Ginny/autism

[Guest guest]

In a message dated 11/17/2004 5:51:26 PM Eastern Standard Time, RSD-CRPSofAmerica writes:

I totally agree...most don't know what to say or how to act around me anymore. I went through the same thing when my son was dx with autism...most of my family would ignore me and my son or would say it was my fault that he was autistic..somthing I did or did not do when i was pregnant with him. It's hard for some to understand disorders they have never heard of or dealt with or make them uncomfortable. They don't realize it hurts the person who has it that they act like this more then the disorder sometimes. Hope you had a great day...Hugs..Ginny

Ginny,

thanks for the well wishes, I am feeling better, just very very tired and the pleurisy is still painful. I cannot believe that people would think you did something to cause your son's autism!!! It just goes to show how IGNORANT they are!!!!! Don't pay them any attention, you know that it is not your fault!! I know it must hurt you so bad that they think that!!!! Thinking of you, Love Jai

[Guest guest]

Jai,

I know it is a genetic disorder..and am not worried about what anyone thinks may have caused it other then it being a genetic disorder. I did in the beginning when I didn't know much about autism myself wonder what I did or didn't do too that might have caused it. I guess it's a normal response when you hear your child has something wrong with them. Since my son was dx with autism which was almost 7 yrrs ago...2 younger family members have been dx with it also...strangly enough they are both girls which is rare...and the most outspoken on what i did to cause it is now dealing with being a mother of an autistic child. Unfortunately she is not out of denial and won't get her daughter the proper help with therapies and schooling because she is in such deep denial. She claims the drs are wrong...my son also has adhd as a secondary dx...and she looks at my son and her daughter and finds all the differences between the 2 to justify why her daughter doesn't

have autism. But now my son is doing awesome and most people can not tell he is autistc if they only meet him for a brief period of time...and her daughter is not thriving at all and is so much worse off then my son is now. I really feel bad for her daughter who could also be thriving if she just had the help she needed. The hardest part is that out of 9 aunts and uncles and all of them are married so that make 18 in total...don't all agree about whether or not some are really autistic and some may not be and what causes it. So family gathering are not alot of fun sometimes..lol. All are opinionated..and all speak their mind. The other one with autism is geting alot of help but again is not reciving as much therapies or the right schooling..she is in reg ed and is not thriving there..but at least she is getting some help. A few in my family have outright told the mothers of the other 2 to ask where i got help for my son waht I did to get

it...but they won't for some reason even though i have offered. I try to stay away from the political, health or any other discussions during family gatherings...it's stressful to listen and have to get into disagreements when you are there to enjoy yourself and catch up. Hoping Thanksgiving will be quieter..there will only be 4 families there in stead of all 9. I just saw a special on gbh called the refridgerator moms...it's about autism in the 50's and how the theory was that the moms were cold and uncaring and that was what caused autism in their children. It shows you that even in the 50's through 70's drs thought that to be the case...sad really but glad drs and people have smartened up about what causes autism and what helps people with autism function better and learn better. Hope you have a Great Thanksgiving...Hugs..Ginnyjaismonkey@... wrote:

In a message dated 11/17/2004 5:51:26 PM Eastern Standard Time, RSD-CRPSofAmerica writes:

I totally agree...most don't know what to say or how to act around me anymore. I went through the same thing when my son was dx with autism...most of my family would ignore me and my son or would say it was my fault that he was autistic..somthing I did or did not do when i was pregnant with him. It's hard for some to understand disorders they have never heard of or dealt with or make them uncomfortable. They don't realize it hurts the person who has it that they act like this more then the disorder sometimes. Hope you had a great day...Hugs..Ginny

Ginny,

thanks for the well wishes, I am feeling better, just very very tired and the pleurisy is still painful. I cannot believe that people would think you did something to cause your son's autism!!! It just goes to show how IGNORANT they are!!!!! Don't pay them any attention, you know that it is not your fault!! I know it must hurt you so bad that they think that!!!! Thinking of you, Love Jai

[Guest guest]

Ginny - When I meet with a child and their parent/s for the first time, I frequently find myself thinking "Thank God" or "Oh cr@p," not because of how seriously troubled a little one may be, but rather because of the obstacles that must first be cleared out of the way. How sad it is when a parent's own personal issues, even with (and sometimes because of) the great love that they may hold, interfere with a child getting everything that they need. It's an incredible joy for me when I meet a parent who is a strong and loving advocate for their child. Your son has been blessed to have you. Barbara ( who shares your frustration with how mothers of kids who had autism were viewed not so very long ago)

Ginny Barrientos wrote:

Jai,

I know it is a genetic disorder..and am not worried about what anyone thinks may have caused it other then it being a genetic disorder. I did in the beginning when I didn't know much about autism myself wonder what I did or didn't do too that might have caused it. I guess it's a normal response when you hear your child has something wrong with them. Since my son was dx with autism which was almost 7 yrrs ago...2 younger family members have been dx with it also...strangly enough they are both girls which is rare...and the most outspoken on what i did to cause it is now dealing with being a mother of an autistic child. Unfortunately she is not out of denial and won't get her daughter the proper help with therapies and schooling because she is in such deep denial. She claims the drs are wrong...my son also has adhd as a secondary dx...and she looks at my son and her daughter and finds all the differences between the 2 to justify why her daughte! r

doesn't have autism. But now my son is doing awesome and most people can not tell he is autistc if they only meet him for a brief period of time...and her daughter is not thriving at all and is so much worse off then my son is now. I really feel bad for her daughter who could also be thriving if she just had the help she needed. The hardest part is that out of 9 aunts and uncles and all of them are married so that make 18 in total...don't all agree about whether or not some are really autistic and some may not be and what causes it. So family gathering are not alot of fun sometimes..lol. All are opinionated..and all speak their mind. The other one with autism is geting alot of help but again is not reciving as much therapies or the right schooling..she is in reg ed and is not thriving there..but at least she is getting some help. A few in my family have outright told the mothers of the other 2 to ask where i got help for my son waht I did t!

o get it...but they won't for some reason even though i have offered. I try to stay away from the political, health or any other discussions during family gatherings...it's stressful to listen and have to get into disagreements when you are there to enjoy yourself and catch up. Hoping Thanksgiving will be quieter..there will only be 4 families there in stead of all 9. I just saw a special on gbh called the refridgerator moms...it's about autism in the 50's and how the theory was that the moms were cold and uncaring and that was what caused autism in their children. It shows you that even in the 50's through 70's drs thought that to be the case...sad really but glad drs and people have smartened up about what causes autism and what helps people with autism function better and learn better. Hope you have a Great Thanksgiving...Hugs..Ginny