WHEELS

[Guest guest]

how does one start the process of getting a wheelchair? it seems like a dumb

question, i know, but i'm just realizing, after having both knees throbbing

painfully off & on for over a year that it may be time to be starting the

search. i have really good insurance. i just don't know where to begin. is

there

a wheelchair store? what about the idea of going to our " visiting nurse's

loan closet " and borrow just a regular chair for awhile to see how that goes? i

have TOS in my L shoulder, which doesn't bother me much, but i must have it

in my R one, too, or something else, cuz i have a hard time sleeping directly

on my R shoulder. also, my hands are very weak & i know they'd get tired of

pushing myself, but i could make sure to always have someone w/me when using it.

what do you think? i can take back the crutches i'm done with & get a

wheelchair! after yesterday's ER visit, cuz both knees were so painful for so

long, i had to do something to break the cycle. the demerol & viserol (?)

injection worked just fine. for last night and most of today (i was a tv napper

today). i know as soon as i start back doing errands, etc, i'll get bad again.

asked dr for some muscle relaxers since my pain meds aren't touching this knee

pain. i had the arthro done 12/17 but it feels like yesteray. the pain has

gotten worse rather than better. of course they don't give you any guarantees

& i knew that going in. it'll be several more months, i'm sure, til we know

if it actually worked or not. if it did, then we consider doing the L one.

ugh. it's one thing after another & another & another w/us EDSers, huh? Every

Day is Special & we must remember that. we may feel like doggy doo, but

there's someone in the hospital who may be near death's door. we must be

grateful

to God for giving us another chance each & every day to be a better & more

positive person. i know i can sure learn some lessons in that dept!! i dare

everyone to do it tomorrow. be more positive. try not to make that catty

comment that's on the tip of your tongue. smile up at God & let Him know you're

trying harder for Him!!

love & anjil hugs to all my CEDAngel friends,

jil () : )

[Guest guest]

From: anjiltoes@...

To: ceda

Subject: WHEELS

how does one start the process of getting a wheelchair?

****************************************************

Hi Anjil, There are a few ways to go about it. Your primary Dr. or PT are two

main ways. A Dr has to order it, but it's best if the Chair Co. does the fitting

and the PT decides which pieces would best suit your needs. In my sons case, The

chair Company came to the PT and together they decided on the right chair and

pieces to go on it. Then the Dr wrote a script for it. The PT wrote a letter as

to why the chair was needed, and the Dr signed that letter. Then all is sent

into the insurance and we wait, and wait, and wait. If you need a costum made

chair like Dylan, it takes about 6 months to get it.

Cindy C.

[Guest guest]

From: anjiltoes@...

To: ceda

Subject: WHEELS

how does one start the process of getting a wheelchair?

****************************************************

Hi Anjil, There are a few ways to go about it. Your primary Dr. or PT are two

main ways. A Dr has to order it, but it's best if the Chair Co. does the fitting

and the PT decides which pieces would best suit your needs. In my sons case, The

chair Company came to the PT and together they decided on the right chair and

pieces to go on it. Then the Dr wrote a script for it. The PT wrote a letter as

to why the chair was needed, and the Dr signed that letter. Then all is sent

into the insurance and we wait, and wait, and wait. If you need a costum made

chair like Dylan, it takes about 6 months to get it.

Cindy C.