and buying I still need to do LOL.Hope you are having a great day Dawn. Talk to you soon!HugsDonna> So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, Glad to hear that you did not over do it today and will be able to get some rest and read for a while! Reading always calms me down when things are hectic! This is certainly that time of year! I have been also having some burning in my right leg and will talk to my doctors about that the next time I see him! The disc in my neck is also in a flare, because depending on which way I hold my head, I get the tingling and electrical shock in it! It is probally due to the fact that I carried lots of stuff today, because I had to get my laundry done! Well get some rest and have a great and joyous weekend! I am going to wrap some furry friend presents that I bought when I was out yesterday! A talking Christmas Bunny that is to cute to give to Holly! I want to keep it and play it for you and Ginny! Well gotta get a move on and want to write a little more so talk soon and LOL and Best Wishes Always!!!! Dawn Donna wrote: Hi DawnI put in about 3 3/4 hrs today and Id had it. I am getting some exercise on my legs walking up and down the stairs LOL..I hate their elevator and dont like to take it very often..its only a 3 floor building, I can handle it :)I have to go do a couple simple errands but then I can rest a bit, I think I'll read for a little while. Ginny gave me a good book that I havent had much time to enjoy, so thats my destination this afternoon!My legs ache but the burning in my back aggrivates me more at this point.Anyway, no worries it is the weekend so I can rest a bit before Christmas hits full force..welllllll...except for the wrapping and buying I still need to do LOL.Hope you are having a great day Dawn. Talk to you soon!HugsDonna> So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, Glad to hear that you did not over do it today and will be able to get some rest and read for a while! Reading always calms me down when things are hectic! This is certainly that time of year! I have been also having some burning in my right leg and will talk to my doctors about that the next time I see him! The disc in my neck is also in a flare, because depending on which way I hold my head, I get the tingling and electrical shock in it! It is probally due to the fact that I carried lots of stuff today, because I had to get my laundry done! Well get some rest and have a great and joyous weekend! I am going to wrap some furry friend presents that I bought when I was out yesterday! A talking Christmas Bunny that is to cute to give to Holly! I want to keep it and play it for you and Ginny! Well gotta get a move on and want to write a little more so talk soon and LOL and Best Wishes Always!!!! Dawn Donna wrote: Hi DawnI put in about 3 3/4 hrs today and Id had it. I am getting some exercise on my legs walking up and down the stairs LOL..I hate their elevator and dont like to take it very often..its only a 3 floor building, I can handle it :)I have to go do a couple simple errands but then I can rest a bit, I think I'll read for a little while. Ginny gave me a good book that I havent had much time to enjoy, so thats my destination this afternoon!My legs ache but the burning in my back aggrivates me more at this point.Anyway, no worries it is the weekend so I can rest a bit before Christmas hits full force..welllllll...except for the wrapping and buying I still need to do LOL.Hope you are having a great day Dawn. Talk to you soon!HugsDonna> So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news!> Quote Link to comment Share on other sites More sharing options...
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