Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Hi, I'm sorry to hear you were denied again. Do you have an appeals left? If so check out this link: http://www.cappskids.org/PlagioInsuranceHelp.htm Good luck and please keep us posted. -- In Plagiocephaly , " kha_146 " <dkacker@...> wrote: > > My son's helmet therapy was initially denied by Principal Financial > Group and so was my appeal, both saying it was cosmetic. Any > suggestions from a similar situation that was successful. I don't know > what else to do? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Yes, that is where I got most of my information from. > > > > My son's helmet therapy was initially denied by Principal Financial > > Group and so was my appeal, both saying it was cosmetic. Any > > suggestions from a similar situation that was successful. I don't know > > what else to do? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Hi, So what happens next? Can you appeal this decision? > > > > > > My son's helmet therapy was initially denied by Principal > Financial > > > Group and so was my appeal, both saying it was cosmetic. Any > > > suggestions from a similar situation that was successful. I don't > know > > > what else to do? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 This doesn't sound right, you need to get an advocate. Don't sign whatever you do. Have you gone to the top dog of Special Ed? And I don't mean at the school. The district. We had the meeting with the special Ed group at school...nope, nothing, nada, zilch, bupkes, you're on your own, apparently my ds's test grades are so high that his intelligence means he doesn't qualify for special ed. Never mind tremendous test score discrepancies, that I'm told "average out" and are nothing to be concerned about, never mind his classwork stinks and he is barely getting by with C's, since he doesn't do homework or finish class work, never mind that he has a formal diagnosis from the cst neuropsych of AS...never mind all that, he's not entitled to anything.Of course I refused to sign, got dirty looks all around, had to listen to the teachers tell me "he doesn't live up to potential" (hey, maybe he's bored?) and now I'm beyond upset, he's ranting about not being a "sped" and I feel totally out of it, miserable and so angry at everyone, and everything.In other words, it's been a totally cruddy day and I'm close to losing it. Of course in all this, dh and ds do not get along, so this all just adds fuel to the fire and makes for an unbelievably stressful situation.Thanks for listening.Barbara in NJ Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 My son is in special ed but they are probably taking him out b/c they say he really doesn't belong because of his test scores/grades. It won't change the accommodations he's getting though b/c he'll qualify under "504", if memory serves me correctly. Is there another classification your son could qualify under that isn't special education but still gets him the extra help he needs? I'm so sorry to hear you're going through this right now. I know how alone you must feel. Just know we're all here pulling for you!!!! son, Dylan (11, Aspergers) Austin, TX ( ) denied again We had the meeting with the special Ed group at school...nope, nothing, nada, zilch, bupkes, you're on your own, apparently my ds's test grades are so high that his intelligence means he doesn't qualify for special ed. Never mind tremendous test score discrepancies, that I'm told "average out" and are nothing to be concerned about, never mind his classwork stinks and he is barely getting by with C's, since he doesn't do homework or finish class work, never mind that he has a formal diagnosis from the cst neuropsych of AS...never mind all that, he's not entitled to anything.Of course I refused to sign, got dirty looks all around, had to listen to the teachers tell me "he doesn't live up to potential" (hey, maybe he's bored?) and now I'm beyond upset, he's ranting about not being a "sped" and I feel totally out of it, miserable and so angry at everyone, and everything.In other words, it's been a totally cruddy day and I'm close to losing it. Of course in all this, dh and ds do not get along, so this all just adds fuel to the fire and makes for an unbelievably stressful situation.Thanks for listening.Barbara in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Can you take all your test scores and put them into a chart of some sort? Bar, scatter, line, anything to take the focus off the number, and refocus on the discrepancies between the numbers. I did that a couple of years ago and it at least got them to agree to an IEE. Just a thought... Trish -----Original Message-----From: [mailto: ] On Behalf Of CyberMommyLJA@...Sent: Friday, February 08, 2008 8:32 PM Subject: ( ) denied again We had the meeting with the special Ed group at school...nope, nothing, nada, zilch, bupkes, you're on your own, apparently my ds's test grades are so high that his intelligence means he doesn't qualify for special ed. Never mind tremendous test score discrepancies, that I'm told "average out" and are nothing to be concerned about, never mind his classwork stinks and he is barely getting by with C's, since he doesn't do homework or finish class work, never mind that he has a formal diagnosis from the cst neuropsych of AS...never mind all that, he's not entitled to anything.Of course I refused to sign, got dirty looks all around, had to listen to the teachers tell me "he doesn't live up to potential" (hey, maybe he's bored?) and now I'm beyond upset, he's ranting about not being a "sped" and I feel totally out of it, miserable and so angry at everyone, and everything.In other words, it's been a totally cruddy day and I'm close to losing it. Of course in all this, dh and ds do not get along, so this all just adds fuel to the fire and makes for an unbelievably stressful situation.Thanks for listening.Barbara in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 There are too many families in my town who have been denied help, and this includes children with visible physical challenges, such as spina bifida, muscular dystrophy, and various neurological, but rare, conditions. There was an article in the local paper about a special needs advocacy group that is being started, since the Board of Ed "official" special needs group is not open to residents, but is supposed to be an advocacy group that is staffed by appointed members of the school system -- their meetings are closed to the public and no minutes are ever made public. I plan on being at the next meeting of the new group, since it looks like it will be a grass roots organization composed of parents whose kids have been denied services that they need. I love the idea of pins and shirts that tell our story, we just need the money for them, and the money to get the ball rolling. Barbara in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Barbara,I am right there with you. I was told last Thursday in a not so pleasant way that the last 2 years of my son being in EELP has helped some but that his scores on his IQ testing and all the tests they have run say they are not high enough to enter kindergarten. I have talked with many parents who are just frustrated with regular public schools and the kids aren't getting all the help they needs. So I have decided to place Austin in a FACE Program ( Florida Autism Center of Excellence) They provide Speech, OT, Behavioral Therapy, and Extra help with social skills and self help skills. Not sure if there is something in your area but it may not hurt to look into it for the help you need. Hang in there I know the fight is a great one with public schools. Ada CyberMommyLJA@... wrote: We had the meeting with the special Ed group at school...nope, nothing, nada, zilch, bupkes, you're on your own, apparently my ds's test grades are so high that his intelligence means he doesn't qualify for special ed. Never mind tremendous test score discrepancies, that I'm told "average out" and are nothing to be concerned about, never mind his classwork stinks and he is barely getting by with C's, since he doesn't do homework or finish class work, never mind that he has a formal diagnosis from the cst neuropsych of AS...never mind all that, he's not entitled to anything. Of course I refused to sign, got dirty looks all around, had to listen to the teachers tell me "he doesn't live up to potential" (hey, maybe he's bored?) and now I'm beyond upset, he's ranting about not being a "sped" and I feel totally out of it, miserable and so angry at everyone, and everything. In other words, it's been a totally cruddy day and I'm close to losing it. Of course in all this, dh and ds do not get along, so this all just adds fuel to the fire and makes for an unbelievably stressful situation. Thanks for listening. Barbara in NJ Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Great idea to use visuals! That does really help! RoxannaAutism Happens RE: ( ) denied again Can you take all your test scores and put them into a chart of some sort? Bar, scatter, line, anything to take the focus off the number, and refocus on the discrepancies between the numbers. I did that a couple of years ago and it at least got them to agree to an IEE. Just a thought... Trish -----Original Message-----From: [mailto: ] On Behalf Of CyberMommyLJAcsSent: Friday, February 08, 2008 8:32 PM Subject: ( ) denied again We had the meeting with the special Ed group at school...nope, nothing, nada, zilch, bupkes, you're on your own, apparently my ds's test grades are so high that his intelligence means he doesn't qualify for special ed. Never mind tremendous test score discrepancies, that I'm told "average out" and are nothing to be concerned about, never mind his classwork stinks and he is barely getting by with C's, since he doesn't do homework or finish class work, never mind that he has a formal diagnosis from the cst neuropsych of AS...never mind all that, he's not entitled to anything.Of course I refused to sign, got dirty looks all around, had to listen to the teachers tell me "he doesn't live up to potential" (hey, maybe he's bored?) and now I'm beyond upset, he's ranting about not being a "sped" and I feel totally out of it, miserable and so angry at everyone, and everything.In other words, it's been a totally cruddy day and I'm close to losing it. Of course in all this, dh and ds do not get along, so this all just adds fuel to the fire and makes for an unbelievably stressful situation.Thanks for listening.Barbara in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 I know you feel rotten. The truth is that they cannot deny him sped services due to his intelligence and/or his grades. And they are wrong - those discrepancies do mean something! It shows that he probably has a learning problem/learning disability. If nothing else - it shows that he has problems learning in those areas. That plus the problems he is experiencing proves that there is definitely a problem and definitely a need happening. Fortunately, IDEA says that they have to consider all of these things when deciding whether he requires help or not. At wrightslaw.com, they explain that:"Grades are based on subjective observations by the child's teachers. Grades will not help you or the school team know if a child has made acceptable progress. Because grades are so subjective, the IDEA does not even mention "grades" as a factor in determining if a child is or is not eligible. " slaw.com goes on to explain: "The school "shall use a variety of assessment tools and strategies to gather relevant functional, developmental, and academic information, including information provided by the parent" about the child . . . The school "may not use any single measure or assessment as the sole criterion for determining whether a child is a child with a disability ... 20 U.S.C. 1414((2) (slaw: Special Education Law, page 95; slaw: From Emotions to Advocacy, pages 156-161) " Here is a letter on grades and sped services --> http://wrightslaw.com/info/elig.sld.osep.felton.htm I know how you are feeling exactly. Try to funnel your energy into action. Go to wrightslaw.com and read more about your rights and more about the eligibility process so you can counter what they are saying at these meetings. If you can find an advocate in your area to help, grab one! Even if you take someone who doesn't know much about special ed, take someone with you to the meetings to help you feel more confident. Make a list of everything they have said to you and research to find the correct answers (because they are lying.) Also, request your prior written notice from them! They need to write to you and state why exactly they are refusing services/evaluation. Make it clear that you want your PWN. If they do not do it, write a letter of your own stating what was said and why you were refused (leave out the sarcasm, <g>) and also add that you requested your PWN but never got it. It helps to document the BS. RoxannaAutism Happens ( ) denied again We had the meeting with the special Ed group at school...nope, nothing, nada, zilch, bupkes, you're on your own, apparently my ds's test grades are so high that his intelligence means he doesn't qualify for special ed. Never mind tremendous test score discrepancies, that I'm told "average out" and are nothing to be concerned about, never mind his classwork stinks and he is barely getting by with C's, since he doesn't do homework or finish class work, never mind that he has a formal diagnosis from the cst neuropsych of AS...never mind all that, he's not entitled to anything.Of course I refused to sign, got dirty looks all around, had to listen to the teachers tell me "he doesn't live up to potential" (hey, maybe he's bored?) and now I'm beyond upset, he's ranting about not being a "sped" and I feel totally out of it, miserable and so angry at everyone, and everything.In other words, it's been a totally cruddy day and I'm close to losing it. Of course in all this, dh and ds do not get along, so this all just adds fuel to the fire and makes for an unbelievably stressful situation.Thanks for listening.Barbara in NJ Quote Link to comment Share on other sites More sharing options...
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