Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Well, just back from seeing Dr Byers. He said we have EDS hypermobile type. He was very nice. The girls and I liked him. Very easy to talk with, and told us some funny stories. Yes, I lked him very much. He looks so much like my father, it was creepy! We kept getting freaked out. I mean - it was uncanny! Just like my dad - 20 years ago. I've never met anyone who resembled someone so perfectly before. So, all he could advise was to take vitamin C,and do strength training with very light weights (yea, right!) He also is telling my dr to send me to a sleep disorder clinic. He thinks I have a sleep disorder. I thought that was a possibility for quite a while now. My dad thinks I have that too. He says there are no signs of the vascular type. 's pneumothoraxes were a separate thing. So, that's good news. A relief! Anyway, he said there is some research being done (although it's lagging a bit right now) about why some people with hypermobility have pain, and some don't. He's suppose to send me any info on that. They may even call us to participate in a study. So, now I'm hurting more after that exam. So, I'm going go lay down, and try to feel relieved that I at least have an answer - something to " blame " all our problems on. lol Not that it does anything. Not that it makes anything better. But, at least we know. And, at least It all has a name now. Hugs, Quote Link to comment Share on other sites More sharing options...
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