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Re: Tanja/medications

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Hi Tanja,

I was just thinking... If you are going to start off with one of the

" milder " narcotics, try to ask for a depot product which lasts 12

hours. I think that is important, not to be on a " roller coaster " ,

where the effect of the pain meds go up and down all the time. That

is not good for people like us who have chronic pain problems. I

don't know if you can get e.g. DHC kontinus (dihydrocodeine contious

release) in Canada. But when I used it, it was not on the list of

approved drugs here, but our equivalent to the FDA gave a

dispensation so the pharmacy could import it for me. The only problem

I had with it, was that sometimes the company was all out of the

medication, causing patients here who used it to have to switch to

other meds for a while. Did not happen often, but one lady I know

ended up in hospital once when it happened, with major spasms... I

discussed it with my pharmacy, so we made sure to always have some

boxes in stock with my name on it. Once when it happened, that stock

helped both me and another EDS'er who lives in my neighbor

municipality, I just told the pharmacy that they could give her from

the ones reserved for me. Not long after I changed to OxyContin

though, and have been on it ever since.

Aase Marit :)

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