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Dear Sharon:

Actually, Naomi makes it very clear that the reason she doesn't talk real

openly about hep c on leno and letterman is because they don't want to hear

about that....it's not fun and funny.....but being on the shows keeps her in

the limelight a bit so she can continue to talk about it in other situations

and raise money for the fight against it....I think some of you are being a

tad harsh....my interpretation of her words, not rumors about her words, is

that she gives credit to all avenues that have led her to being " well "

now......medicine, nutrition, complimentary treatments, and PRAYER......I

think we can all learn a little compassion and generosity by going through

this disease...none of us really know what's going on in her personal

life....shouldn't we give her the benefit of the doubt....I think she comes

across as a lovely, kind, and compassionate person. Haven't been able to

check my mail for a while and was frankly a little bit surprised at all the

Naomi trashing....We've got to keep going in positive directions....this is

negative....it's not what this forum is for. Thanks. Diane

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Yeah, I've seen Naomi's site on the web. But she is the spokesperson for the

ALF, is she not? Why not do some PSA's on TV? How about a benefit concert?

It doesn't have to be big.

She's just not out there enough. I think she should step down from the ALF.

She's just not committed.

Peace,

Jane

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Diane,

I like your attitude. And I agree with you that no one knows another's

situation and it's easy to assume the worst.

Bob

Re: NAOMI

> Dear Sharon:

> Actually, Naomi makes it very clear that the reason she doesn't talk real

> openly about hep c on leno and letterman is because they don't want to

hear

> about that....it's not fun and funny.....but being on the shows keeps her

in

> the limelight a bit so she can continue to talk about it in other

situations

> and raise money for the fight against it....I think some of you are being

a

> tad harsh....my interpretation of her words, not rumors about her words,

is

> that she gives credit to all avenues that have led her to being " well "

> now......medicine, nutrition, complimentary treatments, and PRAYER......I

> think we can all learn a little compassion and generosity by going through

> this disease...none of us really know what's going on in her personal

> life....shouldn't we give her the benefit of the doubt....I think she

comes

> across as a lovely, kind, and compassionate person. Haven't been able to

> check my mail for a while and was frankly a little bit surprised at all

the

> Naomi trashing....We've got to keep going in positive directions....this

is

> negative....it's not what this forum is for. Thanks. Diane

>

> ------------------------------------------------------------------------

> Here Bunny Bunny...

> Check it Out

> 1/3123/0/_/619765/_/955867288/

> ------------------------------------------------------------------------

>

>

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Diane,

I like your attitude. And I agree with you that no one knows another's

situation and it's easy to assume the worst.

Bob

Re: NAOMI

> Dear Sharon:

> Actually, Naomi makes it very clear that the reason she doesn't talk real

> openly about hep c on leno and letterman is because they don't want to

hear

> about that....it's not fun and funny.....but being on the shows keeps her

in

> the limelight a bit so she can continue to talk about it in other

situations

> and raise money for the fight against it....I think some of you are being

a

> tad harsh....my interpretation of her words, not rumors about her words,

is

> that she gives credit to all avenues that have led her to being " well "

> now......medicine, nutrition, complimentary treatments, and PRAYER......I

> think we can all learn a little compassion and generosity by going through

> this disease...none of us really know what's going on in her personal

> life....shouldn't we give her the benefit of the doubt....I think she

comes

> across as a lovely, kind, and compassionate person. Haven't been able to

> check my mail for a while and was frankly a little bit surprised at all

the

> Naomi trashing....We've got to keep going in positive directions....this

is

> negative....it's not what this forum is for. Thanks. Diane

>

> ------------------------------------------------------------------------

> Here Bunny Bunny...

> Check it Out

> 1/3123/0/_/619765/_/955867288/

> ------------------------------------------------------------------------

>

>

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Sharon,

I liked your little ditty and it made me laugh something I love doing but

prob dont do enoughof . Keep up the humor

Suzy

From: Hepatitis CinAZ@...

Reply-Hepatitis Cegroups

Hepatitis Cegroups

Subject: Re: NAOMI

Date: Sat, 15 Apr 2000 12:46:29 EDT

You go get em Winne! Shout it from the roof tops!

You know, we need to come up with a good chant...you know, like they had for

AIDS. Theirs was " Fight back Fight AIDS "

How about...

Hepatitis C

Hepatitis C

You could have it and not know it

So go get tested or you'll blow it

Hepatitis C

Hepatitis C

we drink a lot of water

so now I have to pee!

Oh well, don't mentioned that little ditty to my 8th grade music teacher,

she said I had musical ability! What did she know anyway!

Sharon Nicholson

Hepatitis Education & Patient Coalition (H. E. P. C.)

Executive Director

<A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B,

C's - editor Suite101.com</A>

http://www.suite101.com/welcome.cfm/hepatitis_abc

Join our e-group mailing list online!

<A HREF= " /group/ArizonaHepatitis C " >eGroups :

ArizonaHepatitis C</A>

/group/ArizonaHepatitis C

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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Does anyone know the url for Naomi's web site. Haven't heard much

from her since she got " Well "

Re: NAOMI

Yeah, I've seen Naomi's site on the web. But she is the spokesperson

for the

ALF, is she not? Why not do some PSA's on TV? How about a benefit

concert?

It doesn't have to be big.

She's just not out there enough. I think she should step down from

the ALF.

She's just not committed.

Peace,

Jane

----------------------------------------------------------------------

--

Get paid for the stuff you know!

Get answers for the stuff you don't. And get $10 to spend on the site!

1/2200/0/_/619765/_/955950538/

----------------------------------------------------------------------

--

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I'm reading Naomi's letter... interesting

She says " In addition, I go out of my way to contact the leading liver

transplant surgeons such as those at Baylor Hospital in Dallas, Texas. "

Boy ... does that make ME feel good! My gastro is at Baylor and I've heard

he is one of the top hep gastros in the nation and many of my friends are on

transplant lists or travel to Dallas to get their livers at Baylor.

I wish Naomi knew how to paragraph and date stuff.

She says " I spend time visiting with patients who are awaiting liver

transplants like Hope House in Dallas and those who have been the

receivers. "

I will have to learn more about Hope House. I am on the board of a local

adult social organization (adults who like to get together with no liquor or

drugs) and we started taking donations of a dollar or more at the door for

charity. Perhaps this is a place it can go.

Thanks for the url.

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

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  • 9 months later...

Naomi,

Yes, from August 1999 to July 2000 I lost over 40 pounds scale weight.

I started at around 38% body fat (this could be off because testing method was BIA) and ended at 14.5% body fat (that one I know is more accurate. It was with hydrostatic weighing).

Cheryl C.

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  • 8 months later...

I do restorative work at a nursing home locally. And I love it love it love

it sooo much!

Did have the stuff taken in -- the price I wanted for my soap (I cut corners

close too) was more then the lady was willing to pay -- she was selling

someone's lye soap for the same price. :( I was more peeved that someone

was underselling themselves like that (not charging for labor) then about

not getting the sale.

Oh well. Her loss.

Nai

" Unlike the Americans, we prefer not to get our bad news from CNN. "

-- " M " 007: Goldeneye

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Hello just wondering in what area are you looking for private care CNAs. I

have always been interested in doing such a thing. Feel free to privately

email me, csschlichter@... Thank you, Amy

Naomi

WELCOME! I,m fairly new also and a CNA too! Have worked for many nursing

services in the past but for the last six yrs. have been doin private care

business is BOOMING, I wish I knew other prive care CNA's that would work

with me have had to turn people down cus I'm booked up, hate to say no to

folks in need. Do you work for a service,nursing home or prive.? Been at

this

almost 20yrs. also make CP soap, lotion, bath salts and such. Handmade cards

too, make paper, paint furniture so on and so on! I'm from Ohio. Good to

have ya here!! Pam

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  • 4 years later...

Thank you so much for praying for Kaitlyn. She had a spinal tap on Tuesday which reveled a normal cerebral spinal fluid pressure! But, we are still awaiting the lab results. We were given the ok to resume wearing her helmet! They're now wondering if there is a congenital defect of the optic nerves called pseudopapilledema (Nerves that are unusually small and elevated occur when the scleral opening of the posterior globe is small. As a result, axons must squeeze through a smaller opening, leaving little or no room for a physiologic cup.) - which can lead to modest visual compromise and visual field defects. We will await the final test results before going forth with a diagnosis of pseudopapilledema. I will update as soon as we get the results.

Take Care,

Naomi

Naomi

Hi! I keep thinking of your little girl. Have you heard anything yet concerning her reports? I have been away for about 2 weeks and put myself on daily digest and was wondering if you had heard. Praying for her!

Blessing, Pam<><

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That is great news with the cerebral spinal fluid pressure and her getting to start her helmet again! You have one strong little girl. My middle son had to go through a spinal tap when he was a baby and it is not fun at all. Will keep praying for her. Keep us posted ~

Blessings, Pam<><

Naomi

Hi! I keep thinking of your little girl. Have you heard anything yet concerning her reports? I have been away for about 2 weeks and put myself on daily digest and was wondering if you had heard. Praying for her!

Blessing, Pam<><

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