Re: So many questions

[Guest guest]

Hi Haley,

Welcome to the group.

You can get a RX directly from your ped to go to CT. Have him write

DOC Band for brachycephaly (no substitutions). CT will then do your

initial evaluation and give you their recommendation. They will

then attempt to get precert from insurance (unless it's BCBS). At

that point insurance may say you need a specialist. But if

insurance doesn't say that then you are ahead of the game. It is

not required that he have a CT for brachy. Specialists like them as

a routine test. They are expensive and require the child to be

sedated. Many on here have had it done.

CT can probably get you in for an eval within 2 weeks if not sooner.

na, DOC Grad Feb 04

Kiersten, DOC Grad April 06

www.thefilyaws.com/plagio/plagio.html

>

> My son was 4 months old when I realized he was developing a flat

head

> (nothing has been diagnosed but I think it's brachycephaly from

the

> research I've done). I know the culprits.. Caleb was 20 pounds at

4

> months and just can't develop strength quick enough for his

enormous

> body and also, he spent too much time on the changing table and

in

> his bouncy seat.. to explain (b/c that sounds weird with too much

> time on the changing table)... for the life of us we could not get

> him to look at us as we were holding him.. he was just too

interested

> in things around him.. so we put him on the changing table and in

his

> bouncy seat and just had the time of our lives interacting with

> him... probably too much. He is such a good sleeper, so sleeping

12

> hours a night on his back is a lot.. we even tried to use wedges

and

> memory foam pillows, but obviously that didn't help. So our

doctor

> suggested repositioning and then a recheck at his 6 month.. well

> thankfully his head didn't get any flatter, but it didn't get

> better.. so he's referring me to a neurosurgeon.. now here come

the

> questions..

> 1- the neurosurgeon will not see him unless he has a ct scan

(which I

> understand the need for).. however, I would love love love to go

with

> Cranio Technology (my gut is pulling me there) and I was wondering

if

> a ct scan is needed for them?

> 2- the Cran Tech website says they need a presciption from a

doctor..

> can it just be my peds or does it have to be a neurosurgeon?

> 3- how quick have you been able to make an appt with Cran Tech?

>

> Those are the questions I can think of right now.. I'm a guilty

mess

> and I just want to get started on things. Any answers info will

be

> so greatly appreciated!!

> Haley

>

[Guest guest]

FYI...we did go to a neurosurgeon (once before and once after a referral by our ped) who did not recommend a CT. He could tell from the physical exam and observation that it was clearly a classic plagio/brachy case, and he felt it would be unnecessary exposure to radiation for the baby...not to mention the sedation. I SO appreciated him for this. The CT is definitely not necessary. It is true as well that a specialist is not needed to go to CT, but you will need an Rx from a doctor. <monicash@...> wrote: Hi Haley,Welcome to the group.You can get a RX directly from your ped to go to CT. Have him write DOC Band for brachycephaly (no substitutions). CT will then do your initial evaluation and give you their recommendation. They will then

attempt to get precert from insurance (unless it's BCBS). At that point insurance may say you need a specialist. But if insurance doesn't say that then you are ahead of the game. It is not required that he have a CT for brachy. Specialists like them as a routine test. They are expensive and require the child to be sedated. Many on here have had it done.CT can probably get you in for an eval within 2 weeks if not sooner.na, DOC Grad Feb 04Kiersten, DOC Grad April 06www.thefilyaws.com/plagio/plagio.html >> My son was 4 months old when I realized he was developing a flat head > (nothing has been diagnosed but I think it's brachycephaly from the > research I've done). I know the culprits.. Caleb was 20 pounds at 4 > months and just can't

develop strength quick enough for his enormous > body and also, he spent too much time on the changing table and in > his bouncy seat.. to explain (b/c that sounds weird with too much > time on the changing table)... for the life of us we could not get > him to look at us as we were holding him.. he was just too interested > in things around him.. so we put him on the changing table and in his > bouncy seat and just had the time of our lives interacting with > him... probably too much. He is such a good sleeper, so sleeping 12 > hours a night on his back is a lot.. we even tried to use wedges and > memory foam pillows, but obviously that didn't help. So our doctor > suggested repositioning and then a recheck at his 6 month.. well > thankfully his head didn't get any flatter, but it didn't get > better.. so he's referring me to a neurosurgeon.. now

here come the > questions.. > 1- the neurosurgeon will not see him unless he has a ct scan (which I > understand the need for).. however, I would love love love to go with > Cranio Technology (my gut is pulling me there) and I was wondering if > a ct scan is needed for them?> 2- the Cran Tech website says they need a presciption from a doctor.. > can it just be my peds or does it have to be a neurosurgeon?> 3- how quick have you been able to make an appt with Cran Tech?> > Those are the questions I can think of right now.. I'm a guilty mess > and I just want to get started on things. Any answers info will be > so greatly appreciated!!> Haley>

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[Guest guest]

Hi Haley,

Welcome to the group! I just wanted to second everything has

already told you. Keep us posted.

-- In Plagiocephaly , " aimo8o1 " <aimo8o1@...> wrote:

>

> My son was 4 months old when I realized he was developing a flat head

> (nothing has been diagnosed but I think it's brachycephaly from the

> research I've done). I know the culprits.. Caleb was 20 pounds at 4

> months and just can't develop strength quick enough for his enormous

> body and also, he spent too much time on the changing table and in

> his bouncy seat.. to explain (b/c that sounds weird with too much

> time on the changing table)... for the life of us we could not get

> him to look at us as we were holding him.. he was just too interested

> in things around him.. so we put him on the changing table and in his

> bouncy seat and just had the time of our lives interacting with

> him... probably too much. He is such a good sleeper, so sleeping 12

> hours a night on his back is a lot.. we even tried to use wedges and

> memory foam pillows, but obviously that didn't help. So our doctor

> suggested repositioning and then a recheck at his 6 month.. well

> thankfully his head didn't get any flatter, but it didn't get

> better.. so he's referring me to a neurosurgeon.. now here come the

> questions..

> 1- the neurosurgeon will not see him unless he has a ct scan (which I

> understand the need for).. however, I would love love love to go with

> Cranio Technology (my gut is pulling me there) and I was wondering if

> a ct scan is needed for them?

> 2- the Cran Tech website says they need a presciption from a doctor..

> can it just be my peds or does it have to be a neurosurgeon?

> 3- how quick have you been able to make an appt with Cran Tech?

>

> Those are the questions I can think of right now.. I'm a guilty mess

> and I just want to get started on things. Any answers info will be

> so greatly appreciated!!

> Haley

>

[Guest guest]

Welcome to the group. Let us know how the eval goes with CT. My

daughter did not have a ct done.

Sandy Willow's mom

>

> My son was 4 months old when I realized he was developing a flat

head

> (nothing has been diagnosed but I think it's brachycephaly from

the

> research I've done). I know the culprits.. Caleb was 20 pounds at

4

> months and just can't develop strength quick enough for his

enormous

> body and also, he spent too much time on the changing table and

in

> his bouncy seat.. to explain (b/c that sounds weird with too much

> time on the changing table)... for the life of us we could not get

> him to look at us as we were holding him.. he was just too

interested

> in things around him.. so we put him on the changing table and in

his

> bouncy seat and just had the time of our lives interacting with

> him... probably too much. He is such a good sleeper, so sleeping

12

> hours a night on his back is a lot.. we even tried to use wedges

and

> memory foam pillows, but obviously that didn't help. So our

doctor

> suggested repositioning and then a recheck at his 6 month.. well

> thankfully his head didn't get any flatter, but it didn't get

> better.. so he's referring me to a neurosurgeon.. now here come

the

> questions..

> 1- the neurosurgeon will not see him unless he has a ct scan

(which I

> understand the need for).. however, I would love love love to go

with

> Cranio Technology (my gut is pulling me there) and I was wondering

if

> a ct scan is needed for them?

> 2- the Cran Tech website says they need a presciption from a

doctor..

> can it just be my peds or does it have to be a neurosurgeon?

> 3- how quick have you been able to make an appt with Cran Tech?

>

> Those are the questions I can think of right now.. I'm a guilty

mess

> and I just want to get started on things. Any answers info will

be

> so greatly appreciated!!

> Haley

>

[Guest guest]

Thanks for sharing this.. I just kind of hope I'm making the right

decision in foregoing the ct for now and hoping that it won't set us

back at all.

Haley

> >

> > My son was 4 months old when I realized he was developing a flat

> head

> > (nothing has been diagnosed but I think it's brachycephaly from

> the

> > research I've done). I know the culprits.. Caleb was 20 pounds

at

> 4

> > months and just can't develop strength quick enough for his

> enormous

> > body and also, he spent too much time on the changing table

and

> in

> > his bouncy seat.. to explain (b/c that sounds weird with too much

> > time on the changing table)... for the life of us we could not

get

> > him to look at us as we were holding him.. he was just too

> interested

> > in things around him.. so we put him on the changing table and in

> his

> > bouncy seat and just had the time of our lives interacting with

> > him... probably too much. He is such a good sleeper, so sleeping

> 12

> > hours a night on his back is a lot.. we even tried to use wedges

> and

> > memory foam pillows, but obviously that didn't help. So our

> doctor

> > suggested repositioning and then a recheck at his 6 month.. well

> > thankfully his head didn't get any flatter, but it didn't get

> > better.. so he's referring me to a neurosurgeon.. now here come

> the

> > questions..

> > 1- the neurosurgeon will not see him unless he has a ct scan

> (which I

> > understand the need for).. however, I would love love love to go

> with

> > Cranio Technology (my gut is pulling me there) and I was

wondering

> if

> > a ct scan is needed for them?

> > 2- the Cran Tech website says they need a presciption from a

> doctor..

> > can it just be my peds or does it have to be a neurosurgeon?

> > 3- how quick have you been able to make an appt with Cran Tech?

> >

> > Those are the questions I can think of right now.. I'm a guilty

> mess

> > and I just want to get started on things. Any answers info will

> be

> > so greatly appreciated!!

> > Haley

> >

>

[Guest guest]

Our ped sent us to take an X-ray before we saw the neurosurgeon and he

didn't even look at it. Our ortho at CT suggested it was unnecessary

exposure to radiation since they can tell just by looking at baby.

Tulip

> > >

> > > My son was 4 months old when I realized he was developing a flat

> > head

> > > (nothing has been diagnosed but I think it's brachycephaly from

> > the

> > > research I've done). I know the culprits.. Caleb was 20 pounds

> at

> > 4

> > > months and just can't develop strength quick enough for his

> > enormous

> > > body and also, he spent too much time on the changing table

> and

> > in

> > > his bouncy seat.. to explain (b/c that sounds weird with too much

> > > time on the changing table)... for the life of us we could not

> get

> > > him to look at us as we were holding him.. he was just too

> > interested

> > > in things around him.. so we put him on the changing table and in

> > his

> > > bouncy seat and just had the time of our lives interacting with

> > > him... probably too much. He is such a good sleeper, so sleeping

> > 12

> > > hours a night on his back is a lot.. we even tried to use wedges

> > and

> > > memory foam pillows, but obviously that didn't help. So our

> > doctor

> > > suggested repositioning and then a recheck at his 6 month.. well

> > > thankfully his head didn't get any flatter, but it didn't get

> > > better.. so he's referring me to a neurosurgeon.. now here come

> > the

> > > questions..

> > > 1- the neurosurgeon will not see him unless he has a ct scan

> > (which I

> > > understand the need for).. however, I would love love love to go

> > with

> > > Cranio Technology (my gut is pulling me there) and I was

> wondering

> > if

> > > a ct scan is needed for them?

> > > 2- the Cran Tech website says they need a presciption from a

> > doctor..

> > > can it just be my peds or does it have to be a neurosurgeon?

> > > 3- how quick have you been able to make an appt with Cran Tech?

> > >

> > > Those are the questions I can think of right now.. I'm a guilty

> > mess

> > > and I just want to get started on things. Any answers info will

> > be

> > > so greatly appreciated!!

> > > Haley

> > >

> >

>

[Guest guest]

The reason some specialists/peds want a CT is to confirm that there is no craniosyntosis. In many cases, however, it is evident based on physical exam of the head, observation of baby, and baby's development history description, a specialist can make the diagnosis of plagio/brachy and no craniosyntosis. Our neurosurgeon did just that. He was confident that a CT would not show cranio, and that it would have been unnecessary radiation exposure as with Tulip below. I would feel more comfortable having a physician make this diagnosis rather than a PT/OT, but that's just me. However, Cranial Tech will not require the CT. cutiecephaly <cutiecephaly@...> wrote: Our ped sent us to take an X-ray before we saw the neurosurgeon and

hedidn't even look at it. Our ortho at CT suggested it was unnecessaryexposure to radiation since they can tell just by looking at baby.Tulip> > >> > > My son was 4 months old when I realized he was developing a flat> > head> > > (nothing has been diagnosed but I think it's brachycephaly from> >

the> > > research I've done). I know the culprits.. Caleb was 20 pounds> at> > 4> > > months and just can't develop strength quick enough for his> > enormous> > > body and also, he spent too much time on the changing table> and> > in> > > his bouncy seat.. to explain (b/c that sounds weird with too much> > > time on the changing table)... for the life of us we could not> get> > > him to look at us as we were holding him.. he was just too> > interested> > > in things around him.. so we put him on the changing table and in> > his> > > bouncy seat and just had the time of our lives interacting with> > > him... probably too much. He is such a good sleeper, so sleeping> > 12> > > hours a night on his back is a lot.. we even tried to use wedges> > and>

> > memory foam pillows, but obviously that didn't help. So our> > doctor> > > suggested repositioning and then a recheck at his 6 month.. well> > > thankfully his head didn't get any flatter, but it didn't get> > > better.. so he's referring me to a neurosurgeon.. now here come> > the> > > questions..> > > 1- the neurosurgeon will not see him unless he has a ct scan> > (which I> > > understand the need for).. however, I would love love love to go> > with> > > Cranio Technology (my gut is pulling me there) and I was> wondering> > if> > > a ct scan is needed for them?> > > 2- the Cran Tech website says they need a presciption from a> > doctor..> > > can it just be my peds or does it have to be a neurosurgeon?> > > 3- how quick have you been able to make an appt

with Cran Tech?> > >> > > Those are the questions I can think of right now.. I'm a guilty> > mess> > > and I just want to get started on things. Any answers info will> > be> > > so greatly appreciated!!> > > Haley> > >> >>

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[Guest guest]

My 3 year old son takes the bus to and from school daily. His bus

only picks up kids that are going to his school. They pull right into

our driveway. There is an aid on it. i carry to the bus and

hand him to the aid, the aid buckles him into his car seat and away

they go. Once at school the aid takes him off the bus and hands him

to the aid that takes care of him at school.

can walk on his own, but does not follow directions so we would

never make it to the bus walking. He is also nonverbal and very

delayed in all areas.

enjoys the bus ride. He usually falls asleep, which is great

because he has a rest berfore school and after school.

Hope this helps some.

>

> Hi, i was wondering how you all felt about putting preschoolers on a

> bus. my 3 year old son would have to ride it to the preschool

disabled

> program across town and hes not the most independant kid at all. im

> sure there would be an aide but still i am tentative.

>

> also he is doing SO well with his super nu thera and 2 NN omega 369.

> hes been on those for a month and a half now. we are seeing two words

> together now! should i add one more? if i do, should i give him that

> one later in the day? can you tell me the reason so many of you

> separate the doses? does it have to do with absorption?

>

> thank you so much for all of your information!

> alexis

>

[Guest guest]

I for one would never put my 3 year old on a bus, but that is my own

preference....

[ ] Re: so many questions

My 3 year old son takes the bus to and from school daily. His bus

only picks up kids that are going to his school. They pull right into

our driveway. There is an aid on it. i carry to the bus and

hand him to the aid, the aid buckles him into his car seat and away

they go. Once at school the aid takes him off the bus and hands him

to the aid that takes care of him at school.

can walk on his own, but does not follow directions so we would

never make it to the bus walking. He is also nonverbal and very

delayed in all areas.

enjoys the bus ride. He usually falls asleep, which is great

because he has a rest berfore school and after school.

Hope this helps some.

>

> Hi, i was wondering how you all felt about putting preschoolers on a

> bus. my 3 year old son would have to ride it to the preschool

disabled

> program across town and hes not the most independant kid at all. im

> sure there would be an aide but still i am tentative.

>

> also he is doing SO well with his super nu thera and 2 NN omega 369.

> hes been on those for a month and a half now. we are seeing two words

> together now! should i add one more? if i do, should i give him that

> one later in the day? can you tell me the reason so many of you

> separate the doses? does it have to do with absorption?

>

> thank you so much for all of your information!

> alexis

>

[Guest guest]

My ds, Will (3.6) rides the bus - even though school is only 3 blocks away!!!

When he started school last Aug I was VERY hesitant. I am still not sure if it

was because I truly thought he was not ready or if I had to get over my own

issuses with the " short bus " .

Anyway - at first I took him everyday and then in late Sept the class went on

a field trip to an indoor swimming pool - they took the bus. After that Will

associated school bus with fun, he started furiously signing bus & got mad as

hell when the other kids got on the bus & he didn't. I figured this was his way

of saying that he was ready! Although, I think Elmo videos that had school

buses in them and toy buses helped too. At that time the bus had a para that

rode along (it was a bus specific for the autism classroom). Now he is on a new

bus that has kids age 3-8, all " IEP " kids - carseats but no para. Will LOVES the

bus. It is an adventure. The only problem is the less than desirable behaviors

he has learned (like headbanging) from the other children. The drivers are great

& very interactive with the kids - teaching them things like right turn & left

turn.

In our situation the bus is awesome. The only thing I dislike it that I never

get " face time " with his teacher & I don't see many of the other kids or

parents.

Martha

" Wendi K. Chapman " <WendiChapman@...> wrote:

I for one would never put my 3 year old on a bus, but that is my own

preference....

[ ] Re: so many questions

My 3 year old son takes the bus to and from school daily. His bus

only picks up kids that are going to his school. They pull right into

our driveway. There is an aid on it. i carry to the bus and

hand him to the aid, the aid buckles him into his car seat and away

they go. Once at school the aid takes him off the bus and hands him

to the aid that takes care of him at school.

can walk on his own, but does not follow directions so we would

never make it to the bus walking. He is also nonverbal and very

delayed in all areas.

enjoys the bus ride. He usually falls asleep, which is great

because he has a rest berfore school and after school.

Hope this helps some.

>

> Hi, i was wondering how you all felt about putting preschoolers on a

> bus. my 3 year old son would have to ride it to the preschool

disabled

> program across town and hes not the most independant kid at all. im

> sure there would be an aide but still i am tentative.

>

> also he is doing SO well with his super nu thera and 2 NN omega 369.

> hes been on those for a month and a half now. we are seeing two words

> together now! should i add one more? if i do, should i give him that

> one later in the day? can you tell me the reason so many of you

> separate the doses? does it have to do with absorption?

>

> thank you so much for all of your information!

> alexis

>