Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 I do pool therapy. I'll give the light weights a try. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 I am just curious; do a lot of people see Dr Byers when they are 'stuck' with their medical care professionals who do not seem to 'hear' what they are saying? I would consider doing this to adjust my medical care onto the right path. Where does Dr Byers work? On 2/23/04 12:23 PM, " ceda " <ceda > wrote: > > Subject: Dr Byers called my GP > > So, I saw my GP on Friday. Dr Byers had called her. She was pretty excited > about that. I guess he's a pretty " big " guy. > Anyway, he told her that I have EDS hypermobile type, and that I should be > doing " hardening " excercises. > So, she called my PT and asked them if they do that, which they said " yes " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 From: Laxity Subject: Re: Dr Byers called my GP I am just curious; do a lot of people see Dr Byers when they are 'stuck' with their medical care professionals who do not seem to 'hear' what they are saying? I would consider doing this to adjust my medical care onto the right path. Where does Dr Byers work? ***************************************************************************** I'm sure others can elaberate further since I have never seen Byers, but he is in Washington State. He has the lab that all the skin biopsies in the US are sent to, (all biopsies except the ones taken at NIH) He is a genetisist. He is interested in type 4. From what I have heard, he is one of the top genectics in EDS in the US. I'm sure others could tell you more. Cindy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi, He's in Seattle, at the University Medical Center. He's a geneticist, and he specializes in the vascular type of EDS. He gets all the tissue samples taken in the US for suspected vascular type. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Forgot to say - I went to him because none of the many drs I had seen knew much about EDS. I was sure we had it, and wanted to go to him for confirmation. Even the rheumatologists I saw said I didn't have it cause I didn't have fragile skin. But, we know that you don't have to have fragile skin to have EDS. So, I figured I'd quite running around to different doctors, and go straight to the guy who knows about it. He did confirm that we have it. He doesn't treat. Geneticists only diagnose. But, he did give my dr advise on how to help me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 I think he's in Seattle, WA. Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Yes, he's at the University of Washington Medical Center. His background/research interests can be viewed at http://www.gs.washington.edu/faculty/pbyers.htm as well as his phone number, etc. Lenore > I think he's in Seattle, WA. > > Love Lana > > > > To learn more about EDS, visit our website:http://www.ceda.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Even though I just saw him last week, I checked this out, and still can't beleive how much he looks like my dad. It's freakin' me out!!!!! Sorta like my brother too! AAHH!! Quote Link to comment Share on other sites More sharing options...
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