[SPAM]Re: Some suggestions, please...

[Guest guest]

Maybe you could try some other stretch

moves for his torticollis. What kind of at home exercises is she having you do

right now ??? We had a scan done for Sammy’s helmet and I know that is

the alternative to molding. You don’t always have to have a mold. What is

the brand of the helmet again ? I will look it up and see if I find anything on

it.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Lindy

Sent: Friday, August 18, 2006 2:11

AM

Plagiocephaly

Subject: [sPAM]Re: Some

suggestions, please...

Thanks, yeah....they did scan 's head with the

scanner. They

did not do a mold of his head which I read a lot of you had done.

That's why I considered his helmet to be more " over the counter "

rather than being made especially for him. Am I making sense?

PT is twice a week for an hour each day. Some days he does really

good & others he is just the same as the first day he went. (They

say his " tilt " is twenty degrees) I also do the stretches with him

as many times a day as I can. I truly feel that the times when he

is better is due to him getting stronger, not the stretching.

>

> I would see if you can get more information on this helmet. I got

to a place

> that a lot of the group members have heard of but still had an

issue with

> the person who made the helmet. I don't much about this helmet he

is wearing

> but I would find out. They did not shape his head with mold or

scan him with

> a scanner ? They just got a helmet and inserted foam ? Maybe I am

off but I

> have not heard of that. My son had tort and it took him four

months of PT

> but it worked out great. How aggressive is your physical therapist

he has ?

> Are they one top of seeing him weekly and have you doing exercises

daily a

> lot ?

>

>

>

>

>

>

>

>

>

> _____

>

> From: Plagiocephaly

[mailto:Plagiocephaly ]

> On Behalf Of Lindy

> Sent: Thursday, August 17, 2006 10:04 PM

> Plagiocephaly

> Subject: Some suggestions, please...

>

>

>

> Hi. My name is Lindy & my husband & I live in Kernersville, NC.

My

> son, who is now almost 5 months old was diagnosed with

> Plagio & tort about a month ago. (This was after I called his Dr &

> told them I thought he had tort and I wanted him seen. Although I

> had just been at the Dr 2 weeks prior, nothing was said to me

about

> it!?)

> Anyways, he started PT in July for the tort & it is no better.

> Today his PT told me that she wants to find out if he should get a

> neck brace or surgery to correct the tort because there is not

much

> change since the PT started. Has anyone had any experience with a

> neck brace or surgery for tort? I have done searches on the

> internet & cannot find any info on it!

> My son was also fitted with a blue helmet by a Plastic surgeon

which

> he has now had for about 4 weeks. It says Danmar Products on the

> back of the helmet but that is all I know. I see alot of posts on

> Star bands & doc bands but I think what got is basically

> an " over the counter " helmet. They basically put it on his head

&

> then put foam inside to fit it to his head. This makes me a little

> nervous since they don't want to see him for 8 weeks & I have no

> idea if the helmet is fitted to his head correctly. It always

looks

> crooked but they told me that is normal since his head is

> crooked?!? It is getting tighter since he is growing but I have no

> idea if it's doing it's job.

> I would appreciate any input!!!

> Thank you!

> Lindy

> Mother to :

> Ava 23 months &

> 5 months

>

[Guest guest]

I just added a folder in the photos & named it . There are 2

pictures of him with the helmet in there!

Lindy

> >

> > I would see if you can get more information on this helmet. I

got

> to a place

> > that a lot of the group members have heard of but still had an

> issue with

> > the person who made the helmet. I don't much about this helmet

he

> is wearing

> > but I would find out. They did not shape his head with mold or

> scan him with

> > a scanner ? They just got a helmet and inserted foam ? Maybe I

am

> off but I

> > have not heard of that. My son had tort and it took him four

> months of PT

> > but it worked out great. How aggressive is your physical

therapist

> he has ?

> > Are they one top of seeing him weekly and have you doing

exercises

> daily a

> > lot ?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > _____

> >

> > From: Plagiocephaly@ <mailto:Plagiocephaly%40>

>

> [mailto:Plagiocephaly@ <mailto:Plagiocephaly%40>

> ]

> > On Behalf Of Lindy

> > Sent: Thursday, August 17, 2006 10:04 PM

> > Plagiocephaly@ <mailto:Plagiocephaly%40>

>

> > Subject: Some suggestions, please...

> >

> >

> >

> > Hi. My name is Lindy & my husband & I live in Kernersville, NC.

My

> > son, who is now almost 5 months old was diagnosed with

> > Plagio & tort about a month ago. (This was after I called his Dr

&

> > told them I thought he had tort and I wanted him seen. Although

I

> > had just been at the Dr 2 weeks prior, nothing was said to me

> about

> > it!?)

> > Anyways, he started PT in July for the tort & it is no better.

> > Today his PT told me that she wants to find out if he should get

a

> > neck brace or surgery to correct the tort because there is not

> much

> > change since the PT started. Has anyone had any experience with

a

> > neck brace or surgery for tort? I have done searches on the

> > internet & cannot find any info on it!

> > My son was also fitted with a blue helmet by a Plastic surgeon

> which

> > he has now had for about 4 weeks. It says Danmar Products on the

> > back of the helmet but that is all I know. I see alot of posts

on

> > Star bands & doc bands but I think what got is basically

> > an " over the counter " helmet. They basically put it on his head

&

> > then put foam inside to fit it to his head. This makes me a

little

> > nervous since they don't want to see him for 8 weeks & I have no

> > idea if the helmet is fitted to his head correctly. It always

> looks

> > crooked but they told me that is normal since his head is

> > crooked?!? It is getting tighter since he is growing but I have

no

> > idea if it's doing it's job.

> > I would appreciate any input!!!

> > Thank you!

> > Lindy

> > Mother to :

> > Ava 23 months &

> > 5 months

> >

>