Re: Help in Colorado

[Guest guest]

The fact of the matter is that for many babies the deformity is

obvious and continues to be obvouis. I'm sure not everyone who

notices the deformity is going to say something about it. There is

a good chance that it will not grow out on its own. My bestfriends

step son is 10 years old and has unresolved plagio and torticollis.

He is called " squished head " by his peers and it is very noticable.

I'm sure that he would have wanted to wear a helmet for 4 months

when he was an infant in order to avoid this torment. Most kids do

very well with adjusting to wearing a band and some do not need to

adjust at all. My son has had 3 bands and is now being casted for

his 4th. The first 2 were ill fitting and the 3rd was the BEST

DECISION I HAVE EVER MADE. His head is so much better than it was.

We held a fundraiser and raised $8000. We had to pay out of pocekt

for all the travelling we had to do. Everyone was very supportive.

Banding your child is not punishment we are lucky to have this

treatment as an option.

Haylee

mom to andre 21 months tort/doc band #1 22/11/05 / doc band #2

coming soon, & Lesly 21 months

& gt; & gt; Hi, my name

is and my son's name is Evan. We had Evan's nine & gt; month

ped visit yesterday and finally after six months of being told & gt;

his head would round out by itself, we were given the recommedation

to & gt; contact Cranial Tech. Problem being, the closest one is in

Phoenix and & gt; I simply don't think we can afford the visits back

and forth so often. & gt; I am really looking for some suggestions

here. I looked at the page & gt; that gave resources for places in

Colorado but I don't really & gt; understand who or

> what those people are and do. For those of you from & gt; Colorado

who have made the many trips out to Phoenix, can I ask how & gt; many

visits you had to make and an approximately how much it cost. & gt;

& gt; If there is any way we can have his head worked on without

having to & gt; travel we might have some hope. I think he would

benefit from this & gt; tremendously and I pray that all hope is not

lost but I'm thinking & gt; that although our insurance will cover at

least a portion of this, & gt; unless we win the lottery we may never

be able to afford to do this & gt; otherwise. I am open to any

advice. Thanks for listening. & gt;