Good morning, My name is Al

[Guest guest]

Dear Everyone,

I was very touched last night when I read the responses to my

first letter to this room. Someone asked about the " zings " the preceed

RSD, I take it to mean the life zings and not the electric shock

zings. My life zings were a result of being unable to cope and live my

life appropriately because of the anxiety I felt due to RSD which I

had since childhood.

Actually wifey left me with 4 children, two are still babies, an

8yr old and 10yr old. The 8yr old was 8 months when she left and he

has was born brain injured and can not walk or speak clearly.

Their mom left to be with someone living 600 miles away, a man she

met in a lesbian chat room. That's a burden for kids to live with. My

kids see me living with pain and hear it on the bad days as I yip,

howl, curse, and growl around the house. I would not just shut a door

and do something to end my suffering, I would make sure they

understood why I am doing it.

I remember the first time I mentioned to my sister that I was

having the same pain in my right, uninjured foot, as in my left

crushed foot, she started putting me on the deffensive. You see

because she works in a hospital she knows more than any doctor. She

stopped talking to me because she thought I was trying to pull a

Social Security scam. It was not until after I was led to believe I

had some kind of arthritis and moved to the desert southwest did I

first see a neurologist. Finally I could answer my sisters questions.

But she had already gotten to my mother, once poisoned her mind stayed

poisoned, as recently as September she was yelling at me to put

curtains up in her new apartment.

There is a new set of posts on another egroup, RSD World News,

about elimination of RSD with hyperbarric oxygen.(sp?) Does anyone

know about that? Al

[Guest guest]

There is a new set of posts on another egroup, RSD World News,about elimination of RSD with hyperbarric oxygen.(sp?) Does anyoneknow about that? Al Al,

First off, even though you would explain to your kids why you were leaving this earth, they need you! Try to put yourself in their place. Even though they understand you have pain, they would feel guilt because they weren't worth enough for you to deal with it and stay around. I know I've thought of it myself, but know deep inside it was very unfair to my family to contemplate it. Even though I'm costing my husband a lot more than I used to, he would rather have me, than for me to be gone and him have more money. Your kids would rather have you around, even if you do growl, etc. once in a while. Lecture done--on to the next subject! I have heard that hyperbaric oxygen can help with RSD, but haven't heard of it eliminating it. I'm trying to remember if I have an article printed out about that, or whether I have it stored in the computer. If I find it I'll send it to you.

N.__________________________________________________

[Guest guest]

Al - I actually was talking about body zings, but I'm been no stranger to life's zings either. You're gappling with so much ! It's clear that family isn't offering much, if anything, in the way of support. I'm very sorry that they have approached all of this with such bitterness and skepticism. From the tone of your note, it's seems that they have lost more by the way they have treated you. I hope that you at least have some friends out there who are constant and reliable.

Lean on us while you're sorting all of this out. We may not always have answers but I've never run across such a group of big-hearted people in my life. Barbara singlew4 wrote:

Dear Everyone,I was very touched last night when I read the responses to myfirst letter to this room. Someone asked about the "zings" the preceedRSD, I take it to mean the life zings and not the electric shockzings. My life zings were a result of being unable to cope and live mylife appropriately because of the anxiety I felt due to RSD which Ihad since childhood.Actually wifey left me with 4 children, two are still babies, an8yr old and 10yr old. The 8yr old was 8 months when she left and hehas was born brain injured and can not walk or speak clearly. Their mom left to be with someone living 600 miles away, a man shemet in a lesbian chat room. That's a burden for kids to live with. Mykids see me living with pain and hear it on the bad days as I yip,howl, curse, and growl around the house. I would not just shut a doorand

do something to end my suffering, I would make sure theyunderstood why I am doing it.I remember the first time I mentioned to my sister that I washaving the same pain in my right, uninjured foot, as in my leftcrushed foot, she started putting me on the deffensive. You seebecause she works in a hospital she knows more than any doctor. Shestopped talking to me because she thought I was trying to pull aSocial Security scam. It was not until after I was led to believe Ihad some kind of arthritis and moved to the desert southwest did Ifirst see a neurologist. Finally I could answer my sisters questions.But she had already gotten to my mother, once poisoned her mind stayedpoisoned, as recently as September she was yelling at me to putcurtains up in her new apartment.There is a new set of posts on another egroup, RSD World News,about elimination of RSD with hyperbarric oxygen.(sp?) Does anyoneknow about that? Al

[Guest guest]

AL, HELLO WELL I THINK WE ALL HAVE THESE THOUGHTS BUT WE HAVE TO THINK OF THE OTHER PEOPLE THAT IT WOULD HURT ESPICALLY YOUR CHILDERN...IT IS SO HARD TO LIVE WITH THIS MONSTER OF RSD BUT WE CAN NOT LET IT WIN AND BEAT US......WE HAVE TO FIGHT...I HAVE 4 CHILDERN AND THREE OF THEM LEFT ME AND WONT TALK TO ME ..BUT THE ONE THAT DOES TALK TO MAKES UP FOR IT HE CARES A LOT....MY FAMILY HAS JUST ABOUT WALKED AWAY THEY DONT UNDERSTAND RSD AT ALL..I WORKED IN HEALTH CARE FOR 25 YEARS AND YOUR SISTER IS WRONG....MY SISTERS ALSO ARE NURSES JUST LIKE ME AND THEY DO NOT UNDER STAND EITHER ....SO I KNOW WHERE YOU ARE COMING FROM BUT EVERY DAY WE STRUGGLE AND GET BY IS ONE MORE DAY THAT WE WIN....YOU ARE VERY STRONG TO HAVE TAKEN CARE OF YOUR CHILDERN AND LOVED THEM THAT IS SUCH A GIFT THAT YOU GAVE THEM....I'M PROUD OF YOU AND I KNOW I DONT KNOW YOU BUT IT TAKES A LOVING MAN TO TAKE CARE OF HIS CHILDERN...I CANT WORK ANY MORE I HAVE RSD IN MOST OF MY

EXTREMETIES AND THE MEMORY LOSS IS BAD I CAN NO LONGER DO WHAT I LOVED SO MUCH ......BUT THERE IS A PLAN FOR ME SOME WHERE.....I HAVE HEARD OF THE TREATMENT AND DONT KNOW TO MUCH BUT SORRY ABOUT THE BOOK BUT WE ALL CARE A LOT......SOFT HUGS TO YOU PAMsinglew4 wrote:

Dear Everyone, I was very touched last night when I read the responses to myfirst letter to this room. Someone asked about the "zings" the preceedRSD, I take it to mean the life zings and not the electric shockzings. My life zings were a result of being unable to cope and live mylife appropriately because of the anxiety I felt due to RSD which Ihad since childhood. Actually wifey left me with 4 children, two are still babies, an8yr old and 10yr old. The 8yr old was 8 months when she left and hehas was born brain injured and can not walk or speak clearly. Their mom left to be with someone living 600 miles away, a man shemet in a lesbian chat room. That's a burden for kids to live with. Mykids see me living with pain and hear it on the bad days as I yip,howl,

curse, and growl around the house. I would not just shut a doorand do something to end my suffering, I would make sure theyunderstood why I am doing it. I remember the first time I mentioned to my sister that I washaving the same pain in my right, uninjured foot, as in my leftcrushed foot, she started putting me on the deffensive. You seebecause she works in a hospital she knows more than any doctor. Shestopped talking to me because she thought I was trying to pull aSocial Security scam. It was not until after I was led to believe Ihad some kind of arthritis and moved to the desert southwest did Ifirst see a neurologist. Finally I could answer my sisters questions.But she had already gotten to my mother, once poisoned her mind stayedpoisoned, as recently as September she was yelling at me to putcurtains up in her new apartment. There is a new set of posts on another egroup, RSD World

News,about elimination of RSD with hyperbarric oxygen.(sp?) Does anyoneknow about that? Al